Setting meaningful goals in rehabilitation: A qualitative study on the experiences of clients and clinicians in working with a practical tool

Littooij, Elsbeth; Doodeman, Suzan; Holla, Jasmijn; Ouwerkerk, Maaike; Post, Lenneke; Satink, Ton; Steeg, Anne Marie Ter; Vloothuis, Judith; Dekker, Joost; Groot, Vincent de

doi:10.1177/02692155211046463

Cited by 12 publications

(4 citation statements)

References 27 publications

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“…In the case of HAE patients, who often present signi cant limitations in their level of autonomy, as well as in private and working-related relationships, rehabilitation, intended as the achievement of the highest possible level of independence and participation in daily life and working activities, becomes a fundamental part of the care process. To be effective in terms of health results and costs, rehabilitation also bene ts from the proposed approach focused on personalized interventions centred on the individuals' needs and values [40,41].…”

Section: Discussionmentioning

confidence: 99%

A Human Centred Innovative Approach Based on Persona in Hereditary Angioedema

Perego,

Zingale,

Marcelli

et al. 2024

Preprint

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Background Hereditary Angioedema (HAE) due to C1-inhibitor deficiency (HAE-C1-INH) is a rare condition, clinically characterised by recurrent swelling. The unpredictability of attacks affects the patients’ quality of life (QoL). HAE patients and their families have vast unmet physical, psychological, and social needs. A human-centred design (HCD) approach to describing the needs of different user types is to utilise personas, a data-driven narrative tool for communicating user archetypes that capture the individuals’ attitudes, goals, and behaviours. The aim of this study was to create and analyse personas based on HAE patients’ and their caregivers’ interviews. Semi-structured interviews were conducted through anthropological conversations with patients, patient-caregivers (double role of patient and caregiver), and non-affected caregivers. Qualitative and quantitative insights from analyses formed the basis to create personas. Results We enrolled 17 subjects: 15 patients (6 of them were patient-caregivers) and 2 non-affected caregivers. The mean age of participants was 50,3±14,4 yrs. Eight patients were on treatment with prophylactic therapy. The mean percentage score of Angioedema Quality of Life (AE-QoL) for HAE patients was 19,8±12,0. Six personas were identified describing the participants’ personal history, disease management, and needs: four personas referred to patients, one to patient-caregivers, and one non-affected caregiver personas were identified. Across patient personas, the most expressed needs were psychological support and better awareness amongst healthcare professionals. Caregivers, on their side, desired better information about the disease, including the latest therapies, and higher awareness within the community. Conclusion A Human Centred Innovative Approach Based on Persona extends beyond the physical symptoms to encompass the psychological and social aspects of the individual's well-being also including the family in the evaluation.

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Section: Discussionmentioning

confidence: 99%

A Human Centred Innovative Approach Based on Persona in Hereditary Angioedema

Perego,

Zingale,

Marcelli

et al. 2024

Preprint

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“…35,36 The person is central to the general theory of behaviour, 37 which stresses that people have a purpose as part of their identity, 38 working towards meaningful goals, which can be identified in rehabilitation. 39,40 The person is central to healthcare. William Osler (1849-1919) summarised this in an aphorism, 'Ask not what disease the person has, but rather what person the disease has'.…”

Section: Biopsychosocial Adaptationmentioning

confidence: 99%

“…The person is central to the general theory of behaviour, 37 which stresses that people have a purpose as part of their identity, 38 working towards meaningful goals, which can be identified in rehabilitation. 39 , 40 …”

Section: Introductionmentioning

confidence: 99%

A general theory of rehabilitation: Rehabilitation catalyses and assists adaptation to illness

Wade

2023

Clin Rehabil

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Background There is no general theory of rehabilitation, only definitions and descriptions, with the biopsychosocial model of illness as a structure. Objective To develop a general theory of rehabilitation that explains how healthcare rehabilitation changes outcomes and to evaluate its validity. Need A general rehabilitation theory would help research, improve services, increase understanding, modify resource allocation and explain some anomalies, such as how rehabilitation helps when no natural recovery occurs. Building blocks People adapt to change throughout their lives. Illness is a change, and people adapt to their illness. Adaptation's purpose is to maintain an equilibrium in a person's life. The balanced components are related to Maslow's five needs: basic, safety, affiliation, status and self-fulfilment. The general theory of behaviour suggests that a person's behaviours change to maintain balance, regulated by a central homeostatic mechanism. The theory Rehabilitation aids adaptation to changes associated with illness through accurate diagnosis and formulation, catalysing adaptation, optimising the environment and assisting the person in making necessary changes by safely practising activities and teaching self-management. Implications The theory makes the person the central active agent, emphasises the importance of the environment in facilitating adaptation, explains why all conditions may benefit, including progressive and static conditions, suggests that health can be equated to someone maintaining their equilibrium and explains why a small dose may be very effective. Conclusion The general theory of rehabilitation emphasises the catalytic effects of rehabilitation in facilitating and guiding adaptation and suggests areas for research and improvement.

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“…National Clinical Guidelines promote goal setting as an essential aspect of stroke rehabilitation. Many studies have shown improvement in patients' confidence and motivation to work on rehabilitation with prior goal setting to improve motor and cognitive skills [ 23 , 24 ]. There are some different goal perspectives between patients and hospital staff that impede the development of the patient.…”

Section: Reviewmentioning

confidence: 99%

Comparison of Rehabilitative Interventions That Ameliorate Post-stroke Working Memory Deficit: A Systematic Review

Velugoti¹,

Tabowei²,

Gaddipati³

et al. 2022

Cureus

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Stroke is one of the most common causes of disability in the world. It has sensory, motor, and cognitive symptoms. Many cognitive domains might get involved in a stroke. This systematic review focuses on working memory domain deficits after stroke and their various rehabilitation methods. This review is based on Preferred Reporting Items for Systematic Reviews and Meta-Analyses(PRISMA) guidelines. For this review, we have searched PubMed, Google Scholar, and Science Direct databases and screened thoroughly with the inclusion criteria of free full-text English papers in the last 10 years that have exclusively studied humans. The articles included in the search are randomized control trials (RCTs), observational studies, meta-analysis studies, systematic reviews, and traditional reviews. Consequent quality assessment was done using the most commonly used tools for each type of study and eight papers were selected. From these papers, full-text articles were studied, analyzed, and tabulated. We found five different rehabilitation methods: transcranial direct-current stimulation, computer-assisted cognitive rehabilitation, physical activity, goal setting, and multimodal rehabilitation. We found that goal setting, computer-assisted cognitive rehabilitation, and multimodal rehabilitation can improve working memory deficits. While transcranial direct current stimulation and physical activity were inconsistent, further studies are needed. The small sample size, no follow-up, the inclusion of only a few studies, the size of the stroke, and comorbid conditions like mild cognitive impairment, dementia, and depression were the main limitations of this study. Future reviews must include a larger number of studies with large sample sizes, including follow-up as an inclusion criterion. We need more clinical trials on these methods for better knowledge.

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Setting meaningful goals in rehabilitation: A qualitative study on the experiences of clients and clinicians in working with a practical tool

Cited by 12 publications

References 27 publications

A Human Centred Innovative Approach Based on Persona in Hereditary Angioedema

A Human Centred Innovative Approach Based on Persona in Hereditary Angioedema

A general theory of rehabilitation: Rehabilitation catalyses and assists adaptation to illness

Comparison of Rehabilitative Interventions That Ameliorate Post-stroke Working Memory Deficit: A Systematic Review

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