Service user satisfaction with care in a specialist service for young people with attention deficit hyperactivity disorder

McGrath, Jane; Cawley, Barbara; McTiernan, Daniel; Marques, Liliana; Goncerz, Ewa; Heron, Elizabeth A.; Madden, Jamie M.; Bond, Laura; Quinn, Catherine; Mulholland, K.A.; Dowling, Brenda

doi:10.1017/ipm.2022.15

Cited by 5 publications

(3 citation statements)

References 42 publications

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“…Similar to most studies, 5 , 31 , 51 both groups generally reported high levels of satisfaction with CAMHS, with parents being significantly more satisfied than adolescents. Nevertheless, compared to previous findings, 3 , 5 , 49 only a modest proportion (6%–8%) of the variance in predictors of parent user satisfaction was explained by the models.…”

Section: Discussionsupporting

confidence: 81%

User satisfaction in child and adolescent mental health service: Comparison of background, clinical and service predictors for adolescent and parent satisfaction

Arnesen,

Lillevoll,

Mathiassen

2023

Health Expectations

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Background and ObjectiveTo improve quality, child and adolescent mental health services (CAMHS) are expected to quantify families' views on healthcare with user satisfaction measures. As little is known about what influences satisfaction in CAMHS, this study aimed to examine predictors of adolescents' and parents' user satisfaction.MethodsData from 231 adolescents and 495 parents in treatment at an outpatient clinic who returned a user satisfaction measure, the Experience of Service Questionnaire (ESQ), was analyzed. Registry data on background, clinical and service characteristics were predictors for the ESQ factors general satisfaction, satisfaction with care and satisfaction with environment.ResultsIn regression models, satisfaction with care for adolescents (r2 = .12) was significant and was predicted by low parent‐self‐reported mental health burden and low clinician‐rated overall symptom burden at intake. For parents, regression models for general satisfaction (r2 = .07), satisfaction with care (r2 = .06) and satisfaction with environment (r2 = .08) were significant. Parents general satisfaction was predicted by higher levels of hyperactivity, less family stress and longer travelling distances to the service. Satisfaction with care for parents was predicted by higher levels of hyperactivity at intake and longer travelling distances. Satisfaction with environment for parents was more likely if the adolescents was a boy, with low levels of family stress and longer travelling distances.ConclusionPredictors for adolescent and parent user satisfaction in CAMHS differ. Hence, to improve quality CAMHS should enhance focus on collaborative practice with parents, and person‐centred care for adolescents with moderate to severe mental health illness.Patient or Public ContributionRepresentatives from the hospitals' youth panel and the non‐governmental organization called The Change Factory have been consulted regarding study design and results.

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Section: Discussionsupporting

confidence: 81%

User satisfaction in child and adolescent mental health service: Comparison of background, clinical and service predictors for adolescent and parent satisfaction

Arnesen,

Lillevoll,

Mathiassen

2023

Health Expectations

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“…Studies, like one conducted with 497 adolescents in Atlantic Canada, shed light on the apparent inconsistency between high engagement with mental health services and lower mental health outcomes. Findings suggest that quality interactions, especially those fostering a strong therapeutic alliance [197], were more indicative of future mental health improvements than merely the quantity of services received [198]. This finding of higher mental health services utilization with lower well-being outcomes warrants future investigation in New Brunswick.…”

Section: Mental Health Service Utilizationmentioning

confidence: 87%

New Brunswick’s mental health action plan: A quantitative exploration of program efficacy in children and youth using the Canadian Community Health Survey

Yang,

Law,

Vaghri

2024

PLoS ONE

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In 2011, the New Brunswick government released the New Brunswick Mental Health Action Plan 2011–2018 (Action Plan). Following the release of the Action Plan in 2011, two progress reports were released in 2013 and 2015, highlighting the implementation status of the Action Plan. While vague in their language, these reports indicated considerable progress in implementing the Action Plan, as various initiatives were undertaken to raise awareness and provide additional resources to facilitate early prevention and intervention in children and youth. However, whether these initiatives have yielded measurable improvements in population-level mental health outcomes in children and youth remains unclear. The current study explored the impact of the Action Plan by visualizing the trend in psychosocial outcomes and service utilization of vulnerable populations in New Brunswick before and after the implementation of the Action Plan using multiple datasets from the Canadian Community Health Survey. Survey-weighted ordinary least square regression analyses were performed to investigate measurable improvements in available mental health outcomes. The result revealed a declining trend in the mental wellness of vulnerable youth despite them consistently reporting higher frequencies of mental health service use. This study highlights the need for a concerted effort in providing effective mental health services to New Brunswick youth and, more broadly, Canadian youth, as well as ensuring rigorous routine outcome monitoring and evaluation plans are consistently implemented for future mental health strategies at the time of their initiation.

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“…A direction for future research is surveying and interviewing children and adolescents themselves on their views of telehealth. Parents, and children and adolescents with ADHD, may have differing opinions of health services [39], so it is important to understand both views to provide patient-centred care. For example, it is acknowledged that adolescents may experience additional complexities using telehealth in terms of maintaining privacy and confidentiality [31,40].…”

Section: Implications For Practice and Researchmentioning

confidence: 99%

The use of telehealth in attention-deficit/hyperactivity disorder: a survey of parents and caregivers

Galvin,

Gavin,

Kilbride

et al. 2024

Eur Child Adolesc Psychiatry

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The use of telehealth became widespread during the COVID-19 pandemic, including in child and adolescent attention-deficit/hyperactivity disorder (ADHD) services. Telehealth is defined as live, synchronous phone and video appointments between a healthcare provider and a parent and/or child with ADHD. There is a dearth of research on the use of telehealth within this population. The aim of this study was to examine parents’ and caregivers’ perceptions of telehealth for children and adolescents with ADHD. A cross-sectional survey design was employed. Recruitment of parents and caregivers of children and adolescents with ADHD was conducted online. The survey asked participants about their views of telehealth, previous experience, and willingness to use telehealth. Quantitative data were analysed using STATA. Qualitative data were analysed using content analysis. One hundred and twelve respondents participated in the survey. Participants were mostly female (n = 97, 86.6%) and aged between 45 and 54 (n = 64, 57.1%). Of the 61 (54.5%) participants with experience of telehealth, the majority reported that that they were at least satisfied with telehealth visits (n = 36, 59%), whilst approximately half rated their quality more poorly than in-person visits (n = 31, 50.8%). The majority of respondents (n = 91, 81.3%) reported that they would be willing to use telehealth for their child’s future appointments. Most common reasons selected for wanting to use telehealth included saving time, improvements to the family routine, and reducing costs. Reasons selected for not wanting to use telehealth included not being able to receive hands-on care, belief that the quality of care is poorer than in-person consultations, and distraction of the child during telehealth visits. The study demonstrates that parents recognise deficits and benefits of telehealth, suggesting a need to build their trust and confidence in remote ADHD care.

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Service user satisfaction with care in a specialist service for young people with attention deficit hyperactivity disorder

Cited by 5 publications

References 42 publications

User satisfaction in child and adolescent mental health service: Comparison of background, clinical and service predictors for adolescent and parent satisfaction

User satisfaction in child and adolescent mental health service: Comparison of background, clinical and service predictors for adolescent and parent satisfaction

New Brunswick’s mental health action plan: A quantitative exploration of program efficacy in children and youth using the Canadian Community Health Survey

The use of telehealth in attention-deficit/hyperactivity disorder: a survey of parents and caregivers

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