Self-care behavior, hope, and social support in Taiwanese patients awaiting heart transplantation

Wang, Li Yun; Chang, Pi Chen; Shih, Fu Jin; Sun, Chi Chen; Jeng, Chii

doi:10.1016/j.jpsychores.2004.11.013

Cited by 36 publications

(31 citation statements)

References 19 publications

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“…al. 9 examined self-care, hope, and social support in Taiwanese heart transplant candidates and found that social support was predictive of increased self-care behaviors and hope.…”

Section: Discussionmentioning

confidence: 99%

The Relationships Among Satisfaction With Social Support, Quality of Life, and Survival 5 to 10 Years After Heart Transplantation

White‐Williams

Grady

Myers

et al. 2013

Journal of Cardiovascular Nursing

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Background Despite the fact that social support has been found to be important to cardiovascular health, there is a paucity of information regarding the relationship between social support and outcomes long-term after heart transplantation (HT). Objectives Thus, the purposes of our retrospective analyses of a prospective, longitudinal study were to examine (1) the relationship between satisfaction with social support and post HT health-related quality of life (HRQOL) and survival, and (2) whether two types of social support (emotional and tangible) were predictors of survival and HRQOL. Methods Data were collected from 555 HT patients over a 5-year period (78% male, 88% white, mean age=53.8 years at time of transplant) at 4 U.S. medical centers using the following instruments: Social Support Index, QOL Index, HT Stressor Scale, Jalowiec Coping Scale, and medical records review. Statistical analyses included t-tests, correlations, Kaplan-Meier survival actuarials, and linear and multivariable regression. Results Patients were very satisfied with overall social support from 5 to 10 years after HT (0=very satisfied, 1=very dissatisfied) which was stable across time (p = 0.74). Satisfaction with emotional social support (p = 0.53) and tangible social support (p = 0.61) also remained stable over time. When stratified into low, medium and high levels of satisfaction, satisfaction with social support was not related to survival (p = 0.24). At 5 years, overall satisfaction with social support was a predictor of HRQOL ( r2=.59, p<.0001), and satisfaction with emotional social support was a predictor of HRQOL at 10 years post HT ( r2=.66, p<.0001). Conclusions Patients were very satisfied over time with emotional and tangible social support. While social support explained QOL outcomes, it did not predict survival. Knowledge of relationships among social support, stress, and outcomes may assist clinicians to address social support needs and resources long-term after HT.

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“…al. 9 examined self-care, hope, and social support in Taiwanese heart transplant candidates and found that social support was predictive of increased self-care behaviors and hope.…”

Section: Discussionmentioning

confidence: 99%

The Relationships Among Satisfaction With Social Support, Quality of Life, and Survival 5 to 10 Years After Heart Transplantation

White‐Williams

Grady

Myers

et al. 2013

Journal of Cardiovascular Nursing

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“…Different kinds of support, as personal care, administration of medications, transportation and household maintenance performed by relatives are important for patients waiting for a transplant (Kurz, 2002, Wang et al, 2006. Support and information for caregiving relatives are also important (Haugh and Salyer, 2007, Meltzer and Rodrigue, 2001, Ullrich et al, 2004.…”

Section: Introductionmentioning

confidence: 99%

Waiting for a heart or lung transplant: Relatives’ experience of information and support

Ivarsson¹,

Ekmehag²,

Sjöberg³

2014

Intensive and Critical Care Nursing

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Waiting for a heart or lung transplant: Relatives' experience of information and support.Ivarsson, Bodil; Ekmehag, Björn; Sjöberg, Trygve Link to publication Citation for published version (APA): Ivarsson, B., Ekmehag, B., & Sjöberg, T. (2014). Waiting for a heart or lung transplant: Relatives' experience of information and support. Intensive & Critical Care Nursing, 30(4), 188-195. DOI: 10.1016/j.iccn.2014 General rights Copyright and moral rights for the publications made accessible in the public portal are retained by the authors and/or other copyright owners and it is a condition of accessing publications that users recognise and abide by the legal requirements associated with these rights.• Users may download and print one copy of any publication from the public portal for the purpose of private study or research.• You may not further distribute the material or use it for any profit-making activity or commercial gain • You may freely distribute the URL identifying the publication in the public portal 1 WAITING FOR A HEART OR LUNG TRANSPLANT: RELATIVES' EXPERIENCE OF INFORMATION AND SUPPORT Abstract ObjectivesTo describe the relatives' experiences of information and support while the heart or lung transplant candidates were waiting for a heart or lung transplantation. Methodology/designThe critical incident technique was used. Incidents were collected via interviews with 18 relatives (28-73 years old) of heart or lung transplant patients within four weeks of the patients being accepted onto the transplant waiting list. FindingssA total of 286 important events, both positive and negative, were identified and divided into two main areas: "Experiencing information and support" and "Reflecting upon information and support." "Experiencing information and support" was associated with "dissatisfaction with the health-care system", "being relatively satisfied", "supporting patients" and "the role of social networks." "Reflecting upon information and support" was associated with "finding strength" and "uncomfortable with emotions". Relatives experiences suggest that needs can be met through specific targeted information and support for them as well as mediating contact to previously transplanted persons. ConclusionThe findingss indicate a gap between the information and support that relatives need and receive, and that more attention should be paid to information and support for this group. By increasing awareness among healthcare professionals and the community, interventions can be developed that benefit relatives.

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“…Patients waiting for heart transplantation are living with a life-threatening disease, and between 1989 and 2011 a total of 822 heart transplants were performed in Sweden [2]. Even if the patients' condition is life-threatening, most of them are very hopeful about the future [3]. Patients who need a donor heart have described that the most stressful parts are knowing that their heart disease is incurable, that they need a heart transplant, and concerns for their family [4], particularly the children [5–7].…”

Section: Introductionmentioning

confidence: 99%

The Unsteady Mainstay of the Family: Now Adult Children’s Retrospective View on Social Support in Relation to Their Parent’s Heart Transplantation

Ågren

Ivarsson

Rönning

2014

Nursing Research and Practice

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The needs for support among children with a seriously ill parent, who is waiting for heart transplantation, are unknown today. The aim was to describe now adult children's experiences of social support in relation to a parent's heart transplant during childhood. Nine females and four males were interviewed. The median age for the children was 18 at the transplantation and their parents had been ill before for 18 months (median) and on waiting list for 161 days (mean). Three categories emerged: health care professionals' approaches, family and friends' approaches, and society approaches. Our results show that there was lack of support for children of heart transplantation patients. Support in the shape of information was in most cases provided by the sick or healthy parent. It is of great clinical importance to develop psychosocial support programs for children with a seriously ill parent waiting for heart transplantation (before, during, and after surgery).

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Self-care behavior, hope, and social support in Taiwanese patients awaiting heart transplantation

Cited by 36 publications

References 19 publications

The Relationships Among Satisfaction With Social Support, Quality of Life, and Survival 5 to 10 Years After Heart Transplantation

The Relationships Among Satisfaction With Social Support, Quality of Life, and Survival 5 to 10 Years After Heart Transplantation

Waiting for a heart or lung transplant: Relatives’ experience of information and support

The Unsteady Mainstay of the Family: Now Adult Children’s Retrospective View on Social Support in Relation to Their Parent’s Heart Transplantation

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