Sick leave among parents of children with cancer – a national cohort study

Hjelmstedt, Sofia; Norberg, Annika Lindahl; Montgomery, Scott; Myrberg, Ida Hed; Hovén, Emma

doi:10.1080/0284186x.2016.1275780

Cited by 15 publications

(30 citation statements)

References 17 publications

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“…Thus, even after treatment completion, parents, in particular mothers, are at an increased risk of fatigue symptoms, posttraumatic stress, and psychiatric disorders . Psychological distress and feelings of uncertainty, helplessness, and loneliness may compromise health and increase disease risk . Limited participation in work during periods spent caring for children also may lead to the loss of personal satisfaction, social networks, and possibly respite from home and care responsibilities, which also may damage health …”

Section: Discussionmentioning

confidence: 99%

“…30 Psychological distress and feelings of uncertainty, helplessness, and loneliness 31 may compromise health and increase disease risk. 32,33 Limited participation in work during periods spent caring for children also may lead to the loss of personal satisfaction, social networks, and possibly respite from home and care responsibilities, which also may damage health. 34 The income derived from work and total income were found to be persistently lower for the mothers of children with cancer compared with reference mothers after approximately 3 years, but such differences were not observed in fathers.…”

Section: Income and Social Benefits Trajectories/hiyoshi Et Almentioning

confidence: 99%

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Trajectories of income and social benefits for mothers and fathers of children with cancer: A national cohort study in Sweden

Hiyoshi

Montgomery

Bottai

et al. 2018

Cancer

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Social benefits appeared to ease the financial burden during the years around a cancer diagnosis. However, mothers experienced persistently lower income after benefits diminished. Experiences differed by single-parent versus dual-parent households, the survival of the child with cancer, and other relevant characteristics. Further investigation is needed for potential long-term consequences for mothers, including their career and future pension in retirement. Cancer 2018;124:1492-500. © 2018 American Cancer Society.

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Section: Discussionmentioning

confidence: 99%

Section: Income and Social Benefits Trajectories/hiyoshi Et Almentioning

confidence: 99%

Trajectories of income and social benefits for mothers and fathers of children with cancer: A national cohort study in Sweden

Hiyoshi

Montgomery

Bottai

et al. 2018

Cancer

Self Cite

View full text Add to dashboard Cite

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“…We identified 3359 articles through literature searches and included 35 articles, reporting on 29 individual studies (Figure ). Thirteen (37%) studies were conducted in Europe, 16 (46%) in North America/Australia, and six (17%) in Asia/Africa (Table ).…”

Section: Resultsmentioning

confidence: 99%

“…Two US studies reported that more than 50% of parents used individual fundraising as a financial coping strategy . In Sweden, parents of children with cancer were more likely to rely on sickness or childcare benefits than comparison parents . Sick leave was more often used by mothers than fathers .…”

Section: Resultsmentioning

confidence: 99%

“…44,47 In Sweden, parents of children with cancer were more likely to rely on sickness or childcare benefits than comparison parents. 26,27 Sick leave was more often used by mothers than fathers. 26,27,31,36 Findings from longitudinal studies suggest that the uptake of such benefits is highest in the first months after diagnosis 24,26,27,31,38 and decreases in early survivorship.…”

Section: Financial Assistancementioning

confidence: 99%

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The impact of childhood cancer on parents' socio‐economic situation—A systematic review

et al. 2019

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Objective Taking care of children diagnosed with cancer may have considerable consequences on parents' socio‐economic situation. Our systematic review aimed to evaluate and synthesise the evidence on the impact of childhood cancer on parents' socio‐economic situation. Methods Systematic literature searches for articles published between January 2000 and January 2019 were performed in PubMed, Scopus, and PsycINFO. Findings of eligible articles were narratively synthesised and quality appraised. Results Our systematic review included 35 eligible articles. Childhood cancer had a substantial impact on parents' socio‐economic situation across all studies. This impact varied largely by geographical region. We observed a high prevalence of disruptions in parental employment such as job quitting or job loss, particularly among mothers. The associated income losses further contributed to families' perceived financial burden in addition to increased cancer‐related expenses. Adverse socio‐economic consequences were most pronounced shortly after diagnosis, however, persisted into early survivorship for certain groups of parents. We identified families of children diagnosed with haematological cancers, younger age at diagnosis, and lower parental socio‐economic position to be at particular risk for adverse socio‐economic consequences. Conclusions Following the child's cancer diagnosis, parents experience a broad range of adverse socio‐economic consequences. Further effort is needed to systematically implement an assessment of financial hardship in paediatric oncology together with appropriate support services along the cancer trajectory.

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Changes in parents' psychotropic medication use following child's cancer diagnosis: A fixed‐effects register‐study in Finland

et al. 2022

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Background Symptoms of depression and anxiety are elevated among parents of children with cancer. However, knowledge of parents' psychotropic medication use following child's cancer diagnosis is scarce. Methods We use longitudinal Finnish register data on 3266 mothers and 2687 fathers whose child (aged 0–19) was diagnosed with cancer during 2000–2016. We record mothers' and fathers' psychotropic medication use (at least one annual purchase of anxiolytics, hypnotics, sedatives, or antidepressants) 5 years before and after the child's diagnosis and assess within‐individual changes in medication use by time since diagnosis, cancer type, child's age, presence of siblings, and parent's living arrangements and education using linear probability models with the individual fixed‐effects estimator. The fixed‐effects models compare each parent's annual probability of psychotropic medication use after diagnosis to their annual probability of medication use during the 5‐year period before the diagnosis. Results Psychotropic medication use was more common among mothers than fathers already before the child's diagnosis, 11.2% versus 7.3%. Immediately after diagnosis, psychotropic medication use increased by 6.0 (95% CI 4.8–7.2) percentage points among mothers and by 3.2 (CI 2.1–4.2) percentage points among fathers. Among fathers, medication use returned to pre‐diagnosis level by the second year, except among those whose child was diagnosed with acute lymphoblastic leukemia or lymphoblastic lymphoma. Among mothers of children with a central nervous system cancer, medication use remained persistently elevated during the 5‐year follow‐up. For mothers with other under‐aged children or whose diagnosed child was younger than 10 years, the return to pre‐diagnosis level was also slow. Conclusions Having a child with cancer clearly increases parents' psychotropic medication use. The increase is smaller and more short‐lived among fathers, but among mothers its duration depends on both cancer type and family characteristics. Our results suggest that an increased care burden poses particular strain to the long‐term mental well‐being of mothers.

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Sick leave among parents of children with cancer – a national cohort study

Cited by 15 publications

References 17 publications

Trajectories of income and social benefits for mothers and fathers of children with cancer: A national cohort study in Sweden

Trajectories of income and social benefits for mothers and fathers of children with cancer: A national cohort study in Sweden

The impact of childhood cancer on parents' socio‐economic situation—A systematic review

Changes in parents' psychotropic medication use following child's cancer diagnosis: A fixed‐effects register‐study in Finland

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