Self-Compassion: a Potential Buffer Against Affiliate Stigma Experienced by Parents of Children with Autism Spectrum Disorders

Wong, Clifford; Mak, Winnie W. S.; Liao, Kelly Yu-Hsin

doi:10.1007/s12671-016-0580-2

Cited by 121 publications

(113 citation statements)

References 63 publications

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“…The level of affiliate stigma reported by the parents of children with ASD in this study was relatively high. The findings are similar to previous studies [27,43] that included parents of children with ASD in the same region (i.e., Hong Kong), although the children in previous studies were older (mean age, 9.77 and 9.82 years) than those in our study (mean age, 5.45 years). This indicates that parents might have been internalizing stigma from the time their children with ASD were at the preschool stage.…”

Section: Discussionsupporting

confidence: 91%

The Relationship between Affiliate Stigma in Parents of Children with Autism Spectrum Disorder and Their Children’s Activity Participation

Lam

Tsang

et al. 2020

IJERPH

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Children with autism spectrum disorder (ASD) are reported to participate less in everyday activities, and their parents face stigma on account of having a child with ASD, which they often internalize as affiliate stigma. Studies have examined the impact of affiliate stigma on parents’ psychological well-being and social behaviors, but little is known about how affiliate stigma impacts their children’s activity participation. This study aimed to investigate the relationship between parents’ affiliate stigma and activity participation of their children with ASD. Sixty-three parents of children with ASD (aged 2–6 years) were recruited. They completed questionnaires, which captured affiliate stigma, their child’s participation (frequency and involvement) in home, preschool, and community activities, and demographic characteristics. Results indicated that these parents had a moderate level of affiliate stigma, which did not correlate with the frequency of their children’s participation in activities. However, the parents’ affiliate stigma was found to have negative impacts on their children’s involvement in overall community participation and participation in one particular activity at home. The findings highlight the importance of destigmatization of parents of children with ASD in order to promote their children’s participation in community activities.

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Section: Discussionsupporting

confidence: 91%

The Relationship between Affiliate Stigma in Parents of Children with Autism Spectrum Disorder and Their Children’s Activity Participation

Lam

Tsang

et al. 2020

IJERPH

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“…The current study adds to the growing literature demonstrating a link between self-compassion and well-being among the general population (see MacBeth & Gumley, 2012 for review), and parents of children with IDD specifically (Bazzano et al, 2013;Benn et al, 2012;Neff & Faso, 2015;Wong et al, 2016).…”

Section: Discussionmentioning

confidence: 64%

Self‐compassion and psychological distress in parents of young people and adults with intellectual and developmental disabilities

Robinson

Hastings

Weiss

et al. 2017

Research Intellect Disabil

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“…The included studies represented a total sample of 1442 informal caregivers (predominantly mothers) across three cultural regions: East Asia including China (Ting et al 2018 ) and Hong Kong (Chan and Lam 2017 , 2018 ; Mak and Kwok 2010 ; Wong et al 2016 ), the Middle East including Israel (Werner and Shulman 2013 ), West Bank (Dababnah and Parish 2013 ), the United Arab Emirates (Crabtree 2007 ) and Iran (Dehvani et al 2011 ), and the Western culture including the United States (Resch et al 2010 ) and Australia (Broady et al 2018 and; Gray 2002 ).…”

Section: Resultsmentioning

confidence: 99%

Systematic Review of the Relationship Between Autism Stigma and Informal Caregiver Mental Health

Papadopoulos

Lodder

Constantinou

et al. 2018

J Autism Dev Disord

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Families play a crucial role in determining the mental health of the autistic individual(s) they are caring for. However, the stigma associated with autism can impair caregiver health. To investigate this, empirical evidence pertaining to stigma’s impact on informal caregivers’ mental health was systematically reviewed. All twelve included studies (n = 1442 informal caregivers) consistently reported the impact of autism related stigma upon caregiver mental health to be significant, meaningful and complex. A new theoretical framework describing the relationship between stigma and caregiver mental health is constructed. Moderating variables include those both changeable through intervention (e.g. hopelessness, self-esteem, self-compassion) and not changeable (gender, culture, financial burden and time since diagnosis). Implications and recommendations for professionals, interventions and future research are proposed.

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Self-Compassion: a Potential Buffer Against Affiliate Stigma Experienced by Parents of Children with Autism Spectrum Disorders

Cited by 121 publications

References 63 publications

The Relationship between Affiliate Stigma in Parents of Children with Autism Spectrum Disorder and Their Children’s Activity Participation

The Relationship between Affiliate Stigma in Parents of Children with Autism Spectrum Disorder and Their Children’s Activity Participation

Self‐compassion and psychological distress in parents of young people and adults with intellectual and developmental disabilities

Systematic Review of the Relationship Between Autism Stigma and Informal Caregiver Mental Health

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