Sexuality of People with Spinal Cord Injury: Knowledge, Difficulties and Adaptation

Torriani, Simone Beatriz; Britto, Flavia Costa; Silva, Gelson Aguiar da; Oliveira, Deyse Cardoso de; Carvalho, Zuíla Maria de Figueiredo

doi:10.4236/jbise.2014.76040

Cited by 11 publications

(13 citation statements)

References 4 publications

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“…The physical changes caused by this condition impact on the life of people who have the trauma directly, including the aspect of sexual satisfaction, thus interfering with the psychological and social components as a consequence of an altered self-perception. (1,2) The worldwide incidence of spinal cord trauma is from 15 to 40 new cases per year per one million people. In Brazil, the estimated incidence is 40 new cases per year per one million people, with 80% of the victims being men and 60% between 10 and 30 years old.…”

Section: Introductionmentioning

confidence: 99%

“…(8) To achieve this goal, it is essential that people with spinal cord injury receive guidance on possible changes and adaptation methods, because information may effectively contribute to clarifying doubts and reducing fears regarding the new health condition. (1) There is a lack of educational materials oriented to the sexuality of people with spinal cord injury. It has been observed that studies focused on sex education have been overlooked by those centered at the care to the patients, treatment for the injury, and adaptations to the changes in the acute phase which follows the trauma.…”

Section: Introductionmentioning

confidence: 99%

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Atividade sexual na lesão medular: construção e validação de cartilha educativa

et al. 2018

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Resumo Objetivo Descrever o processo de construção e validação de uma cartilha educativa sobre atividade sexual de pessoas com lesão medular. Métodos Estudo metodológico em quatro etapas: pesquisa documental em blogs, revisão integrativa, construção da cartilha educativa, validação de conteúdo com 11 juízes, validação de aparência técnica com 3 juízes e validação de aparência com 37 pessoas do público-alvo. Considerou-se o Índice de Validade de Conteúdo (IVC) mínimo de 0,80. Resultados A cartilha apresentou IVC global de 0,91 pelos juízes profissionais de saúde; 0,87 pelos juízes designers gráficos; e 0,94 na validação de aparência pelo público-alvo. Entretanto, os juízes e público-alvo propuseram sugestões de melhorias da cartilha, que foram acatadas e modificadas para versão final do material. Conclusão A cartilha apresentou conteúdo e aparência adequados para promoção da atividade sexual saudável e satisfatória da pessoa com lesão medular.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Atividade sexual na lesão medular: construção e validação de cartilha educativa

et al. 2018

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“…In another study discovered that compared their sexual experiences from pre-and post-SCI and described that their sexual ability was decreased as well as quality of sexual life was also decreased [12]. Other study comparing the sexuality of women with SCI before and after injury it was found a significant lowering in sexual desire, impaired lubrication and worsened ability of sexual activity [14].…”

Section: Quality Of Sexual Life (Before and After Injury)mentioning

confidence: 99%

“…In contrast another study revealed that sexual function and SCI shows that sexual pleasure are possible for women having spinal cord injury [9]. Sexuality is expressed in different ways, namely by desires, feelings, thoughts, emotions, attitudes, and behaviors, influenced by cultural context and historical moments [12].…”

Section: Happiness Of Sexual Lifementioning

confidence: 99%

Sexual Knowledge and Experience of Women with Spinal Cord Injury in the Community Level in Bangladesh

