Self-management support and eHealth for patients and informal caregivers confronted with advanced cancer: an online focus group study among nurses

Slev, Vina N.; Pasman, H. Roeline W.; Eeltink, Corien; Uden–Kraan, Cornelia F. van; Leeuw, Irma M. Verdonck‐de; Francké, Anneke L.

doi:10.1186/s12904-017-0238-4

Cited by 37 publications

(56 citation statements)

References 35 publications

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“…Using the 5A model turned out to be difficult as it was new to the nurses. Previous studies’ results were comparable, as the last 2 A’s ( assist and arrange ) seem to be delivered least often by nurses [19,29,30]. However, those components are most important for producing meaningful and lasting behavioral changes [19].…”

Section: Discussionmentioning

confidence: 80%

Process Evaluation of Nurse-Led Online Self-Management Support for Family Caregivers to Deal With Behavior Changes of a Relative With Dementia (Part 1): Mixed Methods Study

Veld¹,

Asch²,

Willemse³

et al. 2019

J Med Internet Res

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BackgroundCoping with behavioral changes is a daily challenge for family caregivers in all phases of dementia, and assistance is needed for it. An online self-management support intervention was therefore developed and conducted involving the following elements: (1) email contact with a specialized dementia nurse, (2) online videos, and (3) e-bulletins containing information about behavior changes and how to manage them.ObjectiveThe aim of this study was to understand (1) family caregivers’ actual use of various elements of the online self-management support, (2) family caregivers’ evaluation and satisfaction with the various elements, and (3) nurses’ usage and evaluations of the online support through the tailored email contacts.MethodsA mixed methods design was used in this process evaluation, combining quantitative and qualitative methods including analyses of dementia nurses’ registration forms, the number of clicks on online videos and e-bulletins, evaluation questions answered by family caregivers in a survey questionnaire, semistructured interviews with family caregivers and nurses, and analysis of the content of the email contacts.ResultsThe actual use of various elements of the online self-management support by family caregivers varied: 78% (21/27) of family caregivers had an email contact with the specialist nurse, 80% (43/54) of family caregivers clicked on an online video, and 37% (30/81) clicked on an e-bulletin. Family caregivers showed positive evaluations and satisfaction. The tailor-made approach in the personal email contacts in particular was valued by the family caregivers. Nurses’ evaluations about providing self-management support online were mixed as it was a relatively new task for them.ConclusionsAn important insight is that not all participants made optimum use of the various elements of the intervention. Nurses also said that the email contacts were more often used to express feelings about coping with behavioral changes. More research is needed to investigate the reasons why people accept, adopt, and adhere to online interventions to reduce cases where they are not used and to back them up appropriately with tailored (online) information and advice for their personal situations.

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Section: Discussionmentioning

confidence: 80%

Process Evaluation of Nurse-Led Online Self-Management Support for Family Caregivers to Deal With Behavior Changes of a Relative With Dementia (Part 1): Mixed Methods Study

Veld¹,

Asch²,

Willemse³

et al. 2019

J Med Internet Res

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“…Another barrier to adopt Oncokompas relates to the concept of self-management: some hospitals questioned whether access to an online self-management tool should be provided through a hospital or directly to patients themselves. More research is needed on the organization of self-management (support) in cancer care [27], but a key aspect in providing this support is cooperation between health services [28]. Also, in a previous qualitative study exploring HCP’s perspective regarding Oncokompas implementation, we found that all participants indicated that when Oncokompas was to be implemented in daily clinical practice, it should be offered to survivors through a clinical procedure in a care pathway [11].…”

Section: Discussionmentioning

confidence: 99%

Adoption and implementation of a web-based self-management application “Oncokompas” in routine cancer care: a national pilot study

