Sexuality and Reproductive Health Following Spinal Cord Injury: Evidence Report/Technology Assessment, Number 109

BackgroundWomen after a spinal cord injury (SCI), who decide to get pregnant and to become mothers, have special health care service needs. This study aims to identify the perceived service needs of woman with SCI during pregnancy and childbirth in Switzerland and to reconstruct their experiences of healthcare service utilization based on their accounts.MethodsA qualitative content analysis based on focus groups and individual interviews was conducted. 17 mothers with SCI who had given birth following SCI within the past 15 years participated. The data were transcribed verbatim before content analyses were carried out. Primary data was collected from August 2012 to September 2013 at the Swiss Paraplegic Research Centre, Nottwil; the University of Lausanne and at the homes of the participants.ResultsMothers reported a broad spectrum of medical needs, including the need for access to improved integrated care. They also reported difficulties finding providers with knowledge of both paraplegiology (i.e. spinal cord medicine) and gynaecology. Mothers preferred using local health care services and regular birth hospitals, and reported receiving no additional benefit from the services of specialised SCI centres during pregnancy. A pre-existing provider-patient relationship was helpful for optimizing care processes.ConclusionThis study showed that pregnant women with SCI have various perceived healthcare needs and health care service use. Effective programs to improve these women’s access to integrated care during pregnancy and childbirth and policies requiring the provision of specific pregnancy information and pre-birth services are necessary.

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Impact on participation and autonomy questionnaire: internal scale validity of the Swedish version for use in people with spinal cord injury

Lund¹,

Fisher²,

Lexell³

et al. 2007

Acta Derm Venereol

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Sexuality and Reproductive Health Following Spinal Cord Injury: Evidence Report/Technology Assessment, Number 109

Abstract: * "Couples" were counted as a single case pertaining to number of participants enrolled. Fourteen percent of the included studies reported on the enrollment of couples only or couples together with single-case male participants

Cited by 3 publications

References 224 publications

Social and Legal Ramifications of Spine Care: The Challenges

Social and Legal Ramifications of Spine Care: The Challenges

Perceived needs and experiences with healthcare services of women with spinal cord injury during pregnancy and childbirth — a qualitative content analysis of focus groups and individual interviews

Impact on participation and autonomy questionnaire: internal scale validity of the Swedish version for use in people with spinal cord injury

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