Shared decision-making preferences in mental health: does age matter? A systematic review

Burns, Lauren; Silva, Ana da; John, Ann

doi:10.1080/09638237.2020.1793124

Cited by 7 publications

(6 citation statements)

References 50 publications

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“…Previous investigation shows that most patients with mental disorders want to participate in the decisions about their treatment [ 45 – 47 ]. However, patient participation in research and development of PtDAs is almost absent in GAD.…”

Section: Discussionmentioning

confidence: 99%

Decision aids linked to the recommendations in clinical practice guidelines: results of the acceptability of a decision aid for patients with generalized anxiety disorder

Ramos‐García

Perestelo-Pérez

Rivero-Santana

et al. 2022

BMC Med Inform Decis Mak

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Background Generalized anxiety disorder (GAD) is one of the most prevalent mental health problems. Patients with GAD have unmet needs related to the information received about their disorder, its treatments and their participation in the decision-making process. The aim of this study is to develop and assess the acceptability of a patient decision aid (PtDA) for patients with GAD. Method The PtDA was developed following the International Patient Decision Aid Standards. The recommendations of the Spanish clinical practice guideline (CPG) for patients with GAD were used as the basis. The first prototype was developed by an expert committee, further improvements were made with patients (n = 2), clinical experts (n = 13) and the project management group (n = 7). The acceptability of this second draft was assessed by patients non-involved in the previous phases (n = 11). Results The final PtDA version included a brief description of GAD and its treatments. Most participants agreed that the PtDA was easy to use, visually appealing and useful. At least half of the participants learned new things about treatments and adverse effects. Conclusions A PtDA was developed for patients with GAD based on recommendations from the Spanish CPG. It was improved and accepted by patients and clinical experts involved. An evaluation of its effectiveness on the shared decision-making process during the clinical encounter is planned.

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Section: Discussionmentioning

confidence: 99%

Decision aids linked to the recommendations in clinical practice guidelines: results of the acceptability of a decision aid for patients with generalized anxiety disorder

Ramos‐García

Perestelo-Pérez

Rivero-Santana

et al. 2022

BMC Med Inform Decis Mak

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“…Although extant research on information preferences is limited, findings indicate that adults with mental health problems and their families have many information needs that remain unaddressed (Buckland, 1994; Cleary et al ., 2005; Drapalski et al ., 2008; Fossey et al ., 2012; Burns et al ., 2021). The unmet information needs of older adults include information about mental health problems, outcomes of mental health problems, treatment options and individual treatment progress (Fossey et al ., 2012).…”

Section: Introductionmentioning

confidence: 99%

“…Inpatient and outpatient young- to middle-aged adults with mental health problems, as well as their care-givers, desire enhanced information, preferring knowledge on: steps to take if feeling unwell; information about medication treatment; knowledge about the ways in which others cope with similar mental health problems; and information about mental health services in the community (Cleary et al ., 2005). A recent systematic review exploring shared decision-making preferences in mental health highlighted older adults’ desire for involvement in mental health-related treatment decisions (Burns et al ., 2021). Conclusions prompted a call for more ‘high-quality research regarding the shared decision-making preferences and outcomes of older adults with mental ill-health’ (Burns et al ., 2021: 634).…”

Section: Introductionmentioning

confidence: 99%

“…A recent systematic review exploring shared decision-making preferences in mental health highlighted older adults’ desire for involvement in mental health-related treatment decisions (Burns et al ., 2021). Conclusions prompted a call for more ‘high-quality research regarding the shared decision-making preferences and outcomes of older adults with mental ill-health’ (Burns et al ., 2021: 634).…”

Section: Introductionmentioning

confidence: 99%

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Older adults’ mental health information preferences: a call for more balanced information to empower older adults’ mental health help-seeking

et al. 2022

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A small minority of older adults seek psychological help when they need it. Barriers to mental health service use among older adults include low mental health literacy and reduced opportunities for shared decision-making in health care. There is a gap in the literature examining the mental health information preferences of older adults. The objectives of this study were to describe the information preferences and predictors of preferences among older adults. In total, 229 adults aged 50 years and older in central Canada responded to a questionnaire investigating socio-demographic, psycho-social and health-related characteristics, as well as mental health information preferences. Descriptive analysis quantified participants’ ratings of information preferences and hierarchical linear regression analysis determined predictors of their preferences. Older adults rated all mental health content items as very important. Most participants preferred detailed information (two to six pages) on all treatment options (psychological, pharmacological, combined and self-help). Older adults significantly preferred discussion with a heath-care provider and written information, in comparison to other formats. Older adults also significantly preferred to consult family, friends and heath-care professionals over other sources. Socio-demographic and psycho-social characteristics accounted for some of the variance in predicting older adults’ information preferences. Findings highlight older adults’ desire to be involved in decisions concerning mental health supports. Providing balanced information concerning mental health treatment may increase empowerment in mental health help-seeking.

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“…Interventions based on SDM, such as Patient Decision Aids (PtDAs), have shown to improve patients’ knowledge about available treatments and its benefits/risks, decisional conflict, concordance between patients’ preferences and choices, satisfaction and other variables related to the decisional process [ 11 ]. Different studies have observed that mental health patients, including those with AD, are willing to participate and become involved in the decisions about their care, a desire that is often not satisfied [ 12 , 13 , 14 ]. Unfortunately, the number of interventions designed to promote SDM in the field of mental health disorders, and specifically GAD, are still scarce [ 15 , 16 ].…”

Section: Introductionmentioning

confidence: 99%

Shared Decision-Making and Information Needs among People with Generalized Anxiety Disorder

Ramos‐García

Rivero‐Santana

Duarte-Díaz

et al. 2021

EJIHPE

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Shared decision making (SDM) aims to involve patients in the decisions about their care, considering their preferences, values and concerns about the different treatment options. However, research shows that people with mental health problems have considerable unmet information needs about their condition. This community-based cross-sectional study explores the SDM process and information needs among people with Generalized Anxiety Disorder (GAD), as an initial step in the design and development of a Patient Decision Aid for this population. Seventy participants completed an online survey with the Control Preference Scale, and questions about the perceived difficulty of past treatment decisions and the use of the Internet for searching for GAD-related information. Most participants preferred an active (42.9%) or collaborative role (41.4%) in the SDM process, and 53% did not perceive their preferred role. Information provided by healthcare professionals was considered insufficient by 28% of the sample, and over 30% reported using the Internet to look for GAD-related information at least once a week or more. The most relevant GAD-related information needs were general information (71.4%), information on self-help groups (65.7%), recommendations on how to face this disorder (61.4%) and information on treatment options (50%). Exploratory analyses showed that patients who perceived an active participation were more likely to search for information frequently (p = 0.038), and those who felt more involved than desired tended to search for more themes (p = 0.049). In summary, the study showed that a considerable percentage of GAD patients have unmet needs related to decision-making participation and information.

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Shared decision-making preferences in mental health: does age matter? A systematic review

Cited by 7 publications

References 50 publications

Decision aids linked to the recommendations in clinical practice guidelines: results of the acceptability of a decision aid for patients with generalized anxiety disorder

Decision aids linked to the recommendations in clinical practice guidelines: results of the acceptability of a decision aid for patients with generalized anxiety disorder

Older adults’ mental health information preferences: a call for more balanced information to empower older adults’ mental health help-seeking

Shared Decision-Making and Information Needs among People with Generalized Anxiety Disorder

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