Service user involvement in mental health care: an evolutionary concept analysis

Millar, Samantha; Chambers, Mary; Giles, Melanie

doi:10.1111/hex.12353

Cited by 71 publications

(81 citation statements)

References 77 publications

(168 reference statements)

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“…There is a growing body of evidence for the benefits of involving service users and carers in the design and delivery of mental health services at both a systems and individual level. PPI has been shown to change services for the better through enhanced performance, increased accountability and enhanced person‐centred care . At an individual level, reductions in symptom severity, positive impacts on personal recovery, individual rights, mental health literacy, confidence, hope and empowerment are all associated with increased involvement in mental health services .…”

Section: Introductionmentioning

confidence: 99%

Exploring the potential use of patient and public involvement to strengthen Indonesian mental health care for people with psychosis: A qualitative exploration of the views of service users and carers

Susanti

James²,

Utomo³

et al. 2019

Health Expectations

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Background Patient and public involvement (PPI) has the potential to strengthen mental health systems in Indonesia and improve care for people living with psychosis. Current evidence from other parts of the world demonstrates the need to understand the contexts in which PPI is to be enacted to ensure optimal implementation. Objective To understand service users’ and carers’ views on the current use and potential applicability of PPI within Indonesian mental health services. Design Qualitative study incorporating focus groups analysed using thematic analysis. Setting and participants Participants included 22 service users and 21 carers recruited from two study sites in Indonesia (Jakarta and Bogor). All participants had experience of psychosis either as a service user or carer. Results Despite the value attributed to PPI in relation to improving services and promoting recovery, current use of such activities in Indonesian mental health services was limited. Participants expressed a desire for greater levels of involvement and more holistic care but felt community organizations were best placed to deliver this because PPI was considered more congruent with the ethos of third‐sector organizations. Additional barriers to PPI included stigma and low levels of mental health literacy in both health services and communities. Discussion and conclusion Participants felt that there was potential value in the use of PPI within Indonesian mental health services with careful consideration of individual contexts. Future aspirations of involvement enactment should ensure a central design and delivery role for third‐sector organizations. Facilitators to global collaborative research in the context of the current study are also discussed.

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Section: Introductionmentioning

confidence: 99%

Exploring the potential use of patient and public involvement to strengthen Indonesian mental health care for people with psychosis: A qualitative exploration of the views of service users and carers

Susanti

James²,

Utomo³

et al. 2019

Health Expectations

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show abstract

“…A number of studies have investigated how health professionals experience user involvement at an individual level and how they work to enhance involvement, such as within mental health, cancer, diabetes and coronary care (Millar, Chambers, & Giles, 2016; Snyder & Engström, 2016). Findings have shown that the main motive for health professionals to initiate user involvement is to gain access to user knowledge as an alternative to professional knowledge or as support for professional knowledge (Sahlsten, Larsson, Sjöström, & Plos, 2009; Solbjør & Steinsbekk, 2011).…”

Section: Introductionmentioning

confidence: 99%

Individual user involvement at Healthy Life Centres: a qualitative study exploring the perspective of health professionals

Sagsveen

Rise

Grønning

et al. 2018

International Journal of Qualitative Studies on Health and Well

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The aim of this study was to explore how professionals experience user involvement at an individual level and how they describe involving users at Healthy Life Centres. Four focus group interviews were conducted with a total of 23 professionals. Data were analysed using systematic text condensation. Four themes were identified: (1) Involving users through motivational interviewing; (2) Building a good and trustful relation; (3) Assessing and adjusting to the user’s needs and life situation; and(4) Strengthening the user’s ownership and participation in the lifestyle change process. Motivational interviewing was described by the professionals as a way to induce and ensure user involvement. However, seeing motivational interviewing and user involvement as the same concept might reduce user involvement from being a goal in itself and evolve into a means of achieving lifestyle changes. The professionals might be facing opposing discourses in their practice and a dilemma of promoting autonomy and involvement and at the same time promoting change in a predefined direction. Greater emphasis should thus be put on systematic reflection among professionals about what user involvement implies in the local Healthy Life Centre context and in each user’s situation. Abbreviations: HLC: Healthy Life Centre; MI: Motivational Interviewing; NCD: Non-communicable diseases; STC: Systematic Text Condensation. SDT: Self-determination theory

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“…As proven for nurses (Cahill, 1998;Henderson, 2003) and physicians (Froschet et al, 2012), taking up this new, collaborative role poses a challenge, but is a necessity to facilitate patient participation (Larsson et al, 2011). Healthcare workers have to be able or willing to share their responsibilities and power with their patients before participation can actually take place (Millar et al 2015). Patient participation is a reciprocal process where healthcare workers and patients act upon each other's behavior (Longtin et al, 2010), and the patient initially depends on the healthcare worker's willingness to collaborate.…”

Section: Introductionmentioning

confidence: 99%

The Patient Participation Culture Tool for healthcare workers (PaCT-HCW) on general hospital wards: A development and psychometric validation study

Malfait

Eeckloo

Daele

et al. 2016

International Journal of Nursing Studies

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Service user involvement in mental health care: an evolutionary concept analysis

Abstract: Background The concept of service user involvement is an evolving concept in the mental health-care literature.

Cited by 71 publications

References 77 publications

Exploring the potential use of patient and public involvement to strengthen Indonesian mental health care for people with psychosis: A qualitative exploration of the views of service users and carers

Exploring the potential use of patient and public involvement to strengthen Indonesian mental health care for people with psychosis: A qualitative exploration of the views of service users and carers

Individual user involvement at Healthy Life Centres: a qualitative study exploring the perspective of health professionals

The Patient Participation Culture Tool for healthcare workers (PaCT-HCW) on general hospital wards: A development and psychometric validation study

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