Self-efficacy in adolescents with inflammatory bowel disease: A pilot study of the “IBD-yourself”, a disease-specific questionnaire

Abstract

Background and aims: Successful transfer of adolescent IBD patients to an adult gastroenterologist requires anticipation of a changing role for patients and their parents. Self-efficacy has been demonstrated to be important for transfer readiness. We therefore developed an IBD-specific questionnaire (the "IBD-yourself") to assess self-efficacy in adolescent IBD patients visiting a transition clinic. Our aim was to evaluate the reliability of this questionnaire, and to describe the self-efficacy level of adolescent IBD patients, and the perceived self-efficacy level according to their parents. Methods: In a cross-sectional design, 50 IBD patients (aged 14-18 years) and 40 parents completed the "IBD-yourself" questionnaire. Internal reliability was assessed by standardised Cronbach's α. Median self-efficacy scores per domain were calculated. Results: The domains of the questionnaire for adolescents showed good to excellent internal consistency, with Cronbach's α ranging from 0.64 to 0.93. The domains of the parental questionnaire had Cronbach's α ranging from 0.47 to 0.93. Median self-efficacy scores of adolescents varied from 70 to 100%. In comparison with patient's self-assessment, parents thought that their child was more A v a i l a b l e o n l i n e a t w w w . s c i e n c e d i r e c t . c o m ScienceDirectJournal of Crohn's and Colitis (2013) 7, e375-e385 Downloaded from https://academic.oup.com/ecco-jcc/article-abstract/7/9/e375/427279 by guest on 07 June 2019 self-efficacious in knowledge of IBD and diagnostic tests, self-management of medication use, and transfer readiness. Length of time since first visit to the transition clinic was positively correlated with several domains of the questionnaire, such as independent behaviour at the outpatient clinic, and transfer readiness. Conclusion: The "IBD-yourself" questionnaire is a first step toward evaluating quality and efficacy of IBD transition programmes. Paediatric gastroenterologists should be aware that parents do not always accurately assess the self-efficacy of their child.

Transition Readiness in Pediatric Patients With Inflammatory Bowel Disease

“…and Zijlstra et al . (18, 19) Additional research is needed to determine the best method to objectively assess the medical self-management skills of pediatric patients with IBD. It will also be important to develop a tool to assess the allocation of responsibility between child and parent for health-related tasks during the transition process.…”

Connaissances des adolescents atteints de maladie inflammatoire chronique intestinale : résultats d’une enquête transversale multicentrique

“…Ces éléments nous indiquent que les adolescents souhaitent bénéficier d'une ET personnalisée lors de consultations dédiées et qu'un objectif pourrait être de mettre en place une ET efficace sur l'acquisition des connaissances et le niveau d'anxiété. En 2013, Zijlstra et al ont évalué 50 adolescents et 40 de leurs parents avec le questionnaire non validé « IBD yourself » : les parents surestimaient l'autonomie de leurs adolescents et les filles se jugeaient moins autonomes que les garçons [28]. Dans l'étude de Sebastian et al, 47 % des gastroentérologues pour adultes (versus 80 % des gastropé-diatres) estimaient qu'une structure dédiée à la transition était « très importante » alors qu'ils étaient 79 % à penser que les adolescents manquaient de connaissances au sujet de leur maladie et de leur traitement [29].…”

Improving the Transition to Adult Care for Young People with Chronic Kidney Disease

“…The recommendations acknowledge that a single transition approach is impractical given the limitations of the types of care available in some areas of the world, yet provide practical concrete advice on ways to improve the transition process. Proposed models for transition care include specialized transition clinics with an adult care physician attending the pediatric clinic, joint pediatric and adult provider consultation pre-transfer, specialized young adult clinics with a pediatric care physician attending, alternating visits to pediatric and adult care clinics, and 'back-up' visits scheduled with the pediatric clinic following transfer to adult care, among others [9 •• , 10 •• , 73 •• , 74,75]. Few of these models have been evaluated in a controlled manner, but most were found acceptable and useful by young people.…”