Self-reported Pediatric Measures of Physical Activity, Sedentary Behavior, and Strength Impact for PROMIS

Tucker, Carole A.; Bevans, Katherine B.; Teneralli, Rachel E.; Smith, Ashley Wilder; Bowles, Heather R.; Forrest, Christopher B.

doi:10.1097/pep.0000000000000074

Cited by 41 publications

(42 citation statements)

References 10 publications

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“…7,8 Recognizing the need for additional domains that address pain and physical functioning in children with chronic disease, investigators developed new PROMIS domains to assess pain behavior, pain quality, physical stress experience, physical activity, and strength impact. [9][10][11][12] These domains are relevant to children with SCD who commonly experience fatigue and acute and chronic pain. The new domains are distinct from the already validated PROMIS measures of pain interference, fatigue, depression, anxiety, and physical functioning 7,8,13,14 and will enhance our understanding of the symptoms experienced by children with SCD.…”

Section: Introductionmentioning

confidence: 99%

Use of the new pediatric PROMIS measures of pain and physical experiences for children with sickle cell disease

Singh

Dasgupta

Simpson

et al. 2019

Pediatric Blood & Cancer

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Background There are new pediatric domains to measure patients’ pain and physical experiences in the Patient‐Reported Outcomes Measurement Information System (PROMIS). The objective of this study was to establish the psychometric properties of these domains for children with sickle cell disease (SCD). Procedure We conducted a cross‐sectional analysis of PROMIS assessments of children with SCD recruited from a pediatric tertiary care clinic. Validity of the new PROMIS domains was determined by comparing scores between known groups and describing their correlations with previously validated PROMIS measures. Cronbach's alpha and item response theory (IRT) reliability were used to assess internal consistency reliability. Agreement between parent‐proxy and child self‐report was determined for all domains. Results Our study included 164 subjects, of whom 117 were eligible to self‐report. The mean T‐scores for physical stress experience, strength impact, pain behavior, and pain quality sensory scores were significantly different between children who used pain medications in the prior week and those who did not. There were also differences in T‐scores across children reporting mild, moderate, and severe pain on the pain intensity scale. All measures had Cronbach's alpha and IRT reliability > 0.80. The percentage of agreement between child and parent‐proxy PROMIS domains ranged from 36% to 60% depending on the domain. Conclusions The new PROMIS domains of physical stress experience, strength impact, pain behavior, and pain quality sensory domains are valid and reliable for children with SCD. The low–moderate agreement between parent‐proxy and child self‐report scores support the complementary information provided by the two perspectives.

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Section: Introductionmentioning

confidence: 99%

Use of the new pediatric PROMIS measures of pain and physical experiences for children with sickle cell disease

Singh

Dasgupta

Simpson

et al. 2019

Pediatric Blood & Cancer

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“…Within the 87 articles, 162 studies were conducted, with 103 assessing construct validity, 50 test–retest reliability, and nine measurement error. Four of the included questionnaires were assessed by two of the included studies, i.e., the 3-Day Physical Activity Recall (3DPARecall) [ 19 , 20 ], the Activity Questionnaire for Adults and Adolescents (AQuAA) [ 21 , 22 ], the Oxford Physical Activity Questionnaire (OPAQ) [ 23 , 24 ], and a physical activity, sedentary behavior, and strength questionnaire [ 25 , 26 ]. Furthermore, two of the questionnaires were assessed by three of the included studies, i.e., the Physical Activity Questionnaire for Older Children (PAQ-C) [ 27 – 29 ], and the Previous Day Physical Activity Recall (PDPAR) [ 30 – 32 ].…”

Section: Resultsmentioning

confidence: 99%

“…Six of the included questionnaires were qualitatively assessed on content validity, one of which was assessed by two studies [ 25 , 26 , 34 – 37 ]. Studies used cognitive interviews, semi-structured interviews, and focus groups with children and adolescents and/or experts (e.g., researchers in the field of sports medicine, pediatrics, and measurement) to assess the comprehensibility, relevance of items, and comprehensiveness of the questionnaires.…”

