Set-up of the Electronic Database of Pediatric Cancer Patients in Pilot Medical Facilities: A Prospective Cohort Study

Юрьевич, Рыков Максим; Александрович, Турабов Иван; Григорьевна, Желудкова Ольга

doi:10.15690/onco.v5i1.1861

Cited by 11 publications

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References 3 publications

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“…Такая база данных с системой поддержки принятия врачебных решений прошла клиническую апробацию в некоторых субъектах Российской Федерации [6]. В настоящее время начинается ее внедрение в Центральном федеральном округе.…”

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Main indicators characterizing medical care quality for children with cancer in 2013–2017 in Moscow and Moscow Region

Rykov

2019

Ross. vestn. perinatol. pediatr.

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Section: Discussionunclassified

Main indicators characterizing medical care quality for children with cancer in 2013–2017 in Moscow and Moscow Region

Rykov

2019

Ross. vestn. perinatol. pediatr.

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“…Только после реализации изложенных выше идей, сформулированных в новом Порядке оказания медицинской помощи детям по профилю «детская онкология», возможно ответить на один из главных вопросов: является ли достаточным число детских онкологических коек в субъектах? С целью устранения выявленных дефектов данных и причин, приводящих к появлению таковых, необходимо расширение информатизации, внедрение электронной базы данных детей с онкологическими заболеваниями, которая исключит «субъективный» фактор как при составлении отчетов, так и во время выбора тактики лечения и маршрутизации пациентов [8].…”

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Quality of medical care for children with cancer in Ural Federal District

Rykov

2019

Zlokač. opuholi

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Objective. Analysis of main indicators of the quality of medical care for children with cancer in Ural Federal District.Materials and methods. The study analyzed operational reports for 2017 obtained from the public health care executive authorities of the 6 Russian Federation Subjects constituting Ural Federal District: Kurgan Oblast, Tyumen Oblast, Sverdlovsk Oblast, Chelyabinsk Oblast, Khanty‑Mansi Autonomous Okrug, and Yamal‑Nenets Autonomous Okrug.Results. There were 3 paediatric oncology departments. No paediatric oncology departments were available in 3 Subjects (50 %), one Subject (20 %) had no paediatric oncology hospital beds. There were 192 paediatric oncology hospital beds in total (0.7 per 10,000 children aged 0‑17 years). No paediatric oncology hospital beds were available in one Subject (20 %) (Yamal‑Nenets Autonomous Okrug). The average hospital bed occupancy was 343 days a year. The number of physicians providing medical care for children with cancer was 59, and 35 of them (59.3 %, 0.1 per 10,000 children aged 0‑17 years) had a paediatric oncologist certificate. No paediatric oncologists or paediatric oncology hospital beds were available in one Subject (20 %) (Yamal‑Nenets Autonomous Okrug). The 2017 incidence rate in Ural Federal District was 14, the prevalence rate was 147.2 (per 100,000 patients aged 0‑17 years). The mortality rate was 2.5 per 100,000 patients aged 0‑17 years, the one‑year mortality rate was 5 %. There were 46 patients diagnosed through active case finding (12.1 %). A total of 94 patients (24.8 %) were referred to medical centres of Federal subordination. Four primary patients (1 %) left the Russian Federation for treatment.Conclusion. Apparent registration flaws (low incidence) and the lack of reliable follow‑up data (mortality assessment is difficult) can be overcome by the introduction of electronic registries. Audit of medical records is necessary for reliable assessment of how the general demand in paediatric oncology hospital beds is met and of the percentage of patients referred for treatment to medical centres of Federal subordination. The long‑standing problems of lack of paediatric oncologists and low percentage of patients diagnosed through active case finding should be tackled through reform of the medical education system.

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Analysis of Medical Care for Children with Cancer in the Central Federal District in 2017: Ecological Study

Rykov¹

2018

Oncopediatria

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Background. Planning the management for medical care delivery for children with cancer, as well as analysis of the effectiveness of medical care delivery is based on the statistical indicators analysis.Objective. Our aim was to analyze the main indicators characterizing medical care delivery for children with cancer in the Central Federal District.Methods. The operative reports for 2017 provided by the executive health protection authorities of 18 subjects of the Russian Federation that are part of the Central Federal District have been analyzed.Results. The study enrolled the following data: number of children was 6 824 049 (0–17 years), pediatric oncological departments — 9, pediatric oncological beds — 464, days of berth employment per year — 319.3. The number of practitioners providing medical care to children with cancer was 91, 64 (70.3%) of them had a certificate of training as a pediatric oncologist. In 11 subjects, the department of pediatric oncology was not available; one of the districts did not provide any pediatric oncological beds. The number of primary patients with malignant neoplasms was 821. The number of deceased patients was 156 including 66 identified in 2017. The incidence of malignant tumors was 12 (per 100 000 for the 0–17 age group), the mortality rate was 2.3 (per 100 thousand for the age group 0–17 years), one-year mortality rate — 8%. We failed to reveal the average time from diagnosis establishing till its validation before the treatment onset since the reports did not provide precise information on the point. 12 (1.5%) primary patients left for treatment abroad.Conclusion. Most reports included indicators which lack congruity with one another. The incidence rates were significantly lower than those in countries with high statistical reliability. The percentage of patients identified actively remained extremely low. To improve the revealed defects a single database of children with oncological diseases should be implemented in the Russian Federation.

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Set-up of the Electronic Database of Pediatric Cancer Patients in Pilot Medical Facilities: A Prospective Cohort Study

Cited by 11 publications

References 3 publications

Main indicators characterizing medical care quality for children with cancer in 2013–2017 in Moscow and Moscow Region

Main indicators characterizing medical care quality for children with cancer in 2013–2017 in Moscow and Moscow Region

Quality of medical care for children with cancer in Ural Federal District

Analysis of Medical Care for Children with Cancer in the Central Federal District in 2017: Ecological Study

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