Service needs of hearing-impaired children and their families: report of a survey of parental attitudes

Abstract

Universal Newborn Hearing Screening (UNHS) demands follow-up provision which is family-friendly. The attitudes to service provision in areas of

Parents’ Needs Following Identification of Childhood Hearing Loss

“…The findings complement and expand on previous work by illuminating more specifically the needs and preferences of parents of very recently diagnosed children. Our findings related to information needs are consistent with previous research that has addressed the question of families' wishes after identification of hearing loss (Luterman & Kurtzer-White, 1999;Minchom, Shepherd, White, Hill, & Lund, 2003;Roush, 2000). While parents in our study welcomed information about various communication options (e.g., oral and signing programs), in contrast to previous reports, this did not emerge as an important theme in the interviews (DesGeorges, 2003;Roush, 2000).…”

Qualitative analysis of parents’ experience with receiving the news of the detection of their child's hearing loss

“…In previous studies parents have expressed dissatisfaction with information that is too technical [28]. In this study, 21% of parents complained of the confusing use of technical terms.…”

A qualitative investigation of families' needs in the transition to early intervention after diagnosis of hearing loss

“…Studies have also reported that families want support from professionals who are approachable and whose communication is explanatory, honest, and sensitive (Tattersall & Young, ). Other studies have reported informational support as an important need (Decker & Vallotton, ; Minchom, Shepherd, White, Hill, & Lund, ; Scarinci, Erbasi, Moore, Ching, & Marnane, ), with some families reporting a strong desire to receive practical and unbiased information about communication, education, and funding (Gilliver, Ching, & Sjahalam‐King, ; McCracken, Young, & Tattersall, ).…”