Self-assessment of 28-joint disease activity scores by patients with rheumatoid arthritis on anti-TNF therapy

Shaffu, Shireen; Edwards, Jill; Neame, Rebecca; Hassan, Waji

doi:10.1093/rheumatology/kes383

Cited by 7 publications

(9 citation statements)

References 5 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…It was also available on the patient’s smartphone and could be viewed without an internet connection, which facilitates access at any time. Our patients’ perceptions about the auto-DAS video were similar to the evaluation of the English and French videos by patients with RA [ 18 – 20 ]. In fact, both evaluations showed that training patients to carry out their self-assessment with DAS-28 was feasible and acceptable and that most patients adhered to reporting their auto-DAS as per an evaluation after six months in the English study.…”

Section: Discussionsupporting

confidence: 60%

“…As in other educational videos, whether in rheumatology [ 18 – 20 ] or other fields, such as vaccination [ 27 ] or cancer health literacy [ 28 ], the patients really appreciated the education that is offered to them.…”

Section: Discussionmentioning

confidence: 99%

“…Our study team developed and validated an educational video in Arabic to teach patients with RA self-assessment of their disease activity using DAS-28 (termed auto-DAS) [ 16 ]. The video was based on two previously published videos, both tested with real-life patients, in English [ 17 , 18 ] and French [ 19 , 20 ]. It resulted from the collaboration of a team of twenty-three rheumatology experts from the Middle Eastern Arab Countries (MEAC) (study team) with a patient with RA, a medical student, a rheumatology nurse, and a professional technical team.…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Perceptions of patients with rheumatoid arthritis about self-assessment of disease activity after watching an educational video: a qualitative pilot study from the AUTO-DAS in Middle Eastern Arab countries project

et al. 2021

View full text Add to dashboard Cite

To evaluate the perceptions of patients with rheumatoid arthritis (RA) about self-assessment of their disease activity after watching an educational video. Consecutive patients with RA consulting their rheumatologist in six Middle Eastern Countries were invited to watch an educational video developed to teach self-assessment using Disease Activity Score (DAS-28). Then, a rheumatology nurse conducted a semi-structured interview and collected the patients’ perception about the understanding of the video, feasibility, capability and confidence in performing self-assessment using Likert-type items. The degree of confidence with self-assessment was correlated to the patients’ socio-demographic characteristics. Sixty-two patients were included and had an overall positive reaction to the video. It was easy to understand in 96% and helped facilitate self-assessment in 92% of cases. Self-assessment was considered totally feasible in 74%, and 66% of patients were capable of always doing it, with a confidence of 60% (always) to 34% (sometimes). Confidence was associated with a higher educational level. Nevertheless, 77% of patients felt that the self-assessment would not fully replace the physician’s visit. Open-ended questions identified five themes: better understanding of the disease, easier communication with the rheumatologist, less consultation time, difficulty with the scoring part and importance of practice. Patients with RA felt that self-assessment was feasible and helpful in understanding RA, improving communication with the rheumatologist and shortening the visit time. Supplementary Information The online version contains supplementary material available at 10.1007/s00296-021-04799-2.

show abstract

Section: Discussionsupporting

confidence: 60%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Perceptions of patients with rheumatoid arthritis about self-assessment of disease activity after watching an educational video: a qualitative pilot study from the AUTO-DAS in Middle Eastern Arab countries project

et al. 2021

View full text Add to dashboard Cite

show abstract

“…The outcome of educational videos on several different topics, such as education about pneumococcal vaccination 41 and cervical cancer health literacy,42 was a clear impact on changing patients’ behaviors positively. Also, the above videos, as well as the NRAS and Cochin RA videos, 26 , 43 , 44 were well received by the patients who appreciated the education offered to them.…”

Section: Discussionmentioning

confidence: 94%

Development of an Educational Video for Self-Assessment of Patients with RA: Steps, Challenges, and Responses

Ziadé

Arayssi

Elzorkany

et al. 2021

MJR

View full text Add to dashboard Cite

Objectives: The primary objective was to develop an educational video to teach patients with rheumatoid arthritis (RA) self-assessment of their disease activity. Secondary objectives were to validate the video, identify the challenges in producing it, and the responses to these challenges. Methods: Rheumatologists from 7 Middle Eastern Arab countries (MEAC) discussed unmet needs in the education of patients with RA. They reviewed pre-existing educational audiovisual material and drafted the script for a new video in Arabic. The video was produced in collaboration with a technical team, then validated by patients using a standardized interview. At each step of production, challenges were identified. Results: Twenty-three rheumatologists from MEAC identified unmet needs in patients’ education. A video was produced, explaining the concepts of treat-to-target and showing a patient performing self-assessment using DAS-28. Sixty-two patients were interviewed for validation and found the video to be useful and easy to understand, albeit not replacing the physician’s visit. Most common challenges encountered included acceptance of patient empowerment, agreement on DAS-28 as composite measure, production of a comprehensible written Arabic text, and addressing the population cultural mix. Conclusion: Despite challenges, the video was well accepted among patients and can be used for clinical and research purposes. It is particularly useful in pandemic periods where social distancing is recommended.

show abstract

“…While periodic physician evaluation of global health and patient joint signs and symptoms has served as a primary resource for selection of therapy, new research supports the need to include ongoing patient assessment and report of joint signs and symptoms in the overall assessment of disease and determination of therapy. The benefi ts of patient engagement in disease assessment and management were recently described in the journal Rheumatology [13]. With appropriate instruction from nurse specialists in rheumatology, patients were accurately able to self-assess joint signs and report symptoms to complete the widely adopted rheumatologic Disease Activity Score (DAS28).…”

Section: Engaging Patients In Treatment Selection Disease Monitoringmentioning

confidence: 99%

Assuring patient-centred care: engaging patients with rheumatoid arthritis in disease monitoring and pharmacovigilance

Wyatt¹

2014

GaBI J

View full text Add to dashboard Cite

With the advent of complex therapies in the form of biologicals, emerging biosimilars and non-biological complex drugs, monitoring for treatment related benefi t and the potential for adverse eff ects is as critical as monitoring for signs and symptoms of rheumatoid arthritis disease progression. With a focus on strengthening patient and provider education and engagement, patients can be successfully engaged in the long-term monitoring of their disease and play a vital role in the determination of adequate treatment response or treatment failure.

show abstract

Self-assessment of 28-joint disease activity scores by patients with rheumatoid arthritis on anti-TNF therapy

Cited by 7 publications

References 5 publications

Perceptions of patients with rheumatoid arthritis about self-assessment of disease activity after watching an educational video: a qualitative pilot study from the AUTO-DAS in Middle Eastern Arab countries project

Perceptions of patients with rheumatoid arthritis about self-assessment of disease activity after watching an educational video: a qualitative pilot study from the AUTO-DAS in Middle Eastern Arab countries project

Development of an Educational Video for Self-Assessment of Patients with RA: Steps, Challenges, and Responses

Assuring patient-centred care: engaging patients with rheumatoid arthritis in disease monitoring and pharmacovigilance

Contact Info

Product

Resources

About