Sexual Health and Well-Being in Adults With Congenital Heart Disease

Swan, Lorna; Windram, Jonathan; Burchill, Luke; Ladak, Laila Akbar; Reardon, Leigh C.; Fernandez, Beatriz; Jacobsen, Roni M.; Simpson, Maggie; Harrison, David; Morton, Liza

doi:10.1016/j.jacadv.2023.100716

Cited by 4 publications

(2 citation statements)

References 73 publications

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“…Known factors that influence these poor outcomes in this population include minority stress, legal discrimination, victimization, familial rejection, lower SES, healthcare discrimination, healthcare avoidance, and intersectionality (the complex, cumulative way in which the effects of multiple forms of discrimination (such as racism, sexism, and classism) combine, overlap, or intersect, especially in the experiences of marginalized individuals or groups) [64]. Many individuals are reluctant to share their sexual orientation or gender identity with HCPs out of fear of misunderstanding or maltreatment or simply out of wanting to avoid making the provider feel uncomfortable [65].…”

Section: Lesbian Gay Bisexual Transgender and Queer (Lgbtq) Populationsmentioning

confidence: 99%

“…There are simple steps that CHD providers can take to provide a safe environment for LGBTQ patients. Avoiding assumptions when asking about romantic relationships, sexual behavior, and plans for having children and adopting a gender-neutral language can allow individuals to express a preference for their pronouns, discuss their gender identity, or disclose their sexual orientation [65]. An improved medical education curriculum across the spectrum of medical training (from pediatric to adult) is necessary to provide not only culturally competent care but also specialized care for sexual and, particularly, gender-diverse individuals.…”

Section: Lesbian Gay Bisexual Transgender and Queer (Lgbtq) Populationsmentioning

confidence: 99%

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Health Equity and Policy Considerations for Pediatric and Adult Congenital Heart Disease Care among Minoritized Populations in the United States

Lopez,

Allen,

Baker-Smith

et al. 2024

JCDD

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Achieving health equity in populations with congenital heart disease (CHD) requires recognizing existing disparities throughout the lifespan that negatively and disproportionately impact specific groups of individuals. These disparities occur at individual, institutional, or system levels and often result in increased morbidity and mortality for marginalized or racially minoritized populations (population subgroups (e.g., ethnic, racial, social, religious) with differential power compared to those deemed to hold the majority power in the population). Creating actionable strategies and solutions to address these health disparities in patients with CHD requires critically examining multilevel factors and health policies that continue to drive health inequities, including varying social determinants of health (SDOH), systemic inequities, and structural racism. In this comprehensive review article, we focus on health equity solutions and health policy considerations for minoritized and marginalized populations with CHD throughout their lifespan in the United States. We review unique challenges that these populations may face and strategies for mitigating disparities in lifelong CHD care. We assess ways to deliver culturally competent CHD care and to help lower-health-literacy populations navigate CHD care. Finally, we review system-level health policies that impact reimbursement and research funding, as well as institutional policies that impact leadership diversity and representation in the workforce.

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Section: Lesbian Gay Bisexual Transgender and Queer (Lgbtq) Populationsmentioning

confidence: 99%

Section: Lesbian Gay Bisexual Transgender and Queer (Lgbtq) Populationsmentioning

confidence: 99%

Health Equity and Policy Considerations for Pediatric and Adult Congenital Heart Disease Care among Minoritized Populations in the United States

Lopez,

Allen,

Baker-Smith

et al. 2024

JCDD

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The Coronary Atherosclerosis Detection: A Diagnostic Approach of Digital Electrocardiography Image Interpretation

Yenila,

Yuhandri,

Okfalisa

2024

2024 International Conference on Data Science and Its Applications (ICoDSA)

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Advancing the access to cardiovascular diagnosis and treatment among women with cardiovascular disease: a joint British Cardiovascular Societies’ consensus document

Tayal,

Pompei,

Wilkinson

et al. 2024

Heart

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Despite significant progress in cardiovascular pharmacotherapy and interventional strategies, cardiovascular disease (CVD), in particular ischaemic heart disease, remains the leading cause of morbidity and mortality among women in the UK and worldwide. Women are underdiagnosed, undertreated and under-represented in clinical trials directed at management strategies for CVD, making their results less applicable to this subset. Women have additional sex-specific risk factors that put them at higher risk of future cardiovascular events. Psychosocial risk factors, socioeconomic deprivation and environmental factors have an augmented impact on women’s cardiovascular health, highlighting the need for a holistic approach to care that considers risk factors specifically related to female biology alongside the traditional risk factors. Importantly, in the UK, even in the context of a National Health Service, there exist significant regional variations in age-standardised mortality rates among patients with CVD. Given most CVDs are preventable, concerted efforts are necessary to address the unmet needs and ensure parity of care for women with CVD. The present consensus document, put together by the British Cardiovascular Society (BCS)’s affiliated societies, specifically portrays the current status on the sex-related differences in the diagnosis and treatment of each of the major CVD areas and proposes strategies to overcome the barriers in accessing diagnoses and treatments among women. This document aims at raising awareness of the scale of the current problem and hopes to stimulate a multifaceted approach to address sex disparities and enable future comprehensive sex- and gender-based research through collaboration across different affiliated societies within the BCS.

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Sexual Health and Well-Being in Adults With Congenital Heart Disease

Cited by 4 publications

References 73 publications

Health Equity and Policy Considerations for Pediatric and Adult Congenital Heart Disease Care among Minoritized Populations in the United States

Health Equity and Policy Considerations for Pediatric and Adult Congenital Heart Disease Care among Minoritized Populations in the United States

The Coronary Atherosclerosis Detection: A Diagnostic Approach of Digital Electrocardiography Image Interpretation

Advancing the access to cardiovascular diagnosis and treatment among women with cardiovascular disease: a joint British Cardiovascular Societies’ consensus document

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