Sense-making, Socialization, and Stigma: Exploring Narratives Told in Families About Mental Illness

Flood‐Grady, Elizabeth; Kellas, Jody Koenig

doi:10.1080/10410236.2018.1431016

Cited by 43 publications

(21 citation statements)

References 45 publications

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“…However, the current body of communication literature has yet to deeply explore mental conditions such as DDD. Scholars have explored related topics such as stigma and mental illness (Flood-Grady & Koenig Kellas, 2019), memorable messages about mental health (Greenwell, 2019), eating disorders (Vidovic et al, 2005), anxiety (McLaughlin & Hatzenbuehler, 2009), among others. As a field, we still have a long way to go in terms of understanding mental disorders and illness through the lens of communication.…”

Section: Discussionmentioning

confidence: 99%

Embodying the (Dis)embodiment: Narrating Depersonalization-Derealization Disorder

Watson

2022

Qual Health Res

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Depersonalization-Derealization Disorder is an under-researched condition that is often left out of the larger discourse surrounding mental health and mental illness. This autoethnography examines the material and discursive tensions that are a product of my experience with Depersonalization-Derealization Disorder. In this critical self-exploration, I use communication privacy management theory, communication theory of resilience, and stigma management communication theory to unpack the communicative negotiations that accompany my disembodied experience, with the overarching goal of spreading awareness about Depersonalization-Derealization Disorder to help others make sense of their own diagnosis.

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Section: Discussionmentioning

confidence: 99%

Embodying the (Dis)embodiment: Narrating Depersonalization-Derealization Disorder

Watson

2022

Qual Health Res

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“…On the contrary, in an online survey conducted in China, Li et al [50] found no relationship between contact levels and the mental illness stigma toward people with mental disorders. These mixed reviews support early learning through case studies to reduce stigma toward mental illness [51]. The Chinese Lay Theory also suggests collecting qualitative data from contemporary families regarding their views towards individuals with mental illness [16].…”

Section: Discussionmentioning

confidence: 99%

Public Stigma on Depression Comorbid with Diabetes: A Vignette-Method Study in China

Leung

Gearing

Chen

et al. 2021

Preprint

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Background: Depression and diabetes are common illnesses affecting individuals with health challenges and family stress. Research suggested stigma-reduction interventions for families facing health-related stressors. This study examined factors predicting public stigma on depression alone or comorbid with diabetes. Methods: In Shanghai, China, consented respondents to a community-based survey read one of four vignettes varied by depression types and gender of the Vignette Subject (VS). This vignette method measures each respondent’s Individualized Public Stigma score, attitude toward the subject’s family with the Devaluation of Consumer’s Families score, and problem seriousness leading to stress. Results: 125 respondents expressed views on depression or diabetes-associated depression via their answers to a randomly assigned vignette. Results show significant associations with Individualized Public Stigma when entering the regression model with five variables: problem seriousness, knowing someone with a mental health problem, subject’s gender, attitude toward the subject’s family, and depression comorbid with diabetes. Regression statistics showed that a person’s Individualized Public Stigma scores could be predicted by two of these variables: perceived problem seriousness and sympathy toward the affected family. Yet, comorbidity with diabetes was not a significant predictor of stigma. Conclusions: This study concludes that the cultural value toward community support could be an educational means to help the public realize the importance of protecting the families affected by mental health stigma. Applying this theory in action, practitioners must assess how self-stigmatization interfaces with the public perception of the patient's family. In addition, when people have a highly sympathetic attitude toward the patient’s family and perceive the presenting problem as severe, they must be aware of the impact of individualized stigma on the patient. Future research must focus on these cultural perspectives to support early anti-stigma interventions.

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“…Narratives help individuals to create significance, in a way "that provides means for individual, social and organizational sensemaking" (Rantakari & Vaara, 2017, p. 271). At the patient level, communicating an illness story makes it easier for these individuals to understand their condition (e.g., in terms of identity) (Flood-Grady & Koenig-Kellas, 2019). The act of sharing narratives allows patients to "make sense of their collective circumstances and of the events that affect them" (Jordan et al, 2009, p. e15), which in turn creates the basis to address these conditions.…”

Section: Narratives As a Sensemaking Processmentioning

confidence: 99%

Co-constructing experiential knowledge in health: The contribution of people living with Parkinson to the co-design approach

Toset

Grosjean

Bonneville

2022

QHC

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Background: The use of collaborative approaches in the design of digital health technologies could help researchers to better understand the patient perspective. Starting from a 2019 Canadian case study focused on co-design and Parkinson’s disease, this paper discusses the potential of using narrative interviews to capture the patient experience. Aim: The objectives of this study are to examine the process of co-construction of ‘experiential knowledge’ through the interaction during a narrative interview and stress the significance of this method in relation to a co-design approach. Methods: A qualitative analysis of transcripts from 19 narrative interviews conducted in 2019 with people living with PD and their caregivers was performed. Results: Materialized in embedded, embodied, and emergent knowledge, findings reveal the potential of narrative interviews to provide insight to how experiential knowledge of people living with PD is constituted. Discussion: In addition to generate a learning environment, the analysis indicates that narrative interviews help to make visible experiential knowledge through the interaction processes between patients, caregivers, and researchers. Conclusion: This suggests that narrative interviews permit a more patient-centered design of digital health technologies, as they collect the psychological, social, and medical factors that influence the experience of these individuals.

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Sense-making, Socialization, and Stigma: Exploring Narratives Told in Families About Mental Illness

Cited by 43 publications

References 45 publications

Embodying the (Dis)embodiment: Narrating Depersonalization-Derealization Disorder

Embodying the (Dis)embodiment: Narrating Depersonalization-Derealization Disorder

Public Stigma on Depression Comorbid with Diabetes: A Vignette-Method Study in China

Co-constructing experiential knowledge in health: The contribution of people living with Parkinson to the co-design approach

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