Self-management strategies and comorbidities in chronic disease patients: associations with quality of life and depression

Kang, EunKyo; Kim, Soo-Jeong; Rhee, Ye Eun; Lee, Jihye; Yun, Young Ho

doi:10.1080/13548506.2020.1838585

Cited by 28 publications

(20 citation statements)

References 44 publications

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“…A qualitative systematic review identified challenges that patients experienced with self-management, including dealing with physical and emotional symptoms; living with pain, depression, and fatigue; and having a lack of understanding of self-management strategies related to conflicting information from providers [ 5 ]. Kang et al [ 6 ] found that quality of life scores were higher among patients with good versus low self-management strategy scores regardless of the number of comorbidities.…”

Section: Introductionmentioning

confidence: 99%

A Web-Based Social Network Tool (GENIE) for Supporting Self-management Among High Users of the Health Care System: Feasibility and Usability Study

Valaitis¹,

Cleghorn²,

Vassilev³

et al. 2021

JMIR Form Res

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Background Primary care providers are well positioned to foster self-management through linking patients to community-based health and social services (HSSs). This study evaluated a web-based tool—GENIE (Generating Engagement in Network Involvement)—to support the self-management of adults. GENIE empowers patients to leverage their personal social networks and increase their access to HSSs. GENIE maps patients’ personal social networks, elicits preferences, and filters local HSSs from a community service directory based on patient’s interests. Trained volunteers (an extension of the primary care team) conducted home visits and conducted surveys related to life and health goals in the context of the Health TAPESTRY (Teams Advancing Patient Experience: Strengthening Quality) program, in which the GENIE tool was implemented. GENIE reports were uploaded to an electronic medical record for care planning by the team. Objective This study aims to explore patients’, volunteers’, and clinicians’ perceptions of the feasibility, usability, and perceived outcomes of GENIE—a tool for community-dwelling adults who are high users of the health care system. Methods This study involved 2 primary care clinician focus groups and 1 clinician interview (n=15), 1 volunteer focus group (n=3), patient telephone interviews (n=8), field observations that captured goal-action sequences to complete GENIE, and GENIE utilization statistics. The patients were enrolled in a primary care program—Health TAPESTRY—and Ontario’s Health Links Program, which coordinates care for the highest users of the health care system. NVivo 11 (QSR International) was used to support qualitative data analyses related to feasibility and perceived outcomes, and descriptive statistics were used for quantitative data. Results Most participants reported positive overall perceptions of GENIE. However, feasibility testing showed that participants had a partial understanding of the tool; volunteer facilitation was critical to support the implementation of GENIE; clinicians perceived their navigation ability as superior to that of GENIE supported by volunteers; and tool completion took 39 minutes, which made the home visit too long for some. Usability challenges included difficulties completing some sections of the tool related to medical terminology and unclear instructions, limitations in the quality and quantity of HSSs results, and minor technological challenges. Almost all patients identified a community program or activity of interest. Half of the patients (4/8, 50%) followed up on HSSs and added new members to their network, whereas 1 participant lost a member. Clinicians’ strengthened their understanding of patients’ personal social networks and needs, and patients felt less social isolation. Conclusions This study demonstrated the potential of GENIE, when supported by volunteers, to expand patients’ social networks and link them to relevant HSSs. Volunteers require training to implement GENIE for self-management support, which may help overcome the time limitations faced by primary care clinicians. Refining the filtering capability of GENIE to address adults’ needs may improve primary care providers’ confidence in using such tools.

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Section: Introductionmentioning

confidence: 99%

A Web-Based Social Network Tool (GENIE) for Supporting Self-management Among High Users of the Health Care System: Feasibility and Usability Study

Valaitis¹,

Cleghorn²,

Vassilev³

et al. 2021

JMIR Form Res

View full text Add to dashboard Cite

show abstract

“…The intervention strategies undertaken to tackle chronic illnesses are eminently preventative and focus on the self-management of symptoms [2,3]. These techniques include, for example, educational meetings to improve knowledge of the illness and a sense of responsibility [4]; lifestyle changes, including daily physical exercise, a balanced diet, weight control and reducing stress levels [5]; and the implementation of actions geared towards increasing perceived self-efficiency in health [3].…”

Section: Introductionmentioning

confidence: 99%

“…These techniques include, for example, educational meetings to improve knowledge of the illness and a sense of responsibility [4]; lifestyle changes, including daily physical exercise, a balanced diet, weight control and reducing stress levels [5]; and the implementation of actions geared towards increasing perceived self-efficiency in health [3]. As such, we seek to improve the prognosis of chronic illness [2] and obtain relevant benefits in terms of the physical and psychological health of patients, which will increase their quality of life [5].…”

