Self-Efficacy, Pulmonary Function, Perceived Health and Global Quality of Life of Cystic Fibrosis Patients

Wahl, Astrid Klopstad; Rustøen, Tone; Hanestad, Berit Rokne; Gjengedal, Eva; Moum, Torbjørn

doi:10.1007/s11205-004-5580-2

Cited by 19 publications

(12 citation statements)

References 45 publications

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“…Others found self-efficacy to be a stronger predictor of quality of life than objective pulmonary function. 13 These findings suggest that selfefficacy could be a critical factor relative to academic performance in adolescents with CF.…”

Section: Psychosocial Variablesmentioning

confidence: 91%

“…Bartholomew et al 12 found that self‐efficacy around judging the physical effects of CF and communicating with medical staff was related to cognitive and behavioral CF self‐management. Others found self‐efficacy to be a stronger predictor of quality of life than objective pulmonary function 13 . These findings suggest that self‐efficacy could be a critical factor relative to academic performance in adolescents with CF.…”

mentioning

confidence: 94%

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Associations Between Academic Achievement and Psychosocial Variables in Adolescents With Cystic Fibrosis

Grieve¹,

Tluczek²,

Racine-Gilles³

et al. 2011

Journal of School Health

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Section: Psychosocial Variablesmentioning

confidence: 91%

mentioning

confidence: 94%

Associations Between Academic Achievement and Psychosocial Variables in Adolescents With Cystic Fibrosis

Grieve¹,

Tluczek²,

Racine-Gilles³

et al. 2011

Journal of School Health

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“…Controlling for demographic and lung function variables, those with high levels of self-efficacy reported a better respiratory-specific (SGRQ) and global QoL. 77…”

Section: Copingmentioning

confidence: 97%

Health-related quality of life measurement in cystic fibrosis: advances and limitations

Abbott

2009

Chron Respir Dis

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Health-related quality of life (HRQoL) measurement in cystic fibrosis (CF) allows the inclusion of the patient's perspective in research and clinical practice. HRQoL scales have been used for many purposes and this review focuses on how HRQoL measurement has been implemented in CF research and care. Specifically, the review considers 1) the instruments used to measure HRQoL, 2) the factors that influence how people report HRQoL, 3) the monitoring of HRQoL in clinical practice, 4) HRQoL as an outcome measure in interventions and clinical trials and 5) whether HRQoL can predict survival. The challenge for the future is to use the available information to develop and evaluate psychological interventions that would be expected to improve HRQoL in children and adults with CF.

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“…For example, helping children develop effective means of handling awkward social situations related to their CF can expand their social behavior repertoire leading to greater confidence in navigating social situations. In addition, using behavioral methods to enhance adherence and track relevant outcomes can increase children’s sense of involvement, control and self-efficacy, essential components of self-management across the life-span(61). As parent perception of their child’s vulnerability may impact child self-perception, it is important to also work with parents to identify if these perceptions are present.…”

Section: School Agementioning

confidence: 99%

Developmental and Psychosocial Issues in Cystic Fibrosis

Ernst

Johnson

Stark

2010

Child and Adolescent Psychiatric Clinics of North America

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SynopsisCystic Fibrosis (CF) is a multi-systemic life-limiting genetic disorder, primarily impacting respiratory functioning. Most patients with CF are diagnosed by 2 years of age, and the current median predicted survival rate is 37.4 years old, with 95% of patients dying from complications relate to pulmonary infection. Given the chronic, progressive and disabling nature of CF, multiple treatments are prescribed, most on a daily basis. Thus, this illness requires children, with the aid of their families, to adopt multiple health-related behaviors in addition to managing more typical developmental demands. The morbidity and mortality factors pose cognitive, emotional and behavioral challenges for many children with CF and their families. This article will apply a developmental perspective to describing the psychosocial factors impacting psychological adjustment and health-related behaviors relevant to infants, preschool and school age children, and adolescents with CF. Topics particularly pertinent to developmental periods and medical milestones will be noted, with clinical implications highlighted.

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Self-Efficacy, Pulmonary Function, Perceived Health and Global Quality of Life of Cystic Fibrosis Patients

Abstract: cystic fibrosis, health status, pulmonary function, quality of life, self-efficacy,

Cited by 19 publications

References 45 publications

Associations Between Academic Achievement and Psychosocial Variables in Adolescents With Cystic Fibrosis

Associations Between Academic Achievement and Psychosocial Variables in Adolescents With Cystic Fibrosis

Health-related quality of life measurement in cystic fibrosis: advances and limitations

Developmental and Psychosocial Issues in Cystic Fibrosis

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