Sibling Relationship Interview and Sibling Relationship Interview for Youth with Chronic Pain

Gorodzinsky, Ayala Y.; Davies, W. Hobart; Tran, Susan T.; Medrano, Gustavo R.; Bernacki, Jessica M.; Burks, Lisa M.; Khan, Kimberly Anderson; Hainsworth, Keri R.; Weisman, Steven J.

doi:10.1037/t33491-000

Cited by 1 publication

(3 citation statements)

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“…asthma) (47,61). Of these, we were unable to determine which themes were derived from our target sample in four studies (46,50,52,61), however, two of these reported no evidence of differences across diagnostic groups (46,50) suggesting that adolescents share many of the same experiences and concerns regardless of the type of illness.…”

Section: Limitationsmentioning

confidence: 94%

“…During times of pain worsening, adolescents describe difficulties engaging in normal social experiences such as sports and going to friends' houses (32,34,40,50,52,53), and report impacts on school attendance, concentration and their engagement in school activities (32)(33)(34)38,45,49). Being able to participate in education and leisure activities were seen as features of normal adolescence, and an inability to do so may lead to feelings of being different, social isolation, and difficulty building and maintaining an extensive social network (45,54-57).…”

Section: Loss Of Social Lifementioning

confidence: 99%

“…Third, the review included five studies with pain syndromes other than JIA and CIPS (e.g. headache) (34,46,50,52,59) and two studies which included chronic conditions not specially related to pain (e.g. asthma) (47,61).…”

Section: Limitationsmentioning

confidence: 99%

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Adolescents’ experiences of fluctuating pain in musculoskeletal disorders: A qualitative systematic review and thematic synthesis

Khanom

McDonagh

Briggs

et al. 2020

Preprint

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Objectives Adolescents with chronic musculoskeletal pain experience daily fluctuations in pain. Although not all fluctuations are bothersome, pain flares are a distinct type of symptom fluctuation with greater impact. Since literature on the experience of pain flares is non-existent, the aim of this review was to (i) synthesise the qualitative literature on adolescents’ experiences of fluctuating pain in musculoskeletal disorders in order to (ii) identify knowledge gaps to inform future research on pain flares. Methods Electronic databases (CINAHL, MEDLINE, EMBASE, PsycINFO), grey literature and reference lists were searched from inception to June 2018 for qualitative studies reporting adolescents’ experiences of pain. Comprehensiveness of reporting was assessed using the Consolidated Criteria for Reporting Qualitative Health Research. Studies were analysed using thematic synthesis. Results Of the 3787 records identified, 32 studies (n= 536) were included. Principal findings were synthesised under three themes: 1) symptom experience, 2) disruption and loss, and 3) regaining control. Each theme was experienced differently depending on adolescents’ characteristics such as their developmental status, pain condition, and the duration of the pain experience. Conclusions Adolescents with chronic musculoskeletal pain live with a daily background level of symptoms which frequently fluctuate and are associated with functional and emotional difficulties. It was not clear whether these symptoms and challenges were experienced as part of ‘typical’ fluctuations in pain, or whether they reflect symptom exacerbations classified as ‘flares’. Further research is needed to explore the frequency and characteristics of pain flares, and how they differ from their typical fluctuations in pain.

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