Sickle Cell Disease Pain Management in Adolescents: A Literature Review

Wilson, Bridget H.; Nelson, Jessica

doi:10.1016/j.pmn.2014.05.015

Cited by 31 publications

(19 citation statements)

References 9 publications

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“…34,35 Social isolation may be compounded by cognitive impairment and stigma of SCD. 36,37 In total, these multilevel issues lead to high variability in patient satisfaction, quality of life, and adherence to prescribed medical regimens and appointments. These multilevel barriers should be addressed to improve care and outcomes for people with SCD.…”

Section: Sickle Cell Care Highlights Gaps In a Socioecologic Systemmentioning

confidence: 99%

Community Health Workers as Support for Sickle Cell Care

Hsu

Green

Ivy

et al. 2016

American Journal of Preventive Medicine

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Community health workers are increasingly recognized as useful for improving health care and health outcomes for a variety of chronic conditions. Community health workers can provide social support, navigation of health systems and resources, and lay counseling. Social and cultural alignment of community health workers with the population they serve is an important aspect of community health worker intervention. Although community health worker interventions have been shown to improve patient-centered outcomes in underserved communities, these interventions have not been evaluated with sickle cell disease. Evidence from other disease areas suggests that community health worker intervention also would be effective for these patients. Sickle cell disease is complex, with a range of barriers to multifaceted care needs at the individual, family/friend, clinical organization, and community levels. Care delivery is complicated by disparities in health care: access, delivery, services, and cultural mismatches between providers and families. Current practices inadequately address or provide incomplete control of symptoms, especially pain, resulting in decreased quality of life and high medical expense. The authors propose that care and care outcomes for people with sickle cell disease could be improved through community health worker case management, social support, and health system navigation. This report outlines implementation strategies in current use to test community health workers for sickle cell disease management in a variety of settings. National medical and advocacy efforts to develop the community health workforce for sickle cell disease management may enhance the progress and development of “best practices” for this area of community-based care.

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Section: Sickle Cell Care Highlights Gaps In a Socioecologic Systemmentioning

confidence: 99%

Community Health Workers as Support for Sickle Cell Care

Hsu

Green

Ivy

et al. 2016

American Journal of Preventive Medicine

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“…Other manifestations include and are not limited to acute chest syndrome, bacterial sepsis, sequestration crisis, aplastic crises, ischemic stroke, fatigue, and exercise intolerability (Ameringer, Elswick, & Smith, 2014;Chakravorty & Williams, 2015;Masuda, Cohen, Wicksell, Kemani, & Johnson, 2011;Sanders et al, 2010). Some of the typical clinical manifestations of SCD such as jaundice, delayed puberty, or stunted growth distinguishes and separates these children from their peers and can contribute to low selfesteem, poor body image, and behavioral problems, especially in adolescence (Noll, Kiska, Reiter-Purtill, Gerhardt, & Vannatta, 2010;Wilson & Nelson, 2014).…”

Section: Symptoms Of Scdmentioning

confidence: 99%

The Daily Experiences of Adolescents in Lebanon With Sickle Cell Disease

Atoui¹,

Badr²,

Brand³

et al. 2015

Journal of Pediatric Health Care

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“…Flaws may occur in the interpretation of pain if these scales are not applied during hospitalization, which would interfere on the effectiveness of the treatment. To promote pain relief of the patient, the nurse must be capable of assessing the pain, identifying the aggravating factors, implementing strategies for its control and monitoring the results of these interventions (22) . Pain is considered the fifth vital sign and health services must encourage and monitor the professionals regarding the assessment of pain as a vital sign, as well as the use of pain scales.…”

Section: Discussionmentioning

confidence: 99%

The pain of children with sickle cell disease: the nursing approach

et al. 2018

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Objective: To describe how nurses identify the pain in children with sickle cell disease (SCD) and to list the strategies used by them in the evaluation and control of pain. Method: This is a qualitative, descriptive and exploratory research, performed through semi-structured interviews with 13 nurses. The interviews were transcribed and after this process the qualitative data were organized according to thematic analysis. Results: This study showed that the nurses can identify pain in children with SCD from the signals they emit, such as: constant crying, restlessness, facial expressions and verbal reports. Pain is diffi cult to evaluate due to the lack of instruments, such as a pain scale. For pain control they use emotional support, promotion of comfort and the administration of drugs prescribed by the doctor. Final considerations: The nurses recognize the pain of the child and use pharmacological and non-pharmacological methods to control it but have diffi culties to assess it. Descriptors: Anemia, Sickle Cell; Child; Pain; Pediatric Nursing; Nursing Care. RESUMO Objetivo: Descrever como o enfermeiro identifi ca a dor na criança com doença falciforme (DF) e pontuar as estratégias utilizadas por ele na avaliação e controle da dor. Método: Pesquisa qualitativa, descritiva, exploratória, realizada por meio de entrevistas semiestruturadas com 13 enfermeiros. Após transcrição das entrevistas, os dados qualitativos foram organizados segundo análise temática. Resultados: Evidenciou-se que os enfermeiros são capazes de identifi car a dor em crianças com DF a partir dos sinais que elas emitem, como: choro constante, inquietação, expressões faciais e relatos verbais. A dor é difícil de ser avaliada devido à falta de instrumentos, como a escala de dor. Para o controle da dor é utilizado apoio emocional, promoção de conforto e administração de fármacos prescritos pelo médico. Considerações fi nais: Os enfermeiros reconhecem a dor na criança e utilizam métodos farmacológicos e não farmacológicos para controlá-la, porém têm difi culdades em sua avaliação. Descritores: Anemia Falciforme; Criança; Dor; Enfermagem Pediátrica; Cuidados de Enfermagem. RESUMENObjetivo: Describir como el enfermero identifi ca el dolor en el niño con enfermedad falciforme (EF) y puntuar las estrategias utilizadas por él en la evaluación y en el control del dolor. Método: Investigación cualitativa, descriptiva, exploratoria, realizada por medio de encuestas semiestructuradas con 13 enfermeros. Después de la transcripción de las encuestas, los datos cualitativos han sido organizados según el análisis temático. Resultados: Se ha evidenciado que los enfermeros son capaces de identifi car el dolor en niños con EF desde las señales que ellas emiten, como: el llanto constante, la inquietud, las expresiones faciales y los relatos verbales. El dolor es difícil de ser evaluado debido a la falta de instrumentos, como la escala de dolor. Para el control del dolor es utilizado el apoyo emocional, la promoción de comodidad y la administración de fárma...

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Sickle Cell Disease Pain Management in Adolescents: A Literature Review

Cited by 31 publications

References 9 publications

Community Health Workers as Support for Sickle Cell Care

Community Health Workers as Support for Sickle Cell Care

The Daily Experiences of Adolescents in Lebanon With Sickle Cell Disease

The pain of children with sickle cell disease: the nursing approach

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