Sexual Function and Quality of Life in Young Men With Spina Bifida: Could It Be Neglected Aspects in Clinical Practice?

Sexual function and qualify of life in women with spina bifida: Are the women with spina bifida satisfied with their sexual activity?

“…Another reason could be the difference in the expectation level between women with spina bifida and healthy women. As reported in a previous study in men with spina bifida, the congenital condition does not allow a direct comparison between persons with spina bifida and healthy persons; thus, persons with spina bifida had decreased levels of expectation with sexual activity …”

“…The overall survival of persons with spina bifida has improved, and >80‐95% of them live into adulthood . This increased survival rate is due to medical innovations such as improved methods in shunting of hydrocephalus and the preservation of renal function through clean intermittent catheterization (CIC) . With the growing number of adults with spina bifida, research into the long‐term health needs of this population is warranted .…”

“…However, among these transition goals, bladder and bowel management is heavily emphasized and often time consuming, whereas issues pertaining to sexual function and fertility are a challenging aspect because it is only in recent decades that most persons with spina bifida are surviving into adulthood . Thereby, although sexual life in adulthood is an important aspect of the quality of life (QOL), it is a considerable challenge for persons with spina bifida …”

“…1 This increased survival rate is due to medical innovations such as improved methods in shunting of hydrocephalus and the preservation of renal function through clean intermittent catheterization (CIC). 3 With the growing number of adults with spina bifida, research into the long-term health needs of this population is warranted. 4 Therefore, programs that help patients to achieve the required development when transitioning into adulthood not only leads to improved health outcomes but also increases self-worth and independence in young patients with this condition.…”

“…6 Thereby, although sexual life in adulthood is an important aspect of the quality of life (QOL), it is a considerable challenge for persons with spina bifida. 3 Concerning physical problems, sexual function, including the ability to have sexual intercourse and achieve orgasm, may be affected negatively by reduced or absent motor and sensory functions. Women with spina bifida may experience problems with vaginal lubrication and having a flaccid pelvic floor.…”