SickKids-Caribbean Initiative: collaborating to improve the diagnosis and care of children with cancer and serious blood disorders in the Caribbean

Reece-Mills, Michelle; Alexis, Cheryl; Allen, Upton; Bodkyn, Curt; Bird, Jonathan M.; Boyle, R.; Young, Stephanie; Fleming‐Carroll, Bonnie; Gibson, TN; Gupta, Sumit; Ingram-Martin, P.; Knight‐Madden, Jennifer; Mclean-Salmon, Sharon; Manley, Marc W.; Odame, Isaac; Read, Stanley; Quee-Brown, Corrine Sin; Smith, Brien; Thame, M; Warner, Helen V.; Wharfe, Gilian; Williams, D.; Blanchette, V.

doi:10.1182/bloodadvances.2017gs99978

Cited by 3 publications

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“…Given the discordance between the number of trained health care professionals and patient load in the partner Caribbean countries, SCI has offered multiple forms of education and training ( 5 ). These include formal training for pediatric hematology and oncology fellows, generation and delivery of a specialized nursing curriculum focused on pediatric hematology and oncology, different informal training opportunities (e.g.…”

Section: Key Activitiesmentioning

confidence: 99%

The SickKids Caribbean Initiative to improve care for children with cancer and blood disorders

Reece-Mills,

Baxter

2023

Revista Panamericana De Salud Pública

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To improve pediatric hematology and oncology outcomes, there is a recognized potential for partnerships between low- and high-resource institutions within health care systems. The SickKids Caribbean Initiative is a partnership between health care professionals at the Hospital for Sick Children in Toronto, Canada, and seven Caribbean institutions across six countries (Bahamas, Barbados, Jamaica, Saint Lucia, Saint Vincent and the Grenadines, and Trinidad and Tobago). The primary aim of the SickKids Caribbean Initiative has been to improve the outcomes and the quality of life of children in the Caribbean aged <18 years who have cancer and blood disorders. This article describes five key activities undertaken within the SickKids Caribbean Initiative, including providing education and training, assisting with case consultations and diagnostic services, developing local oncology databases, engaging in advocacy and ensuring stakeholder engagement, and coordinating administration and project management.

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Section: Key Activitiesmentioning

confidence: 99%

The SickKids Caribbean Initiative to improve care for children with cancer and blood disorders

Reece-Mills,

Baxter

2023

Revista Panamericana De Salud Pública

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“…The SickKids-Caribbean Initiative, founded in 2013 by the Hospital for Sick Children in partnership with Caribbean institutions, conducted a retrospective study of children treated from 2011 to 2015 and found a 2-year overall survival of 55%, 26 which led to implementation of a standardized protocol for the treatment of ALL. 80,81 There are barriers to clinical trial implementation across the region, including limited infrastructure, treatment abandonment, and lack of national childhood cancer plans. 82 Middle East.…”

Section: Pediatric Oncology Clinical Trial Collaborative Groups By Re...mentioning

confidence: 99%

Mapping Pediatric Oncology Clinical Trial Collaborative Groups on the Global Stage

Major

Palese

Ermis

et al. 2022

JCO Global Oncology

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PURPOSE The global pediatric oncology clinical research landscape, particularly in Central and South America, Africa, and Asia, which bear the highest burden of global childhood cancer cases, is less characterized in the literature. Review of how existing pediatric cancer clinical trial groups internationally have been formed and how their research goals have been pursued is critical for building global collaborative research and data-sharing efforts, in line with the WHO Global Initiative for Childhood Cancer. METHODS A narrative literature review of collaborative groups performing pediatric cancer clinical research in each continent was conducted. An inventory of research groups was assembled and reviewed by current pediatric cancer regional and continental leaders. Each group was narratively described with identification of common structural and research themes among consortia. RESULTS There is wide variability in the structure, history, and goals of pediatric cancer clinical trial collaborative groups internationally. Several continental regions have longstanding endogenously-formed clinical trial groups that have developed and published numerous adapted treatment regimens to improve outcomes, whereas other regions have consortia focused on developing foundational database registry infrastructure supported by large multinational organizations or twinning relationships. CONCLUSION There cannot be a one-size-fits-all approach to increasing collaboration between international pediatric cancer clinical trial groups, as this requires a nuanced understanding of local stakeholders and resources necessary to form partnerships. Needs assessments, performed either by local consortia or in conjunction with international partners, have generated productive clinical trial infrastructure. To achieve the goals of the Global Initiative for Childhood Cancer, global partnerships must be sufficiently granular to account for the distinct needs of each collaborating group and should incorporate grassroots approaches, robust twinning relationships, and implementation science.

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Enhancing International Cancer Organization Collaborations: King Hussein Cancer Center and Princess Margaret Cancer Centre Model for Collaboration

et al. 2020

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SickKids-Caribbean Initiative: collaborating to improve the diagnosis and care of children with cancer and serious blood disorders in the Caribbean

Cited by 3 publications

References 0 publications

The SickKids Caribbean Initiative to improve care for children with cancer and blood disorders

The SickKids Caribbean Initiative to improve care for children with cancer and blood disorders

Mapping Pediatric Oncology Clinical Trial Collaborative Groups on the Global Stage

Enhancing International Cancer Organization Collaborations: King Hussein Cancer Center and Princess Margaret Cancer Centre Model for Collaboration

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