Self-reported physical health among older surrogate parents to children orphaned and affected by HIV disease

Joslin, Daphne; Harrison, Robert G.

doi:10.1080/0954012021000005443

Cited by 21 publications

(23 citation statements)

References 21 publications

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“…Children living with grandparents tended to report better HRQL than others, especially in psychosocial domains. This was beyond our expectation and inconsistent with previous studies conducted in other countries (Joslin & Harrison, 2002; Juma et al, 2004; Ozuah, 2003). We found that caregivers spending more hours accompanying the child appeared to increase the child’s psychosocial health.…”

Section: Discussioncontrasting

confidence: 99%

Quality of life of children living in HIV/AIDS-affected families in rural areas in Yunnan, China

Wu²,

Rou³

et al. 2010

AIDS Care

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The aim of this study was to explore the main influencing factors of the health related quality of life (HRQL) of children living in HIV/AIDS-affected families in rural areas in Yunnan, China. The HRQL of 116 children aged 8 to 17 from HIV/AIDS-affected families and of 109 children from unaffected families was evaluated by the Chinese Version of PedsQL TM 4.0. Some potential influencing factors were investigated, such as demographic characteristics, the families' social and economic status, foster models, children's self-esteem etc. The HRQL of the children's caregivers may also have been among the influencing factors, as measured by the SF-36. Multiple regression analysis was used to explore the influence of independent variables on children's HRQL. Results showed that lower scores of children's self-esteem and caregivers' SF 36 reduced the majority of the PedsQL domains. Results showed children from HIV/AIDS-affected families reported lower scores of HRQL than those from unaffected families, especially in the psychosocial functioning, emotional functioning and school functioning domains. Children living with grandparents reported higher PedsQL scores in psychosocial health, social functioning and school functioning. Disclosure of parental HIV/AIDS status reduced children's PedsQL scores in emotional functioning and social functioning. Caregivers spending more hours accompanying the children appeared to increase the PedsQL scores in psychosocial health and school functioning. The findings indicate the child's self-esteem, the caregiver's perceived quality of life, the child's foster pattern, the average hours of company provided by the caregiver, and whether the child was informed of the parent's HIV/AIDS status are important factors influencing HRQL. Interventions aiming at these factors should be developed to improve the QL of children affected by HIV/AIDS.

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Section: Discussioncontrasting

confidence: 99%

Quality of life of children living in HIV/AIDS-affected families in rural areas in Yunnan, China

Wu²,

Rou³

et al. 2010

AIDS Care

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“…Parents find it hard to combine work with taking care of an ill child; 24 especially mothers have a need to compromise between gainful employment and taking care of the ill child 53 . Seventy per cent of elderly close relatives who are acting as primary caregivers report that they have too little time for taking care of their own health and their own health is often experienced as bad 54 …”

Section: Resultsmentioning

confidence: 99%

“…Another reason for the geographic limitation in writing on the present issue might be priorities of needs. When resources are limited, food, shelter and medicine will be more important to satisfy than other needs, and research focused on the needs of relatives will probably receive even lower priority 9,27,54 . The literature search was limited to the last 5 years and only to two databases, implying that there might be research and additional knowledge that is not included in this work.…”

Section: Discussionmentioning

confidence: 99%

Families' needs when a child is long‐term ill: A literature review with reference to nursing research

Hallström

Elander²

2007

Int J of Nursing Practice

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“…17 The resulting burden on these aunts and grandmothers is substantial; it can result in economic deprivation, and deterioration of their own health from the physical challenges of caring for young children. 18,19 Hlengiwe, who was caring for seven children as well as a partner on ART, gave up taking care of herself. She was demoralized by the change in her body shape, the disrespectful attitude of nurses, and a nephew who was trying to evict her from the family home.…”

Section: Negative Survival Strategiesmentioning

confidence: 99%

Exploring antiretroviral treatment adherence in an urban setting in South Africa

Goudge

Ngoma

2011

J Public Health Pol

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Antiretroviral treatment requires high levels of adherence to be effective. This qualitative study explores the reasons for poor adherence among 22 purposively selected poor urban participants in South Africa. Over a 4-month period in 2009, we prospectively investigated experiences of HIV diagnosis and treatment, adherence, and withdrawal from treatment. Patients with no stable food sources faced significant barriers in adhering to treatment regimens and staying sufficiently healthy to search for, obtain or retain a job. The narratives also identify the influence on adherence of self-esteem and social support, vulnerability generated by ill health, gendered conflict, social inequities amplified by HIV, and exhaustion due to the social burden of the epidemic. Multi-dimensional, inter-sectoral programs that tackle the social determinants of health, such as food insecurity, poverty, gendered inequities, and treatment adherence are more likely to be successful, than single interventions to support adherence.

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Self-reported physical health among older surrogate parents to children orphaned and affected by HIV disease

Cited by 21 publications

References 21 publications

Quality of life of children living in HIV/AIDS-affected families in rural areas in Yunnan, China

Quality of life of children living in HIV/AIDS-affected families in rural areas in Yunnan, China

Families' needs when a child is long‐term ill: A literature review with reference to nursing research

Exploring antiretroviral treatment adherence in an urban setting in South Africa

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