Self‐expression and identity after total laryngectomy: Implications for support

Bickford, Jane; Coveney, John; Baker, Janet; Hersh, Deborah

doi:10.1002/pon.4818

Cited by 12 publications

(14 citation statements)

References 30 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Existential themes are organized in layers that can be activated differentially by severe illness. Firstly, illness can interfere with individuals' intrapersonal “solutions” for specific developmental challenges—higher existential distress may result, for example, when a person's sense of identity is closely linked to physical appearance and functioning (see Bickford et al for an illustration). Such struggle may become even more challenging in advanced disease, when a shortened life expectancy limits generativity and prompts life review.…”

Section: How Does Existential Distress Arise?mentioning

confidence: 99%

Existential distress in cancer: Alleviating suffering from fundamental loss and change

2018

View full text Add to dashboard Cite

A severe life threatening illness can challenge fundamental expectations about security, interrelatedness with others, justness, controllability, certainty, and hope for a long and fruitful life. That distress and suffering but also growth and mastery may arise from confrontation with an existentially threatening stressor is a longstanding idea. But only recently have researchers studied existential distress more rigorously and begun to identify its distinct impact on health care outcomes.Operationalizations of existential distress have included fear of cancer recurrence, death anxiety, demoralization, hopelessness, dignity-related distress, and the desire for hastened death. These focus in varying emphasis on fear of death, concern about autonomy, suffering, or being a burden to others; a sense of profound loneliness, pointlessness or hopelessness; grief, regret, or embitterment about what has been missed in life; and shame if dignity is lost or expectations about coping are not met.We provide an overview of conceptual issues, diagnostic approaches, and treatments to alleviate existential distress. Although the two meta-analyses featured in this special issue indicate the progress that has been made, many questions remain unresolved. We suggest how the field may move forward through defining a threshold for clinically significant existential distress, investigating its comorbidity with other psychiatric conditions, and inquiring into adjustment processes and mechanisms underlying change in existential interventions. We hope that this special issue may inspire progress in this promising area of research to improve recognition and management of a central psychological state in cancer care. KEYWORDScancer, death anxiety, demoralization, existential distress, existential suffering, existential therapy, fear of cancer recurrence, hopelessness, sense of dignity

show abstract

Section: How Does Existential Distress Arise?mentioning

confidence: 99%

Existential distress in cancer: Alleviating suffering from fundamental loss and change

2018

View full text Add to dashboard Cite

show abstract

“…From the speech and language pathology (SLP) perspective, the most obvious and limiting handicap is the loss of the laryngeal voice and, consequently, of the person's ability to communicate orally in the same way as they did until the moment of the surgery. The voice, in addition to the basic instrument for human communication, is for everyone a hallmark of self-identity (127) and reveals aspects such as personality traits, mood or gender.…”

Section: The Role Of the Speech And Language Pathology Expertmentioning

confidence: 99%

The Multidisciplinary Team (MDT) Approach and Quality of Care

et al. 2020

View full text Add to dashboard Cite

The core function of a multidisciplinary team (MDT) is to bring together a group of healthcare professionals from different fields in order to determine patients' treatment plan. Most of head and neck cancer (HNC) units are currently led by MDTs that at least include ENT and maxillofacial surgeons, radiation and medical oncologists. HNC often compromise relevant structures of the upper aerodigestive tract involving functions such as speech, swallowing and breathing, among others. The impairment of these functions can significantly impact patients' quality of life and psychosocial status, and highlights the crucial role of specialized nurses, dietitians, psycho-oncologists, social workers, and onco-geriatricians, among others. Hence, these professionals should be integrated in HNC MDTs. In addition, involving translational research teams should also be considered, as it will help reducing the existing gap between basic research and the daily clinical practice. The aim of this comprehensive review is to assess the role of the different supportive disciplines integrated in an MDT and how they help providing a better care to HNC patients during diagnosis, treatment and follow up.

show abstract

“…In-depth semi-structured interviews, field notes, journals Exploratory, using a constructivist grounded theory approach Identifying with altered self with the help of multilevel changes and intrinsic and extrinsic interpersonal factors. Bickford et al [24] 21 laryngectomy (9 M, 12 F), age range 36-77 years Australia Semi-structured interviews, constructivist grounded theory approach and symbolic interactionism using semistructured interviews…”

Section: Australiamentioning

confidence: 99%

“…In the present review, two studies explored psychosocial adjustment issues in primary supporters and spouse. Bickford et al [24] surveyed primary supporters, who expressed concern due to inconsistent care and services from healthcare staffs as laryngectomy is comparatively rare condition. The surgery led to disruptions in their life leading to increasing adjustment issues.…”

Section: Reactions Of Spouse or Family Membersmentioning

confidence: 99%

“…Armstrong et al [12] Yes Yes Yes Yes Yes De Maddalena [13] No No Yes Can't say Yes Carrasco-Llatas et al [14] No No Yes Can't say Yes Ramírez et al [15] No No Yes Can't say Yes Giordano et al [16] No Yes Yes Can't say Yes Johansson et al [17] Yes Yes Yes Yes Yes Meyer et al [18] Kotake et al [19] Yes Yes Yes Can't say Yes Kotake et al [20] No [21] Yes Yes Yes Yes Yes Johansson et al [22] Yes Yes Yes Yes Can't say Bickford et al [23] Yes Yes Yes Yes Yes Bickford et al [24] Yes Yes Yes Yes Can't say…”

Section: Is the Statistical Analysis Appropriatementioning

confidence: 99%

See 1 more Smart Citation

Psychosocial Adjustments after Advanced Laryngeal Cancer Treatment – A Systematic Review

Gunjawate

Ravi

2021

IJPC

View full text Add to dashboard Cite

Psychosocial adjustments are alterations needed by a person after a life-altering event. The present review explored the psychosocial adjustments after advanced laryngeal cancer treatment. Cochrane Library, Cumulative Index to Nursing and Allied Health Literature, PubMed and Scopus were searched. Two hundred and three hits, after the three-stage screening, 13 articles were included. Mixed methods appraisal tool was used to perform the quality appraisal. The findings from 1109 laryngeal cancer survivors and 154 spouses of total laryngectomy patients helped to identify the barriers and coping mechanism toward psychosocial adjustments. The barriers included reactions of spouse or family members, effect of voice, communication and speech intelligibility and work and family relationships. The coping was enhanced with a better awareness, motivation and support system. These findings would help in improving the training programs and enhance the pre- and post-treatment counselling based on the priorities and demands of the patient.

show abstract

Self‐expression and identity after total laryngectomy: Implications for support

Cited by 12 publications

References 30 publications

Existential distress in cancer: Alleviating suffering from fundamental loss and change

Existential distress in cancer: Alleviating suffering from fundamental loss and change

The Multidisciplinary Team (MDT) Approach and Quality of Care

Psychosocial Adjustments after Advanced Laryngeal Cancer Treatment – A Systematic Review

Contact Info

Product

Resources

About