Shared decision making (SDM), a collaborative process whereby patients and professionals make health care decisions together, is a cornerstone of ethical patient care. The patient-clinician communication necessary to achieve SDM depends on many factors, not the least of which is a shared language (sometimes with the aid of a medical interpreter). However, even when a patient and clinician are speaking the same mother tongue, the use of medical jargon can pose a large and unnecessary barrier. This article discusses how health care professionals can use "universal health literacy precautions" as a legal, practical, and ethical means to enhance SDM and improve health care outcomes.
Case of Language Barrier's Impact on Patient AutonomyPatient X, a 56-year-old construction worker, visits the emergency department (ED) with pain and swelling in his right calf. He can walk on his leg with a limp and considers the pain to be bearable. He would prefer to just "power through" whatever is causing the discomfort. This is his first ED visit. He is here to placate his wife, who was alarmed at the progression of the swelling over the last 24 hours.A physical exam reveals a slightly elevated temperature of 99 degrees and blood pressure of 150/110. Blood cultures, a creatine phosphokinase (CPK) test, and a Creactive protein (CRP) test are ordered. When asked about any previous trauma to his leg, Patient X is confused. Has he had "trauma"? He considers himself a calm person, not easily alarmed or "traumatized." He asks the physician (Dr. Y) why they need his blood and is told that the cultures may reveal the agent or pathogen responsible for his condition. Patient X is becoming alarmed. To him, an "agent" sounds like a person. A "pathogen" sounds like a "psychopath" but it can't mean that, except the doctor said something about the "culture." Dr. Y is running behind; it will be at least two hours before she can return with the bloodwork results to confirm her diagnosis, prescribe appropriately, and either discharge or admit Patient X. This leaves Patient X with two hours to worry and try to explain the situation to his wife over the phone.