Self-Management Support Intervention for Parents of Children with Developmental Disorders: The Role of Gratitude and Hope

Martin, Faith; Clyne, Wendy; Pearce, Gemma; Turner, Andy

doi:10.1007/s10826-018-01308-1

Cited by 35 publications

(42 citation statements)

References 65 publications

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“…64 To mitigate recovery-related perceptions, the online interactive elements as well as self-efficacy-enhancing features of SMArTVIEW R&R have been adapted from the Help to Overcome Problems (HOPE) and iHOPE programs based out of Coventry University. HOPE and iHOPE [65][66][67][68] are uniquely grounded in both positive psychology and cognitive behavioral therapy theory and incorporate evidence-based cognitive behavioral therapy and positive psychological activities such as goal setting and action planning, identifying personal strengths, scheduling activity and rest periods, mindfulness, relaxation training, and reviewing successes. Feasibility trials have shown that HOPE and iHOPE have the potential to improve important health-related quality of life outcomes for people living with and affected by a range of long-term conditions.…”

Section: Smartview Self-management Trainingmentioning

confidence: 99%

The need for novel strategies to address postoperative pain associated with cardiac surgery: A commentary and introduction to “SMArTVIEW”

Ouellette

Henry

Turner

et al. 2019

Canadian Journal of Pain

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Background: With coronary heart disease affecting over 2.4 million Canadians, annual cardiac and major vascular surgery rates are on the rise. Unrelieved postoperative pain is among the top five causes of hospital readmission following surgery; little is done to address this postoperative complication. Barriers to effective pain assessment and management following cardiac and major vascular surgery have been conceptualized on patient, health care provider, and system levels. Purpose: In this commentary, we review common patient, health care provider, and system-level barriers to effective postoperative pain assessment and management following cardiac and major vascular surgery. We then outline the SMArTVIEW intervention, with particular attention to components designed to optimize postoperative pain assessment and management. Methods: In conceptualizing the SMArTVIEW intervention design, we sought to address a number of these barriers by meeting the following design objectives: (1) orchestrating a structured process for regular postoperative pain assessment and management; (2) ensuring adequate clinician preparation for postoperative pain assessment and management in the context of virtual care; and (3) enfranchising patients to become active selfmanagers and to work with their health care providers to manage their pain postoperatively. Conclusions: Innovative approaches to address these barriers are a current challenge to health care providers and researchers alike. SMArTVIEW is spearheading this paradigm shift within clinical research to address barriers that impair effective postoperative pain management by actively engaging health care providers and patients in an accessible format (i.e., digital health solution) to give primacy to the need of postoperative pain assessment and management following cardiac and major vascular surgery.

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Section: Smartview Self-management Trainingmentioning

confidence: 99%

The need for novel strategies to address postoperative pain associated with cardiac surgery: A commentary and introduction to “SMArTVIEW”

Ouellette

Henry

Turner

et al. 2019

Canadian Journal of Pain

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confidence: 99%

“…Robust evidence shows mental health and well-being to be associated with person-specific characteristics (Benson, 2010; Landon et al, 2018; Martin et al, 2019). Among parents of children with autism, evidence suggests associations between higher levels of gratitude and hope with increased well-being and decreased depression (Martin et al, 2019), and between higher self-esteem and adaptive coping strategies, with higher well-being and reduced health problems (Landon et al, 2018). Greater mindfulness has also been shown to be associated with reduced depression, anxiety, and stress, among parents of children with autism (Rayan & Ahmad, 2018) and, furthermore, such parents who received a mindfulness-based intervention have shown significantly improved depression and anxiety (Rayan & Ahmad, 2017), stress (Bazzano et al, 2015; Rayan & Ahmad, 2017) and well-being (Bazzano et al, 2015).…”

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confidence: 99%

“…Family contextual factors are also pertinent to parental mental health and well-being. While families with a higher household income have been found to have better mental health and well-being (Landon et al, 2018; Salomone et al, 2018), so too has reduced number of working hours been predictive of greater well-being among parents of children with autism (Martin et al, 2019). The recent study by Salomone et al (2018), however, showed no association between the number of parents, or the number of children with developmental delay in the household with parental mental health.…”

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confidence: 99%

“…A systematic review of stress and resilience among South-East Asian parents of children with autism showed that, in addition to autism severity, factors associated with parenting stress included social support, income, religion, parents’ perception and understanding of autism and parental anxiety about their child’s future (Ilias et al, 2018). While limited research has focused on family context factors such as these, studies in recent years have seen this topic garner more attention (Landon et al, 2018; Martin et al, 2019; Salomone et al, 2018).…”

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confidence: 99%

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Differential predictors of well-being versus mental health among parents of pre-schoolers with autism

Green

Smith

Bent

et al. 2021

Autism

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Extensive research has shown elevated mental health difficulties among parents of children with autism compared to other parents. Although several studies have explored factors related to mental health among parents of children with autism, the factors that influence and promote well-being remain poorly characterised. Parents of young, newly diagnosed autistic children may also be particularly vulnerable to stressors that impact mental health and well-being. We examined child-, parent-, and family/socioeconomic factors associated with concurrent mental health and well-being among 136 parents of young children with autism, aged 13–48 months. Parental mental health was predicted by both trait negative emotionality and reported child autism symptoms, while well-being was predicted by parent factors alone, including trait extraversion and mindfulness. Broader child characteristics and family/socioeconomic contextual factors made no significant contribution in regression models. While the mental health and well-being of parents with young autistic children are associated with one another, unique predictors seem to exist. That well-being was uniquely predicted by a modifiable parent characteristic – mindfulness – suggests the potential for early supports to bring direct benefits for parents, in the context of raising a young child with autism. Lay abstract Raising a child with autism has been linked to mental health difficulties. Poor parental mental health is likely influenced by various factors – including child-, parent-, and family/socioeconomic characteristics. However, little is known about what influences and promotes well-being (as opposed to mental health) among parents of young, newly diagnosed autistic children who may be particularly vulnerable. We examined child-, parent-, and family/socioeconomic factors associated with each of mental health and well-being in a sample of 136 parents of pre-school-aged children. Parental mental health was linked to both child- (i.e. autism symptom severity) and parent-related factors (i.e. personality traits reflecting a tendency to experience negative emotions). By contrast, in additional to mental health difficulties, which were linked to well-being, only other parent-related characteristics (and not child characteristics) were related to well-being. These included personality traits reflecting a tendency to be more extraverted/sociable, and also mindfulness. Other child-related and family/socioeconomic context factors (including household income, parental education level) were not linked to parental mental health or well-being in this sample. These results support the idea that poorer mental health and well-being are not simply the opposite of one another. That is, while these two factors were related, they were linked to different personal characteristics. Perhaps most importantly, the link between well-being and mindfulness – a personal characteristic that parents can improve – suggests mindfulness-based interventions may be helpful in directly supporting parental well-being in the context of raising a young child with autism.

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Hope in Iranian mothers of children with cancer: a descriptive correlational study

Zadeh

Parry

Eshghi

2020

Support Care Cancer

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Self-Management Support Intervention for Parents of Children with Developmental Disorders: The Role of Gratitude and Hope

Cited by 35 publications

References 65 publications

The need for novel strategies to address postoperative pain associated with cardiac surgery: A commentary and introduction to “SMArTVIEW”

The need for novel strategies to address postoperative pain associated with cardiac surgery: A commentary and introduction to “SMArTVIEW”

Differential predictors of well-being versus mental health among parents of pre-schoolers with autism

Hope in Iranian mothers of children with cancer: a descriptive correlational study

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