Self-management and well-being in adolescents with diabetes mellitus: Do illness representations play a regulatory role?

Law, G. Urquhart; Kelly, Thomas P.; Huey, Dale; Summerbell, Carolyn

doi:10.1016/s1054-139x(02)00397-x

Cited by 57 publications

(56 citation statements)

References 8 publications

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“…The other group, predominantly comprising children with HCM, described it as a genetic condition, which might lead to a symptom, that is, thickened heart muscle, which in turn could cause heart problems, that is, sudden death. These children had more difficulties explaining their condition, suggesting less illness coherence, that is, greater confusion regarding their condition [Law et al, 2002]. However, most children had a genetic/biological rather than an environmental or behavioral representation of the cause of their condition.…”

Section: Discussionmentioning

confidence: 98%

“…These children receive regular feedback on how their lifestyle and medication-use affects their cholesterol level at medical check ups. Such feedback may heighten their feelings of personal control and self-esteem, which in turn may increase their sense of well-being [Law et al, 2002]. In addition, they are allowed to occasionally dodge the rules, making self-management easier.…”

Section: Discussionmentioning

confidence: 99%

“…Simultaneously, the emotional consequences of the threat are regulated by strategies aimed at reducing negative emotions. Although the model has been mostly used in adults, it has proven its value towards understanding children's disease perceptions and how these relate to their health behavior and well-being [e.g., Law et al, 2002;Edgar and Skinner, 2003]. …”

Section: Introductionmentioning

confidence: 99%

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Predictive genetic testing for cardiovascular diseases: Impact on carrier children

Meulenkamp

Tibben

Mollema

et al. 2008

American J of Med Genetics Pt A

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We studied the experiences of children identified by family screening who were found to be a mutation carrier for a genetic cardiovascular disease (Long QT Syndrome (LQTS), Hypertrophic Cardiomyopathy (HCM), Familial Hypercholesterolemia (FH)). We addressed the (a) manner in which they perceive their carrier status, (b) impact on their daily lives, and (c) strategy used to cope with these consequences. Children (aged 8-18) who tested positive for LQTS (n=11), HCM (n=6) or FH (n=16), and their parents participated in semi-structured audiotaped interviews. Interview topics included illness perception, use of medication, lifestyle modifications, worries, and coping. Each interview was coded by two researchers. The qualitative analysis was guided by Leventhal's model of self-regulation. The children were overall quite articulate about the disease they were tested for, including its mode of inheritance. They expressed positive future health perceptions, but feelings of controllability varied. Adherence and side-effects were significant themes with regard to medication-use. Refraining from activities and maintaining a non-fat diet were themes concerning lifestyle modifications. Some children spontaneously reported worries about the possibility of dying and frustration about being different from peers. Children coped with these worries by expressing faith in the effectiveness of medication, trying to be similar to peers or, in contrast, emphasizing their "being different." Children generally appeared effective in the way they coped with their carrier status and its implications. Nevertheless, dealing with the daily implications of their condition remains difficult in some situations, warranting continued availability of psychosocial support.

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Section: Discussionmentioning

confidence: 98%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Predictive genetic testing for cardiovascular diseases: Impact on carrier children

Meulenkamp

Tibben

Mollema

et al. 2008

American J of Med Genetics Pt A

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“…Cross-sectional and longitudinal studies have investigated existing relations between QoL, depression and anxiety in young people with T1DM. The results showed a direct relation between these variables, that is, the presence of depression and anxiety worsened QoL, assessed through the Well-Being Questionnaire and DQOLY (10,(37)(38) .…”

Section: Qol and Psychosocial Aspectsmentioning

confidence: 91%

Fatores associados à qualidade de vida de jovens com diabetes mellitus do tipo 1

Novato

Grossi

2011

Rev. esc. enferm. USP

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The objective of this study was to perform a literature review of the factors that may influence the Health Related Quality of Life (HRQL) of adolescents with type 1 diabetes mellitus using the PICO strategy. PubMed/ MEDLINE, ISI Web of Knowledge and EMBASE were the databases used. A larger survey of articles was possible by combining standardized and non-standardized descriptors. Though HRQL is a specific construct used to evaluate aspects related to the repercussions of health, illness, and treatment, it appears that sociodemographic, psychosocial, and family-related aspects have a significant effect on HRQL.

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“…It has an extremely complex treatment regimen [2] involving the coordination of multiple daily blood glucose tests, multiple daily insulin injections or insulin provided through a pump, and monitoring diet and daily exercise levels in order to normalize blood glucose levels [3]. Adequate diabetes management during adolescence is often a struggle, with adherence and blood glucose control commonly decreasing during this developmental period [4], raising the potential of serious long-term complications [5].…”

Section: Introductionmentioning

confidence: 99%

Perceived Diabetes Task Competence Mediates the Relationship of both Negative and Positive Affect with Blood Glucose in Adolescents with Type 1 Diabetes

Fortenberry¹,

Butler²,

Butner³

et al. 2009

ann. behav. med.

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Self-management and well-being in adolescents with diabetes mellitus: Do illness representations play a regulatory role?

Cited by 57 publications

References 8 publications

Predictive genetic testing for cardiovascular diseases: Impact on carrier children

Predictive genetic testing for cardiovascular diseases: Impact on carrier children

Fatores associados à qualidade de vida de jovens com diabetes mellitus do tipo 1

Perceived Diabetes Task Competence Mediates the Relationship of both Negative and Positive Affect with Blood Glucose in Adolescents with Type 1 Diabetes

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