Akter¹,

Rahman²,

Haque³

et al. 2019

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Sexual knowledge is an important part of every life and it is necessary for clinicians to have a specific format in which to address sexual issues with their patients. A systematic approach to working with female spinal cord injury (SCI) patients need to present their sexual knowledge and experience. To explore the sexual knowledge and experience of women with spinal cord injury in the community level. The researcher conducted a mixed method research. In order to assess sexuality a standard questionnaire was developed on the basis of the clinical experience and review of relevant literature. The items of the questionnaire were selected keeping in mind the complex culture and principles of our society. VAS scale and likert scale was used to measure 9 close questions related to sexual knowledge and experience. Another 2 open ended question explored their perception how they maintain good relation and what they want to know from the rehabilitation program. Paired 't' test was used for identify the quality of sexual life. The total participant was 30. Mean ages were 30.73 ± 7.47 years. Mean duration of injury was 7.733 years. Of the participants 17 (56.7%) live in rural and 13 (43.3%) live in urban. The participant 23 (76.7%) was married before injury, 7 (23.3%) was married after injury. The study result was who stay in urban area their sexual happiness means score (54.384) was more than who stay in rural area (35.47). Married after injury (7 women) their mean sexual happiness score (72%) was more than who was married (23 women) before injury (mean score 33.82) and Significantly difference (P<0.05) quality of sexual life before and after injury. 50% of participant indicated that support of husband was not much and not at all. Advice from the participants for maintaining good relationship, financial independence, self-confidence, copes with the present situation is important. Participants want to know proper guidance after operation and different individual problem-solving technique in the rehabilitation education program. This study present important information with regards for improving sexual rehabilitation services to women with SCI.

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“…One of these sexual rights is tied to the basic human right to attain education and information [7,8]. Since learning how to cope with the long-term consequences of an SCI usually starts during inpatient rehabilitation, nurses could play an important role in fulfilling this right by providing patient education and information due to the intimate contact they have with their patients [9,10].…”

Section: Introductionmentioning

confidence: 99%

Sexuality as part of rehabilitation? A qualitative study on the perceptions of rehabilitation nurses on discussing patient sexuality during clinical rehabilitation

Pascual

Wighman

Littooij

et al. 2019

Disability and Rehabilitation

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Introduction: Spinal cord injury may seriously affect sexual health and sexuality, which can lead to lower self-esteem, social isolation, lower quality of life, and an increased risk of depression. Nurses play an extensive role in providing patient education. However, a gap between the patients' need for information and the lack of information provided by nurses still exists. Therefore, knowledge about barriers and facilitators regarding discussing patient sexuality is necessary. Methods: Semi-structured interviews were conducted with 25 nurses working in Spinal Cord Injury rehabilitation in one clinic in the Netherlands. The following themes were discussed during the interviews: (1) attitude, (2) social factors, (3) affect, (4) habits and (5) facilitating conditions. Results: Addressing patient sexuality was difficult due to the nurses' attitude and their environment. Sexuality was considered important but respondents were reserved to discuss the topic due to taboo, lack of knowledge, and common preconceptions. Participants expressed the need for education, a clear job description, time and privacy. Conclusion: Nurses consider discussing patient sexuality as important but are hindered due to multiple factors. Organizational efforts targeted at knowledge expansion are needed to break the taboo and remove preconceptions. Nurses should provide opportunities to discuss the subject to intercept sexualityrelated problems. ä IMPLICATIONS FOR REHABILITATION The specific tasks of each profession within the multidisciplinary team regarding patient sexuality should be discussed, agreed upon and protocolized. Adding a sexologist in the multidisciplinary team may be of benefit as well as structurally incorporating an appointment with the sexologist within the patients' schedule. If a sexologist is not available, opt for a nurse practitioner who is specializedor wants to further specializein sexual health and sexuality. In order to create more awareness on patient sexuality within the nursing team, a working group can be arranged to give special attention to discussing the subject by organizing trainings and coaching fellow nurses to address sexuality. Create a safe and private environment for the patient when addressing sexuality. Educational interventions to enhance the nurses' knowledge in order to make nurses feel capable to provide basic sexuality-related patient education.

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Sexuality of People with Spinal Cord Injury: Knowledge, Difficulties and Adaptation

Cited by 11 publications

References 4 publications

Atividade sexual na lesão medular: construção e validação de cartilha educativa

Atividade sexual na lesão medular: construção e validação de cartilha educativa

Sexual Knowledge and Experience of Women with Spinal Cord Injury in the Community Level in Bangladesh

Sexuality as part of rehabilitation? A qualitative study on the perceptions of rehabilitation nurses on discussing patient sexuality during clinical rehabilitation

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