Self-concept of adults with cerebral palsy

Gannotti, Mary; Minter, Christin; Chambers, Henry G.; Smith, Peter A.; Tylkowski, Chester

doi:10.3109/09638288.2010.514017

Cited by 13 publications

(8 citation statements)

References 34 publications

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“…Participants were grouped into four depressive symptom categories based on their BDI-II score: (1) No to Minimal (0–13), (2) Mild (14–19), (3) Moderate (20–28), and (4) Severe (29–63).This scoring method is recommended by the test authors as a means of minimizing false negatives (Beck). Previous studies in samples with chronic conditions also have used this scoring system (Carney, Ulmer, Edinger, Krystal, & Knauss, 2009; Gannotti, Minter, Chambers, Smith, & Tylkowski, 2011; Rodriguez et al, 2013). “No to Minimal” was used as the reference category.…”

Section: Discussionmentioning

confidence: 99%

Depressive symptoms in adults with spina bifida.

Dicianno¹,

Kinback²,

Bellin³

et al. 2015

Rehabilitation Psychology

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Purpose/Objective To examine the prevalence of depressive symptoms in adults with spina bifida and identify contributing factors for depressive symptomatology. Research Method/Design Retrospective Cohort Study. Data collection was conducted at a regional adult spina bifida clinic. A total of 190 charts from adult patients with spina bifida were included. The main outcome measures were the Beck Depression Inventory-II (BDI-II) and the mobility domain of the Craig Handicap Assessment Reporting Technique Short Form (CHART-SF). Results Of the 190 participants, 49 (25.8%) had BDI-II scores (14+) indicative of depressive symptomatology. Sixty-nine (36.3%) of all participants were on antidepressants for the purpose of treating depressive symptoms, and 31 (63.3%) of those with clinical symptoms of depression were on antidepressants. The total number of participants with a history of depressive symptoms may be as high as 45.7% if both participants with BDI-II scores 14+ and those with antidepressant use specifically for the purposes of depression treatment are combined. In this population, lower CHART-SF mobility score, expressing “emotional concerns” as a reason for the visit on an intake sheet, and use of antidepressant medications were significantly associated with depressive symptoms. Conclusions/Implications Depressive symptomatology appears to be common and undertreated in this cohort of adults with spina bifida, which may warrant screening for emotional concerns in routine clinic appointments. Significant depressive symptoms are associated with fewer hours out of bed and fewer days leaving the house. Additional research is needed to assess the impact of interventions directed towards mobility on depression and in the treatment of depression in this patient population.

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Section: Discussionmentioning

confidence: 99%

Depressive symptoms in adults with spina bifida.

Dicianno¹,

Kinback²,

Bellin³

et al. 2015

Rehabilitation Psychology

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“…Low levels of depression and average self-concept have been reported in a larger sample of adults with CP with varying physical, social, and economic characteristics. 43 All participants with mental health functioning below peers identified barriers to participation in society. Improving participation in society by addressing environmental barriers is an important area for intervention that may also improve mental health.…”

Section: Discussionmentioning

confidence: 99%

Gait and participation outcomes in adults with cerebral palsy: A series of case studies using mixed methods

Gannotti

Gorton

Nahorniak

et al. 2013

Disability and Health Journal

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“…By contrast, Jarl et al reported high health-related QoL in adults with CP overall, with reduced QoL only for those with severe motor dysfunction and pain ( 13 ). Others reported that limited functional mobility is not associated with mental health impairment ( 3 , 15 , 16 ). Pain, which has been linked to decreased QoL, is highly prevalent in CP (30–80% of adults) ( 17 – 19 ).…”

Section: Introductionmentioning

confidence: 99%

“…A few studies have investigated quality of life (QoL) in adults with CP (13)(14)(15)(16). Similar to studies focused on functional mobility, findings relating to life satisfaction, depression, and well-being have been inconsistent.…”

Section: Introductionmentioning

confidence: 99%

Well-Being of Ambulatory Adults With Cerebral Palsy: Education, Employment, and Physical Function of a Cohort Who Received Specialized Pediatric Care

et al. 2021

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Introduction: The transition from pediatric health care and school systems presents enormous challenges for young adults with cerebral palsy (CP). The lack of strong societal support during this seminal life event is well-documented and leads many adults with CP to struggle with independence, higher education, and employment. Despite the relatively high prevalence of CP, information about the experiences and function of adults with CP in our society continues to be limited. The purpose of this project was to describe well-being by assessing education, employment, physical function, walking activity, and utilization of health care in an ambulatory adult cohort with CP who received specialized pediatric care at our center.Method: In this Institutional Review Board-approved prospective study, we invited former patients from our tertiary care pediatric CP center to complete a set of patient-reported outcomes including (1) the Patient-Reported Outcomes Measurement Information System domains of physical function and pain interference, (2) the Satisfaction with Life Scale, and a project-specific demographic questionnaire about education, employment, income, independence, pain, and health care utilization. Participants also wore a pedometer for 8 days to monitor community walking activity. Chi-squared pairwise or t-tests were used as appropriate to compare survey responses and walking activity data between three groups: participants who self-reported, those who reported by proxy, and published normative data from age-matched typically developing adult (TDA) samples.Results: One hundred twenty-six adults with CP consented to participate; 85 self-reported [age 29.7 ± 4.3 years; Gross Motor Function Classification System: I (28%), II (47%), and III, (25%)] and 41 reported by proxy [age 29.7 ± 4.1 years; Gross Motor Function Classification System: I (10%), II (68%), and III (22%)]. For the group who self-reported, high school graduation rate (99%) was similar to TDA (92%; p = 0.0173) but bachelor's degree achievement rate (55%) was higher than TDA (37%; p < 0.001). Despite more advanced education, the unemployment rate in this group was higher than national levels at 33% and was associated with high utilization of Social Security Disability Insurance (33%). Within the self-reporting group, 13% required a caregiver. For the group who reported by proxy, educational levels (73% high school graduates, 0 bachelor's degree) were lower than the general population (p < 0.001) and unemployment was higher than the national level, at 64%. Unemployment in this group was associated with high utilization of Social Security Disability Insurance (85%). Within the proxy-reporting group, 71% required a caregiver. The full cohort demonstrated lower levels of physical function according to the Patient-Reported Outcomes Measurement Information System and less community walking activity compared with TDA references (p < 0.001). This cohort of adults with CP reported significantly higher frequency of chronic pain (48 vs. 12% for TDA; p < 0.001), but less pain interference with daily activities than TDA based on Patient-Reported Outcomes Measurement Information System results (p < 0.001). This cohort reported good to excellent overall health (93%) and high utilization of primary care (98%), but limited utilization of specialty care, specifically orthopedic care (21%) and physical therapy (15%).Discussion: This cohort of adults with CP had similar levels of education as the general population, but had relatively high rates of unemployment, caretaker need, and Social Security Disability Insurance utilization. Although chronic pain was frequent, the impact of pain on work and independent living did not exceed reports from a typically developing reference. Better targeted societal resources for adults with physical disabilities are urgently needed to allow equitable access to employment, promote opportunities for independence, and enable full participation in community life.

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Self-concept of adults with cerebral palsy

Cited by 13 publications

References 34 publications

Depressive symptoms in adults with spina bifida.

Depressive symptoms in adults with spina bifida.

Gait and participation outcomes in adults with cerebral palsy: A series of case studies using mixed methods

Well-Being of Ambulatory Adults With Cerebral Palsy: Education, Employment, and Physical Function of a Cohort Who Received Specialized Pediatric Care

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