Section: Resultsmentioning

confidence: 99%

An Updated Systematic Review of Childhood Physical Activity Questionnaires

et al. 2018

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Background and ObjectiveThis review is an update of a previous review published in 2010, and aims to summarize the available studies on the measurement properties of physical activity questionnaires for young people under the age of 18 years.MethodsSystematic literature searches were carried out using the online PubMed, EMBASE, and SPORTDiscus databases up to 2018. Articles had to evaluate at least one of the measurement properties of a questionnaire measuring at least the duration or frequency of children’s physical activity, and be published in the English language. The standardized COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) checklist was used for the quality assessment of the studies.ResultsThis review yielded 87 articles on 89 different questionnaires. Within the 87 articles, 162 studies were conducted: 103 studies assessed construct validity, 50 assessed test–retest reliability, and nine assessed measurement error. Of these studies, 38% were of poor methodological quality and 49% of fair methodological quality. A questionnaire with acceptable validity was found only for adolescents, i.e., the Greek version of the 3-Day Physical Activity Record. Questionnaires with acceptable test–retest reliability were found in all age categories, i.e., preschoolers, children, and adolescents.ConclusionUnfortunately, no questionnaires were identified with conclusive evidence for both acceptable validity and reliability, partly due to the low methodological quality of the studies. This evidence is urgently needed, as current research and practice are using physical activity questionnaires of unknown validity and reliability. Therefore, recommendations for high-quality studies on measurement properties of physical activity questionnaires were formulated in the discussion.PROSPERO Registration NumberCRD42016038695.Electronic supplementary materialThe online version of this article (10.1007/s40279-018-0987-0) contains supplementary material, which is available to authorized users.

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“…Only the studies by de Fátima Guimarães et al [30] and Tucker et al [24] included adequate descriptions of the translation process, e.g. translations by language experts, and review by experts in the field.…”

Section: Discussionmentioning

confidence: 99%

Systematic Review of Childhood Sedentary Behavior Questionnaires: What do We Know and What is Next?

et al. 2016

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BackgroundAccurate measurement of child sedentary behavior is necessary for monitoring trends, examining health effects, and evaluating the effectiveness of interventions.ObjectivesWe therefore aimed to summarize studies examining the measurement properties of self-report or proxy-report sedentary behavior questionnaires for children and adolescents under the age of 18 years. Additionally, we provided an overview of the characteristics of the evaluated questionnaires.MethodsWe performed systematic literature searches in the EMBASE, PubMed, and SPORTDiscus electronic databases. Studies had to report on at least one measurement property of a questionnaire assessing sedentary behavior. Questionnaire data were extracted using a standardized checklist, i.e. the Quality Assessment of Physical Activity Questionnaire (QAPAQ) checklist, and the methodological quality of the included studies was rated using a standardized tool, i.e. the COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) checklist.ResultsForty-six studies on 46 questionnaires met our inclusion criteria, of which 33 examined test–retest reliability, nine examined measurement error, two examined internal consistency, 22 examined construct validity, eight examined content validity, and two examined structural validity. The majority of the included studies were of fair or poor methodological quality. Of the studies with at least a fair methodological quality, six scored positive on test–retest reliability, and two scored positive on construct validity.ConclusionNone of the questionnaires included in this review were considered as both valid and reliable. High-quality studies on the most promising questionnaires are required, with more attention to the content validity of the questionnaires.PROSPERO registration number: CRD42016035963.Electronic supplementary materialThe online version of this article (doi:10.1007/s40279-016-0610-1) contains supplementary material, which is available to authorized users.

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Self-reported Pediatric Measures of Physical Activity, Sedentary Behavior, and Strength Impact for PROMIS

Cited by 41 publications

References 10 publications

Use of the new pediatric PROMIS measures of pain and physical experiences for children with sickle cell disease

Use of the new pediatric PROMIS measures of pain and physical experiences for children with sickle cell disease

An Updated Systematic Review of Childhood Physical Activity Questionnaires

Systematic Review of Childhood Sedentary Behavior Questionnaires: What do We Know and What is Next?

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