Shared decision-making in advanced kidney disease: a scoping review protocol

Engels, Noel; Graav, Gretchen de; Nat, Paul van der; Dorpel, Marinus van den; Bos, Willem Jan W.; Stiggelbout, Anne M.

doi:10.1136/bmjopen-2019-034142

Cited by 19 publications

(23 citation statements)

References 59 publications

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“…There is currently an increasing interest in using patient decision aids to support patients with CKD to make treatment modality decisions. There is some ongoing research that will offer more information about this topic [ 34 , 35 ]. We did not find any high-quality CPGs that included recommendations about interventions targeting both patients and healthcare professionals.…”

Section: Discussionmentioning

confidence: 99%

Recommendations of high-quality clinical practice guidelines related to the process of starting dialysis: A systematic review

Salas-Gama

Onakpoya²,

Daza³

et al. 2022

PLoS ONE

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Background The optimal time for initiation of dialysis and which modality to choose as the starting therapy is currently unclear. This systematic review aimed to assess the recommendations across high-quality clinical practice guidelines (CPGs) related to the start of dialysis. Methods We systematically searched MEDLINE, EMBASE, Web of Science, LILACS, and databases of organisations that develop CPGs between September 2008 to August 2021 for CPGs that addressed recommendations on the timing of initiation of dialysis, selection of dialysis modality, and interventions to support the decision-making process to select a dialysis modality. We used the Appraisal of Guidelines for Research and Evaluation instrument to assess the methodological quality of the CPGs and included only high-quality CPGs. This study is registered in PROSPERO, number CRD42018110325. Results We included 12 high-quality CPGs. Six CPGs addressed recommendations related to the timing of initiating dialysis, and all agreed on starting dialysis in the presence of symptoms or signs. Six CPGs addressed recommendations related to the selection of modality but varied greatly in their content. Nine CPGs addressed recommendations related to interventions to support the decision-making process. Eight CPGs agreed on recommended educational programs that include information about dialysis options. One CPG considered using patient decision aids a strong recommendation. Limitations We could have missed potentially relevant guidelines since we limited our search to CPGs published from 2008, and we set up a cut-off point of 60% in domains of the rigour of development and editorial independence. Conclusion High-quality CPGs related to the process of starting dialysis were consistent in initiating dialysis in the presence of symptoms or signs and offering patients education at the point of decision-making. There was variability in how CPGs addressed the issue of dialysis modality selection. CPGs should improve strategies on putting recommendations into practice and the quality of evidence to aid decision-making for patients. Registration The protocol of this systematic review has been registered in the international prospective register of systematic reviews (PROSPERO) under the registration number: CRD CRD42018110325. https://clinicaltrials.gov/ct2/show/CRD42018110325.

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Section: Discussionmentioning

confidence: 99%

Recommendations of high-quality clinical practice guidelines related to the process of starting dialysis: A systematic review

Salas-Gama

Onakpoya²,

Daza³

et al. 2022

PLoS ONE

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“…This documentation is highly retrievable and credible [ 33 , 34 ]. A similar methodology has been used in other reviews [ 35 , 36 ].…”

Section: Methodsmentioning

confidence: 99%

Global evidence on the rapid adoption of telemedicine in primary care during the first 2 years of the COVID-19 pandemic: a scoping review protocol

et al. 2022

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Background Before the declaration of the COVID-19 pandemic in March 2020, primary care in most countries relied on face-to-face consultations, with relatively limited use of telemedicine. Lockdowns and social distancing measures during the early stages of the pandemic led to rapid, widely spread telemedicine adoption in healthcare settings. The rapid uptake that occurred following the onset of these pandemic-induced measures in countries such as the UK, Canada and New Zealand prompts questions around the drivers, extent and sustainability of this transformation in clinical practice at the global level, as the research in this area is still emerging. The purpose of this scoping review is to explore the global evidence surrounding the rapid adoption of telemedicine in primary care settings during the first 2 years of the COVID-19 pandemic through three lenses: patient experience, health inequalities and patient-clinician trust, with the purpose of identifying elements contributing to the sustainability of this innovation. Methods A draft protocol was tested through an initial search on Ovid Medline, Web of Science and Google Scholar with additional searches on the Cochrane Database. This informed the final selection of terms which will be used to search Ovid, Web of Science, Google Scholar, PROSPERO, Cochrane Library and others, filtering for studies from the pandemic declaration onwards. Additional grey literature reports will be sourced through simplified searches on Google in widely spoken languages. Duplicates will be removed by screening titles. Abstracts and grey literature text extracts will be screened based on pre-set eligibility criteria by two researchers. Abstracts (and extracts in the case of grey literature) will be mapped against the domains of the Non-adoption, Abandonment, and challenges to Scale-up, Spread and Sustainability (NASSS) framework by two researchers. Data will be presented in table format. Discussion This review will map the current literature to identify current gaps in evidence related to the adoption of telemedicine after the declaration of the pandemic in March 2020. The use of simplified searches in the several spoken languages in the world is aimed at capturing more immediate non-academic reflections and experiences on this major service change at a global level. Systematic review registration The study has been registered on Open Science Framework and can be accessed through the following URL: https://osf.io/4z5ut/