Section: Introductionmentioning

confidence: 99%

“…Therefore, the objectives of this study are as follows: (1) to determine the specific chronic pathologies in which avatars have been used; (2) to categorize different kinds of avatars according to how they have been used in order to tackle psychological variables in patients diagnosed with a chronic illness; (3) to establish the kind of psychological variables that have been studied, including the standardized instruments used for their evaluation; (4) to specify whether or not said psychological variables have benefited from the use of avatars (effectiveness); (5) to specify the level of patient satisfaction with the use of avatars.…”

Section: Introductionmentioning

confidence: 99%

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Could Avatar Therapy Enhance Mental Health in Chronic Patients? A Systematic Review

et al. 2021

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The use of avatars in the psychological treatment of some chronic diseases is in their infancy, and it represents a growing field of research with many possibilities for innovation. However, there is a lack of studies seeking to determine if avatar-based therapies could improve mental health in chronic care settings. In fact, to the best of our knowledge, this is the first systematic review addressing this research topic. The objectives of this study were to review the scientific literature on those studies involving avatar-based therapies for chronic patients, as well as different ways to develop them and their efficacy on mental health outcomes. Two main questions were addressed: (1) Are avatar-based strategies useful to improve mental health in chronic patients? (2) Which is the best way to develop avatar-based strategies regarding chronic diseases? A systematic review of the peer-reviewed literature was conducted in March 2021. The results were, not only useful for establishing suitable ways to develop avatar-based strategies to improve mental health in chronic care, but also for providing an ad hoc taxonomy regarding this research topic. Five modalities were established according to technological complexity and avatar presentation. Most of the studies were effective (61.1%) in enhancing mental health in chronic care.

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“… 6 Self-leadership enables them to focus on life goals and develop action plans and preventively overcome life crisis and promote their post-traumatic growth, well-being, and quality of life (QOL). 6 7 8 9 10 11 Post-traumatic growth is the experience of positive change in the individual following traumatic challenges. 6 12 Resilience involves the ability of the individual to respond positively to traumatic events.…”

Section: Introductionmentioning

confidence: 99%

The Association of the Health Management Strategy with Subjective Health and Well-being Outcomes in General Population

Yun

Sim

2021

J Korean Med Sci

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Background People face many obstacles to overcoming crisis in life and proactively manage life crises. This study aimed to evaluate the association of self-management strategy with subjective health and well-being for the general South Korean population. Methods We recruited 1,200 respondents using an equal-probability sampling method from March to May 2018. A questionnaire including life version of the Smart Management Strategy for Health Assessment Tool (SAT-Life), the five Health Status Questionnaire, Short Form-12, McGill Quality of Life Questionnaire (MQOL), Patient Health Questionnaire-9 (PHQ-9), and Satisfaction With Life Scale (SWLS) was administered to participants. Results In multiple stepwise logistic regression model adjusted with basic demographic variables (age, sex, region, education and monthly income level), core strategy was independently associated with physical, mental, social, spiritual, and general health status (adjusted odds ratios [aORs], 1.97–2.92). Preparation strategy was independently associated with physical, mental, spiritual, and general health status (aORs, 2.36–3.31). Implementation strategy was independently associated with physical, social, spiritual, and general health status (aORs, 2.22–2.42). Core strategy and implementation strategy were independently associated with higher Physical Component Score (aORs, 2.21–2.29) and higher Mental Component Score (aORs, 1.68–1.76). Core strategy and preparation strategy were independently associated with lower PHQ-9 (aORs, 2.63–3.74). Pearson's correlation coefficients between scores on SAT-Life and the other factors (MQOL social support, MQOL spiritual well-being, and SWLS) explain having significant correlations ranging from 0.41–0.43. Conclusion Self-management strategies of health might be encouraged to manage subjective health and well-being outcomes.

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Self-management strategies and comorbidities in chronic disease patients: associations with quality of life and depression

Cited by 28 publications

References 44 publications

A Web-Based Social Network Tool (GENIE) for Supporting Self-management Among High Users of the Health Care System: Feasibility and Usability Study

A Web-Based Social Network Tool (GENIE) for Supporting Self-management Among High Users of the Health Care System: Feasibility and Usability Study

Could Avatar Therapy Enhance Mental Health in Chronic Patients? A Systematic Review

The Association of the Health Management Strategy with Subjective Health and Well-being Outcomes in General Population

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