“…It is essential to understand the experiences and perceptions of patients and carers during the transitional phase to inform improvements to service delivery to meet their needs [10]. Although there is some relevant literature [9,10,[32][33][34][35] studies often conflate mild, moderate and severe TBI [6,17,[35][36][37], use a sample with mixed brain injury diagnoses [11,17], adhere to quantitative measures [16,36,37] or do 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 not focus solely on the transition period [6,15,16,36]. Thus there appears to be a gap in understanding what is important and beneficial to patients with severe TBI, and their and carers, in the context of UK healthcare in this transitional phase, and how best to meet these needs.…”