Service user, patient, client, user or survivor: describing recipients of mental health services

Simmons, Peter; Hawley, Christopher J.; Gale, Tim M.; Sivakumaran, T.

doi:10.1192/pb.bp.109.025247

Cited by 39 publications

(47 citation statements)

References 4 publications

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“…Although a recent study by Simmons et al (2010) suggested it is still uncertain whether those who are invited to plan and participate in research are representative of those who regard themselves as 'patients' or 'clients' or 'service users', Shaw (2014) observed that the majority of people using secure mental health services prefer to be known as 'patients' rather than 'service users'. A suggested alternative, which may have particular relevance to users of forensic mental health services, is to adopt a neutral term such as 'project advisor' which has the …”

Section: Language and Communicationmentioning

confidence: 99%

How Best to Engage Users of Forensic Services in Research: Literature Review and Recommendations

Völlm

Foster

Bates

et al. 2017

International Journal of Forensic Mental Health

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A note on versions:The version presented here may differ from the published version or from the version of record. If you wish to cite this item you are advised to consult the publisher's version. Please see the repository url above for details on accessing the published version and note that access may require a subscription.For more information, please contact eprints@nottingham.ac.uk AbstractGuidance on service user involvement is available to help researchers working with people with mental health problems, but there is currently no comprehensive guidance relating to forensic settings where additional issues arise. This rapid review aims to summarise the currently available information on how best to engage users of forensic mental health services in the research process, and to make appropriate recommendations. Medline and five other databases were searched to May 2016 using relevant keywords and Medical Subject Headings, supplemented by a general Internet search. Eleven peer-reviewed journal papers and 12 reports or web-based documents were identified, the majority containing information derived using a qualitative methodology.

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Section: Language and Communicationmentioning

confidence: 99%

How Best to Engage Users of Forensic Services in Research: Literature Review and Recommendations

Völlm

Foster

Bates

et al. 2017

International Journal of Forensic Mental Health

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“…Conclusions will be drawn and suggestions for clinical implications regarding how people cope with stigma will be outlined. The term 'patient' will be used as this represents how individuals who have a mental illness prefer to be addressed (McGuire-Snieckus, McCabe, & Priebe, 2003;Simmons, Hawley, Gale, & Sivakumaran, 2010).…”

Section: Introductionmentioning

confidence: 99%

What is the Lived Experience of Being Discharged From a Psychiatric Inpatient Stay?

Redding

Maguire

Johnson

et al. 2017

Community Ment Health J

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The first part of this thesis contains a narrative review of the literature relating to how people with mental illness cope with stigma. The majority of the research has focussed on models of stigma, the impact of stigma on individuals and campaigns to combat stigma. There is limited research exploring how people cope with stigma and the effectiveness of these strategies. The review highlights the need for further research in this area to inform interventions.The second part of the thesis contains a qualitative research study, which aimed to provide an understanding of how individuals with a mental illness described their experiences of being discharged from psychiatric inpatient stays. Suicide rates post-discharge remain high despite discharge planning and discharge interventions, yet little is known about why discharge can be so difficult for individuals. Interpretative Phenomenological Analysis (IPA) was used to analyse interviews from eight individuals who had been discharged within the last three years. The analysis highlighted five superordinate themes: the hospital experience, the experience of discharge, the outside world, the journey to health and self-beliefs/identity.The results are discussed in relation to previous findings and implications for future research and clinical practice.

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“…Simmons et al, 2010); • "carer" for the family members/family carers/friends or neighbors supporting patients; and • "participation" to describe the involvement of patients and carers in services in various ways. This is taken from Arnstein's ladder of citizen participation (described in Hostick, 1998: see Figure 1) and is a form of what can be described as public participation: public participation involves organizational engagement, and contrasts with individual participation (an individual's everyday choices) and social participation (collective activities).…”

Section: Historical Contextmentioning

confidence: 99%

Patient and carer participation in old age psychiatry in England. Part I: a systemic perspective of the historical and policy context

Benbow

2011

Int. Psychogeriatr.

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Service user, patient, client, user or survivor: describing recipients of mental health services

Cited by 39 publications

References 4 publications

How Best to Engage Users of Forensic Services in Research: Literature Review and Recommendations

How Best to Engage Users of Forensic Services in Research: Literature Review and Recommendations

What is the Lived Experience of Being Discharged From a Psychiatric Inpatient Stay?

Patient and carer participation in old age psychiatry in England. Part I: a systemic perspective of the historical and policy context

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