Shared Decision Making Between Patients and Healthcare Providers and its Association with Favorable Health Outcomes Among People Living with HIV

Abstract

We assessed patient-provider communication in HIV care; data were from the 2019 Positive Perspectives Survey of people living with HIV (PLHIV) from 25 countries (n = 2389). A significantly greater proportion of recently diagnosed individuals were interested in being involved when it comes to decisions about their HIV treatment compared with any other group (72.8% [399/548], 63.1% [576/913], and 62.6% [581/928], diagnosis year: 2017–2019, 2010–2016, and pre-2010 respectively) but reported less understanding of their treatment compared with those reporting the longest duration (66.8% [366/548], 68.6% [626/913], and 77.3% [717/928], respectively). One-third of PLHIV with salient treatment-related concerns were uncomfortable discussing with providers. Of participants who felt that their HIV medication limited their life but did not discuss their concerns with their provider (n = 203), top reasons for not discussing were: perception nothing could be done (49.3% [100/203]), provider never brought up the issue (37.9% [77/203]), and not wanting to appear difficult (30.5% [62/203]). To continue to identify and address unmet treatment needs among PLHIV, providers need to ensure that there is ongoing open dialogue. Electronic supplementary material The online version of this article (10.1007/s10461-020-02973-4) contains supplementary material, which is available to authorized users.

Differences in HIV treatment experiences, perceptions, and behaviors by gender and sexual orientation in 25 middle-income and high-income countries: Findings from the 2019 Positive Perspectives Survey

“…To fill this gap in knowledge, we performed comparative analyses among MSM, MSW, and women, using self-reported data for 2389 PLHIV in 25 middle-and high-income countries. We have previously reported some findings from these data in relation to polypharmacy, treatment adherence, patientprovider engagement, and aspirations towards improved HIV treatment [9][10][11][12][13] . In this work, however, we explore some of these themes from the perspective of disparities and health equity.…”

Examining the Impact of the Golden Compass Clinical Care Program for Older People with HIV: A Qualitative Study

“…While research on patient-provider relationships among older adults with HIV is lacking, studies of older adults enrolled in Medicare have demonstrated that higher quality patient-provider relationships are associated with patients being more active in healthcare decisions [ 29 ]. Higher engagement in health care decision making—engagement that is enhanced by Golden Compass —has been associated with better quality of life indicators, including mental, physical, cognitive, and behavioral outcomes, among people with HIV [ 30 ].…”

Treatment challenges and health conditions among people living with HIV with or without substance use disorder in the Russian Federation

“…We analyzed data for 150 PLHIV from Russia who participated in the 2019 25-country Positive Perspectives Studya self-reported survey of PLHIV aged ≥ 18 years on ART (de Los Rios et al, 2020;Okoli et al, 2021a;Okoli et al, 2021). Sample size was estimated based on desired precision of estimates using a margin of error of about 10%.…”