Sexual Health Communication Between Healthcare Professionals and Adolescents with Chronic Conditions in Western Countries: An Integrative Review

Engelen, Marscha; Knoll, J.L.; Rabsztyn, P.R.I.; Schaaijk, NM Maas-van; Gaal, Betsie van

doi:10.1007/s11195-019-09597-0

Cited by 20 publications

(17 citation statements)

References 44 publications

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“…A substantial number of women (30.1%) had complaints of dyspareunia, more than expected from the background rate of 21% 20 . Although illness can have a large impact on sexuality, the topic is often overlooked by healthcare professionals – initiating discussion of the subject could help to normalise the subject and to provide patient education and treatment options 21 . The most frequently mentioned physical complaint in the qualitative analysis is long‐term fatigue.…”

Section: Discussionmentioning

confidence: 99%

Long‐term quality of life after obstetric intensive care unit admission: A cross‐sectional cohort study

Ramlakhan

Zande

Roos‐Hesselink

et al. 2023

BJOG

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Objective To assess the long‐term quality of life (QoL) after obstetric Intensive Care Unit (ICU) admission. Design Cross‐sectional survey study. Setting Tertiary care centre. Population Women admitted to the level 3 ICU during pregnancy or ≤6 weeks postpartum, between 2000 and 2015. Methods Quality of life measures were compared with the population reference values. Associations with baseline ICU parameters were assessed with multivariable linear regression. Patient‐reported outcome and experience measures (PROMs/PREMs) were described. Main Outcome Measures Quality of life according to the Linear Analogous Scale (LAS), the Satisfaction with Life Scale (SWLS) and the SF‐36 questionnaire; PROMs/PREMs using the Pregnancy and Childbirth outcome set of the International Consortium for Health Outcomes Measurement. Results Of all 265 obstetric ICU admissions, 230 were eligible and 94 (41%) were included (median follow‐up time 14 years). The LAS (75.7 versus 78.7, p = 0.077) and SWLS (25.2 versus 26, p = 0.176) sum scores were not different from the population reference values. The SF‐36 subdomains bodily pain (55.3 versus 73.9), general health (58.2 versus 73.9) and vitality (56.9 versus 69.1) were lower than the reference values (all p < 0.001). PROMs/PREMs were low in 46.2% for pain, 15.1% for depression, 11.8% for satisfaction with care and 52.7% for healthcare responsiveness. An indirect obstetric ICU admission diagnosis was independently associated with a reduced physical health score (B −1.7, 95% confidence interval [CI] −3.4 to −0.1) and severe neonatal morbidity with a reduced mental health score (B −6.6, 95% CI −11.3 to −1.8). Conclusion Obstetric ICU admission is associated with reductions in long‐term physical health QoL and in some patients with mental health QoL. We suggest multidisciplinary rehabilitation and long‐term psychosocial support.

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Section: Discussionmentioning

confidence: 99%

Long‐term quality of life after obstetric intensive care unit admission: A cross‐sectional cohort study

Ramlakhan

Zande

Roos‐Hesselink

et al. 2023

BJOG

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“…At this point, men's desires, demands and expectations are often beyond the expected competences of HPs, since previous studies showed that HPs lack education and competences in the field of sexuality. [15][16][17][18] To meet the needs of men in cardiovascular secondary prevention and rehabilitation, HPs should be professional, educated, and competent in this field. Another ethical aspect was the men's concerns about their own and other men's integrity and boundaries regarding HPs' address of sexuality, ED and i-PAVED.…”

Section: Discussionmentioning

confidence: 99%

“…13 Common barriers for HPs' address of sexuality and sexual issues such as ED are due to lack of HP education, competences and professionalism in the field of sexuality, or HPs' perception that addressing sexuality is embarrassing for patients, being too intimate, private and potentially offensive to discuss. [14][15][16][17][18] Furthermore, HPs' reason for not inquiring about sexual function and ED can be attributed to their impression of cardiac patients' lack of readiness and reluctance to bring up the subject. 14,18,19 .…”

Section: Introductionmentioning

confidence: 99%

“…37 Men do not seek treatment or tell HPs about ED when they are not asked or invited to do so by HPs. 10,16,17 Men with cardiovascular diseases lack knowledge and understanding of the links between cardiovascular diseases and ED. 30,38 Studies have indicated that patients with cardiovascular diseases feel that it would be helpful to discuss ED with HPs.…”

