Self-Care Recommendations of Middle-Aged and Older Adults with Sickle Cell Disease

Jenerette, Coretta; Brewer, Cheryl A.; Leak, Ashley

doi:10.1155/2011/270594

Cited by 26 publications

(67 citation statements)

References 16 publications

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“…Use of self-care in long-term disease management is positively influenced by support from family, friends, and health care professionals (Schulman-Green et al, 2012). Individuals who receive higher levels of social support are more likely to feel as though they have the ability to perform self-care and actually do so to maintain health (Jenerette, Brewer, & Leak, 2011). In this study, higher SCD self-efficacy was associated with better self-care, supporting earlier research that found that self-efficacy has been associated with better self-care in chronic disease (Frei et al, 2009).…”

Section: Discussionmentioning

confidence: 99%

“…In a study assessing strategies used by adults with SCD to manage their disease, themes included self-awareness, emotional support, career selection and success factors, nutrition, advocacy, knowledge, physical activity, and complementary and alternative medicine (Tanabe et al, 2010). In middle-aged and older adults, identified self-care recommendations were physiologic (warmth, hydration, rest, good food, and avoiding drinking, smoking, and using drugs), psychological (knowledge and understanding of the disease, listening to and learning about the body, prayer, and social support), and provider-related (knowledgeable health care providers and following providers’ orders) (Jenerette, Brewer & Leak, 2011). Self-care has many benefits and is correlated with a number of variables, but it is unclear which variable is most influential, particularly in the young adult population.…”

Section: Literature Reviewmentioning

confidence: 99%

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Role of Self-Care in Sickle Cell Disease

Matthie

Jenerette

McMillan

2015

Pain Management Nursing

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Background Self-care is an important aspect of managing a chronic disease. In sickle cell disease (SCD), home self-care contributes to individual pain management and thus pain crisis prevention. A better understanding of self-care can help health care providers equip patients with the resources and skills necessary to participate in their disease management. Aims To examine factors which influence self-care among young adults with SCD. Design A descriptive, cross-sectional study was conducted using secondary data analysis. Settings Participants were recruited from two SCD clinics in the southeastern United States. Participants The sample consisted of 103 young adults, ages 18–30 years, with SCD. Methods Bivariate correlations and regression analyses were used to evaluate the relationships among SCD self-efficacy, social support, socio-demographics, self-care, and hospital visits for pain crises. Results Study participants were primarily female (61.2%), unemployed or disabled (68%), lived with family (73.8%), and had an average of three hospital visits for pain crises annually. Participants, on average, had 12 years of education, an annual household income of $35,724, and were 24 years old. Social support (p=.001), SCD self-efficacy (p=.002), and years of education (p=.043) were significantly related to self-care. Of the hypothesized variables, only income was significantly associated with hospital visits for pain crises (r=−.219, p=.05). Conclusions Individuals with SCD may benefit from self-care interventions that enhance social support, SCD self-efficacy, and access to education. To inform intervention development, further investigation is needed regarding daily self-care behaviors used by young adults with SCD.

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Section: Discussionmentioning

confidence: 99%

Section: Literature Reviewmentioning

confidence: 99%

Role of Self-Care in Sickle Cell Disease

Matthie

Jenerette

McMillan

2015

Pain Management Nursing

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“…Recognizing the cues to an evolving SCD-related acute pain episode (usually referred to as a painful crisis) and responding appropriately may be an important part of knowing the body and self-care management, especially for young adults living with this disease. Some young adults with SCD may be overly dependent on emergency departments for care as they transition from pediatric to adult providers (Hemker, Brousseau, Yan, Hoffman, & Panepinto, 2011); they have not yet acquired the self-care pain management skills that older adults have described as “learning their bodies,” and thus, are at particularly high risk for poor pain outcomes (Jenerette & Lauderdale, 2008;Jenerette, Leak, & Sandelowski, 2011). A significant part of learning the body is recognizing the cues to an evolving sickle cell crisis and responding appropriately.…”

mentioning

confidence: 99%

Care Seeking for Pain in Young Adults with Sickle Cell Disease

Jenerette¹,

Brewer²,

Ataga³

2014

Pain Management Nursing

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In individuals with sickle cell disease (SCD), recognizing the cues to an acute pain episode and responding appropriately are important. The purpose of this mixed-methods pilot study is to identify preliminary factors that influence care seeking for pain in young adults with SCD. Responses were received from 69 young adults with SCD, age 18-35 years. The majority of respondents (88%) wait until the pain intensity is an average of 8.7 (± 1.2) on a scale of 1 to 10 before seeking care. Prominent themes influencing care seeking for pain include: trying to treat pain at home, avoiding the emergency department because of past treatment experiences, the desire to avoid admission to the hospital, and the importance of time in the lives of the young adults with SCD. Young adults with SCD need additional support from family and healthcare providers in order to make timely, appropriate decisions regarding care seeking.

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“…Management of SCD occurs primarily at home and depends on self-care. Self-care strategies include the aforementioned pharmacologic methods, as well as nonpharmacologic methods (e.g., warmth, hydration, rest, good food, avoiding alcohol and drugs, listening to and learning about the body, prayer, social support) (Jenerette, Brewer, & Leak, 2011). …”

Section: Managementmentioning

confidence: 99%

Sickle Cell Disease in Adults: Developing an Appropriate Care Plan

Matthie¹,

Jenerette²

2015

CJON

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Background Sickle cell disease (SCD) is primarily characterized by pain. This chronic pain with acute exacerbations is the most common reason for hospital visits, admissions, and readmissions, particularly in young adults (aged 18–39 years). People who present to the hospital for pain crises often report that nurses lack knowledge of SCD and, consequently, they do not provide appropriate, timely care. Objectives Because pain episodes often result in hospital admissions, this article highlights prominent issues that staff nurses need to know. Methods Using a review of the literature and case studies, the authors provide recommendations to improve care of adults with SCD. Findings No objective signs of a sickle cell pain crisis exist. Patients react to pain in different ways and use various coping mechanisms in response. Suspected opioid addiction should not affect the provision of nursing care. Pain must be treated appropriately to decrease the potential for prolonged admissions and/or readmissions. Patients are to be acknowledged as experts and collaborated with in developing an appropriate plan of care. Advocacy on behalf of the patient is important for better communication with providers. With this knowledge, nurses will be better equipped to provide the appropriate and timely care required to manage pain crises experienced by individuals living with SCD.

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Self-Care Recommendations of Middle-Aged and Older Adults with Sickle Cell Disease

Cited by 26 publications

References 16 publications

Role of Self-Care in Sickle Cell Disease

Role of Self-Care in Sickle Cell Disease

Care Seeking for Pain in Young Adults with Sickle Cell Disease

Sickle Cell Disease in Adults: Developing an Appropriate Care Plan

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