“…For publications in 1995–1999, there were no data sources found. For publications in 2000–2009, data sources used were surveys or questionnaire data [ 30 ], patient or medical data [ 31 – 33 ], clinical or health care research datasets [ 34 ], and patient or disease registries [ 35 ]. For publications in 2010–2019, more data sources were used, including surveys or questionnaire data [ 12 , 24 , 26 , 36 – 96 ], interviews or focus groups [ 25 , 27 , 28 , 37 , 69 , 94 , 97 – 119 ], patient or medical data [ 23 , 120 – 142 ], clinical or health care research datasets [ 23 , 143 – 153 ], patient or disease registries [ 29 , 67 , 154 , 155 ], and social media (Facebook [ 156 , 157 ], Twitter [ 158 , 159 ], Quora [ 22 ], and WhatsApp [ 160 ]) and new social media datasets [ 161 ].…”