Section: Introductionmentioning

confidence: 99%

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Acceptability of Health Professionals’ Address of Sexuality and Erectile Dysfunction - A Qualitative Interview Study with Men in Cardiac Rehabilitation

et al. 2021

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Introduction In the developing phase of the complex health intervention: Physical Activity to reduce Vascular Erectile Dysfunction (PAVED), it is crucial to explore whether men can accept the communicative component regarding information that regular aerobe Physical Activity can reduce Erectile Dysfunction (i-PAVED). This information is provided by health professionals (HPs) in cardiac rehabilitation, where sexuality issues such as erectile dysfunction (ED) are otherwise rarely addressed. Aim To explore how acceptance of cardiac HPs’ address of sexuality, ED, and i-PAVED can be identified in men's narratives. Methods In this descriptive qualitative study, we conducted semi-structured individual interviews with 20 men (range 48-78 years of age) attending municipal cardiac secondary prevention and rehabilitation programmes on their acceptance of HPs’ address of sexuality, ED, and i-PAVED. The Theoretical Framework of Acceptability components (affective attitude, burden, ethicality, intervention coherence, perceived effectiveness, opportunity costs and self-efficacy) and three temporal perspectives (retrospective, concurrent and prospective) were used in the concept-driven first step of a content analysis, which was followed by a thematically data-driven second step. Main Outcome Measures Men anticipated and experiential acceptance was identified in six out of seven components of Theoretical Framework of Acceptability. Results Men acceptance was identified as “expression of interest,” “addressing sexuality,” “attitudes and values,” “understandable and meaningful,” “insights” and “motivation,” whereas no narratives were identified in relation to the component of opportunity costs. Conclusion As an aspect of the development of the complex cardiovascular health care intervention PAVED, this qualitative study showed that men attending cardiac secondary prevention and rehabilitation seemed to prospectively accept the communicative component of PAVED being HPs’ address of sexuality, ED, and i-PAVED, if the HPs are professional, educated and competent in the field of sexual health. Gerbild H, Areskoug-Josefsson K, Larsen CM, et al. Acceptability of Health Professionals’ Address of Sexuality and Erectile Dysfunction - A Qualitative Interview Study with Men in Cardiac Rehabilitation. Sex Med 2021;9:100369.

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“…Erectile dysfunction (ED) often remains overlooked, underdiagnosed and under-treated by health professionals (HPs) [1][2][3][4] who rarely discuss ED with men [5,6]. However, there is increasing recognition of the role of low-risk, lowcost, non-pharmacological and safe lifestyle interventions to lessen the burden of vascular ED [7][8][9].…”

Section: Introductionmentioning

confidence: 99%

Communication about physical activity to reduce vascular erectile dysfunction – A qualitative interview study among men in cardiac rehabilitation

Gerbild

Josefsson

Larsen

et al. 2021

Scandinavian Caring Sciences

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Background Physical activity, a core intervention in cardiac rehabilitation, can reduce vascular erectile dysfunction (ED). ED is a common sensitive problem for men with cardiac diseases, decreasing their quality of life. Cardiac health professionals rarely provide information about ED or its relation to physical activity. Developing health professionals’ communicative component of the complex intervention ‘Physical Activity to reduce Vascular Erectile Dysfunction’ (PAVED) is important. Understanding the receiver needs is essential in designing a complex intervention. Aim To elucidate men's perspectives on cardiac health professionals’ communication about PAVED. Ethical issues An Institutional Data Protection Agency approved the study. Methods An interpretive data‐driven thematic analysis was applied to individual, qualitative semi‐structured interviews with 20 Danish men attending cardiac rehabilitation. Results The men wanted health professionals’ communicating about ED, as it was perceived as a major problem diminishing masculinity and tabooed by health professionals. Men wanted help for self‐help, which may be possible with the aid of competent health professionals’ communication about how to prevent, reduce and cope with ED ‐ including information about PAVED. The men wanted health professionals’ communication about ED in various contexts: general information in groups, sexual counselling for individuals and couples and written material. Study limitations Recruitment was done from a Danish municipality's cardiac rehabilitation, and the transferability of the results may be limited to similar contexts. Conclusion Erectile dysfunction was experienced as a major biopsychosocial problem for the men and their partners. The men had a need for health professionals’ communication about sexuality, ED and information about PAVED as well as about prevention, reduction and management of ED. The men had a need for professional communication about sexual health.

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Sexual Health Communication Between Healthcare Professionals and Adolescents with Chronic Conditions in Western Countries: An Integrative Review

Cited by 20 publications

References 44 publications

Long‐term quality of life after obstetric intensive care unit admission: A cross‐sectional cohort study

Long‐term quality of life after obstetric intensive care unit admission: A cross‐sectional cohort study

Acceptability of Health Professionals’ Address of Sexuality and Erectile Dysfunction - A Qualitative Interview Study with Men in Cardiac Rehabilitation

Communication about physical activity to reduce vascular erectile dysfunction – A qualitative interview study among men in cardiac rehabilitation

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