Self-Disclosure and Social Media Use among Younger and Older People with Dementia: An Internet-Mediated Mixed-Methods Study

Kohl, Gianna; Koh, Wei Qi; Scior, Katrina; Charlesworth, Georgina

doi:10.1080/10447318.2023.2265728

International Journal of Human–Computer Interaction

2023

DOI: 10.1080/10447318.2023.2265728

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Self-Disclosure and Social Media Use among Younger and Older People with Dementia: An Internet-Mediated Mixed-Methods Study

Gianna Kohl,

Wei Qi Koh,

Katrina Scior

et al.

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2024

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Cited by 2 publications

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Navigating who I was and who I am online: How people with dementia use social media platforms to support identity

Talbot,

Roe,

Brunner

2024

Dementia

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A diagnosis of dementia can have a powerful impact on identity, and social media platforms offer promising avenues for identity expression and reconciliation. Addressing limited research in this area, we used semi-structured interviews to explore how 10 people with dementia used social media to navigate their identity. Our thematic analysis produced four themes, showing how social media platforms afford unique opportunities for self-expression, visibility, and association, thereby empowering users to maintain their sense of self, challenge stereotypes, and foster community connections. Additionally, social media facilitated a multifaceted and holistic sense of identity beyond the confines of diagnosis. While there were concerns about online self-disclosure, sharing experiences of dementia had therapeutic benefits, aiding in acceptance and adjustment. Participants also leveraged social media to establish continuity between their pre- and post-diagnostic selves, providing a sense of stability amid uncertainty. With the increasing prevalence of social media use among people with dementia, proactive measures by healthcare professionals, policymakers, technology developers, and carers are required to cultivate online experiences that are safe, supportive, and inclusive of people with dementia.

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Navigating who I was and who I am online: How people with dementia use social media platforms to support identity

Talbot,

Roe,

Brunner

2024

Dementia

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The Mediatized Interactions and Social Networks of Empty-Nesters: A China-Based Study

Zhao,

2024

Social Sciences

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China is a populous country and its growing elderly population is pushing the whole country into the maelstrom of an aging society. The media practices and media interactions of empty-nesters have gradually become a real issue that is affecting the deepening transformation of Chinese society given the dual concerns of aging and mediatization. This study conducted in-depth interviews with 23 empty-nesters, chosen using the snowball sampling method combined with participant observation, to obtain their habits and behaviors related to social media use so to analyze the impact of media interactions on their daily life and social networks from a mediatized perspective. The availability of social media was found to influence their media use habits in four dimensions—technical, emotional, cognitive, and behavioral—in the face of the digital divide, media memory writing, the construction of parasocial relationships, and embodied collaboration. These influences not only shaped and promoted the socialization of empty-nesters on social media networks but also extended to their daily life, as these influences enhanced both their mental and physical quality of life in old age.

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Self-Disclosure and Social Media Use among Younger and Older People with Dementia: An Internet-Mediated Mixed-Methods Study

Cited by 2 publications

References 58 publications

Navigating who I was and who I am online: How people with dementia use social media platforms to support identity

Navigating who I was and who I am online: How people with dementia use social media platforms to support identity

The Mediatized Interactions and Social Networks of Empty-Nesters: A China-Based Study

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