Wit

Uden–Kraan

Lissenberg‐Witte

et al. 2018

Support Care Cancer

Self Cite

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Purpose A web-based self-management application “Oncokompas” was developed to monitor health-related quality of life and to support cancer survivors in finding and obtaining optimal supportive care. Access to this application is provided via a healthcare professional (HCP). The aim of this study was to explore the adoption and implementation of Oncokompas in routine clinical practice and to obtain insights in potentially relevant determinants of implementation. Methods A pilot study was carried out among 65 hospitals throughout The Netherlands. HCPs filled out a questionnaire on the implementation of Oncokompas in their organization, consisting of study specific items and items based on the Measurement Instrument for Determinants of Innovations (MIDI). The MIDI comprises 29 determinants in four domains that predict the use of innovations: the innovation itself (Oncokompas), the user (HCP), the organization (hospital), and socio-political context. Results In total, 20/65 eligible hospitals agreed to implement Oncokompas (adoption rate 31%). In these 20 adopting hospitals, the majority of the responding HCPs (72/205) in this study (44/61) indicated their patients were offered access to Oncokompas (implementation rate 72%). Comparing those HCPs who did and did not implement Oncokompas, the groups differed significantly on innovation-related (procedural clarity, complexity) and user-related determinants (importance of outcome expectations, professional obligation, social support, and self-efficacy). Conclusions During this 1-year study, nationwide adoption rate of Oncokompas was at 31%, and subsequent implementation rate was at 72%. The results of this study contribute to further optimize interventions and strategies to adopt and implement (online) self-management applications in cancer care. Electronic supplementary material The online version of this article (10.1007/s00520-018-4591-5) contains supplementary material, which is available to authorized users.

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“…The 5 A's framework has become a universal approach to encouraging behavioral change, including in smoking, nutrition, alcohol, and physical activity 13 . Figure 1 shows the five steps of the 5 A's model 22 : 1) Assess the subject's beliefs, behavior, and knowledge; 2) Advise the subject by providing specific information about health risks and the benefits of change; 3) Agree to collaboratively set goals based on the subject's interest and confidence in their ability to change their behavior; 4) Assist in identifying personal barriers, strategies, problem-solving techniques, and social/environmental support; 5) Arrange a plan for follow-up, such as visits, phone calls, and mailed reminders.…”

Section: Methodsmentioning

confidence: 99%

Development of an Evidence-based Nutritional Intervention Protocol for Adolescent Athletes

Lee

Lim

2019

JENB

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[Purpose]Effective nutritional intervention can help reduce the risk of nutritional problems and improve athletic performance in adolescents. The five A’s (assess, advise, agree, assist, and arrange) model is widely used as the theoretical framework for advice on nutrition, smoking, drinking, and physical activity and it recommends that practitioners in primary health care promote behavior change to facilitate positive outcomes. This model has also been useful in understanding the underlying processes of behavior change. This study aimed to develop both a novel evidence-based nutritional intervention protocol, rooted in sound nutritional theory, and a customizable nutritional intervention program to support sustainable healthy eating, enhance nutrient intake, and improve athletic performance in adolescent athletes.[Methods]In this study, we adapted the 5 A’s behavioral change model and motivational interview to develop a theoretical framework to help adolescent athletes change their behavior and achieve their goals.[Results]During each step of the 5 A’s protocol, a customized nutritional intervention protocol was developed by nutrition experts for each of adolescent athletes. Each plan was developed to improve the eating habits of adolescent athletes through group education and counseling. All nutritional counseling sessions were designed to enable participants to apply nutritional knowledge and practical action plans to their training and competition conditions to enable each of them to achieve individual athletic goals and facilitate self-management. [Conclusion]A theoretical and evidence-based nutritional intervention protocol was developed to identify and address obstacles to healthy dietary habits in adolescent athletes. This could be used as the basis for further studies aimed at improving nutrient intake and athletic performance in adolescent athletes.

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Self-management support and eHealth for patients and informal caregivers confronted with advanced cancer: an online focus group study among nurses

Cited by 37 publications

References 35 publications

Process Evaluation of Nurse-Led Online Self-Management Support for Family Caregivers to Deal With Behavior Changes of a Relative With Dementia (Part 1): Mixed Methods Study

Process Evaluation of Nurse-Led Online Self-Management Support for Family Caregivers to Deal With Behavior Changes of a Relative With Dementia (Part 1): Mixed Methods Study

Adoption and implementation of a web-based self-management application “Oncokompas” in routine cancer care: a national pilot study

Development of an Evidence-based Nutritional Intervention Protocol for Adolescent Athletes

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