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“…First, a multidisciplinary steering group of key stakeholders was assembled, after which the steering group determined the target audience, scope, purpose, and general format of the PtDA. The steering group subsequently used the results of a previously performed scoping review [ 13 ] to guide an exploratory evidence review, and to determine how the PtDA could be integrated in established care pathways without interfering with routine procedures.…”

Section: Methodsmentioning

confidence: 99%

“…Patient decision aids are evidence-based tools that: 1) address a specific health-related decision, 2) provide patients with information on all of their options, and 3) guide them in decision-making through values-clarification and preferences-elicitation [ 10 – 12 ]. We previously identified 29 PtDAs developed to support patients with advanced CKD in treatment modality decision-making [ 13 ]. From the 27 PtDAs selected for detailed assessment, just about half qualified as PtDAs according to the International Patient Decision Aids Standards (IPDAS) collaboration minimum standards criteria [ 14 ].…”

Section: Introductionmentioning

confidence: 99%

Development of an online patient decision aid for kidney failure treatment modality decisions

et al. 2022

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Background Patient decision aids (PtDAs) support patients and clinicians in shared decision-making (SDM). Real-world outcome information may improve patients’ risk perception, and help patients make decisions congruent with their expectations and values. Our aim was to develop an online PtDA to support kidney failure treatment modality decision-making, that: 1) provides patients with real-world outcome information, and 2) facilitates SDM in clinical practice. Methods The International Patient Decision Aids Standards (IPDAS) development process model was complemented with a user-centred and convergent mixed-methods approach. Rapid prototyping was used to develop the PtDA with a multidisciplinary steering group in an iterative process of co-creation. The results of an exploratory evidence review and a needs-assessment among patients, caregivers, and clinicians were used to develop the PtDA. Seven Dutch teaching hospitals and two national Dutch outcome registries provided real-world data on selected outcomes for all kidney failure treatment modalities. Alpha and beta testing were performed to assess the prototype and finalise development. An implementation strategy was developed to guide implementation of the PtDA in clinical practice. Results The ‘Kidney Failure Decision Aid’ consists of three components designed to help patients and clinicians engage in SDM: 1) a paper hand-out sheet, 2) an interactive website, and 3) a personal summary sheet. A ‘patients-like-me’ infographic was developed to visualise survival probabilities for each treatment modality on the website. Other treatment outcomes were incorporated as event rates (e.g. hospitalisation rates) or explained in text (e.g. the flexibility of each treatment modality). No major revisions were needed after alpha and beta testing. During beta testing, some patients ignored the survival probabilities because they considered these too confronting. Nonetheless, patients agreed that every patient has the right to choose whether they want to view this information. Patients and clinicians believed that the PtDA would help patients make informed decisions, and that it would support values- and preferences-based decision-making. Implementation of the PtDA has started in October 2020. Conclusions The ‘Kidney Failure Decision Aid’ was designed to facilitate SDM in clinical practice and contains real-world outcome information on all kidney failure treatment modalities. It is currently being investigated for its effects on SDM in a clinical trial.

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Shared decision-making in advanced kidney disease: a scoping review protocol

Cited by 19 publications

References 59 publications

Recommendations of high-quality clinical practice guidelines related to the process of starting dialysis: A systematic review

Recommendations of high-quality clinical practice guidelines related to the process of starting dialysis: A systematic review

Global evidence on the rapid adoption of telemedicine in primary care during the first 2 years of the COVID-19 pandemic: a scoping review protocol

Development of an online patient decision aid for kidney failure treatment modality decisions

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