Sitting on the Sidelines: Disparities in Social, Recreational, and Community Participation Among Adolescents with Autism Spectrum Disorder

Budavari, Alexa Curhan; Pas, Elise T.; Azad, Gazi; Volk, Heather E.

doi:10.1007/s10803-021-05216-0

Cited by 6 publications

(8 citation statements)

References 49 publications

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“…Consistent with previous findings ( Budavari et al, 2021 ; Egilson et al, 2017 ; Lamash et al, 2020 ), overall community participation of our participants was observed to be limited (on average, only a few times over several months), except for neighbourhood outings which tended to occur weekly. This may be due to autistic individuals’ generally limited peer relationships that support participation in a variety of events in communities ( Dovgan & Mazurek, 2019 ; Orsmond et al, 2004 ; Song et al, 2022 ) and their preference to perform activities alone or with caregivers rather than in a social group ( Egilson et al, 2017 ; Kersten et al, 2020 ).…”

Section: Discussionsupporting

confidence: 92%

“…Clinical characteristics, including maladaptive behaviour, cognitive ability and social communication skills, have been observed to be associated with different levels of participation among autistic children and youth ( Mazurek et al, 2012 ; Myers et al, 2015 ; Shattuck et al, 2011 ). Aside from individual characteristics, previous research has also shown associations between autistic youth’s activity participation and family socioeconomic status (SES), particularly household income and caregiver education ( Budavari et al, 2021 ; Liptak et al, 2011 ; Myers et al, 2015 ; Orsmond & Kuo, 2011 ; Shattuck et al, 2011 ). Environmental factors, such as demands or considerations of performing certain activities (e.g.…”

Section: Introductionmentioning

confidence: 99%

“…These findings demonstrate that individual, family and environmental factors are associated with levels of participation across settings among autistic populations. Thus, it is important to examine the joint contributions of these factors to autistic youth’s participation to enable tailored opportunities and supports that optimize person–environment fit and facilitate adult competencies ( Budavari et al, 2021 ; Lai et al, 2020 ).…”

Section: Introductionmentioning

confidence: 99%

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Variable patterns of daily activity participation across settings in autistic youth: A latent profile transition analysis

Chen

Duku

Zaidman‐Zait

et al. 2023

Autism

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Participation in daily activities is often linked to functional independence and well-being, yet individual variability in participation and factors associated with that variation have rarely been examined among autistic youth. We applied latent profile analysis to identify subgroups of youth based on parent-reported activity participation frequency at home, school and community, as well as associations with youth characteristics, family demographics and environmental supportiveness among 158 autistic youth (aged 11–14 years at baseline). Three-, three- and two-profile solutions were selected for home, school and community settings, respectively; the most prevalent profiles were characterized by frequent home participation (73%), low participation in non-classroom activities at school (65%) and low community participation, particularly in social gatherings (80%), indicating participation imbalance across settings. More active participation profiles were generally associated with greater environmental support, higher cognitive and adaptive functioning and less externalizing behaviour. Latent transition analysis revealed overall 75% stability in profile membership over approximately 1 year, with a different home participation profile emerging at the second time-point. Our findings highlighted the variable participation patterns among autistic youth as associated with individual, family and environmental factors, thus stressing the need for optimizing person–environment fit through tailored supports to promote autistic youth’s participation across settings. Lay abstract What people do or engage in in their daily lives, or daily life participation, is often linked to their state of being happy and healthy, as well as potential for living independently. To date, little research has been conducted on daily activity participation by autistic youth at home, at school or in the community. Learning more about individual differences in participation levels and what might influence them can help to create custom supports for autistic youth and their families. In this study, 158 caregivers of autistic youth were asked how often their children took part in 25 common activities at two assessments, about one year apart. The analysis showed three profiles for each of the home and school settings and two profiles for the community setting. These profiles reflected distinct patterns in how often autistic youth took part in various daily activities, particularly in doing homework, school club activities and community gatherings. Most autistic youth were in profiles marked by often taking part at home but less often at school and in the community, and about three-fourths of them tended to stay in the same profile over time. Autistic youth with limited participation profiles were more likely to have lower scores on measures of cognitive ability and daily life skills and more challenging behaviour, and faced more barriers in their environment. These findings show how important it is to think about each autistic person’s strengths and weaknesses, and changing needs, to better support their daily life participation.

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Section: Discussionsupporting

confidence: 92%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Variable patterns of daily activity participation across settings in autistic youth: A latent profile transition analysis

Chen

Duku

Zaidman‐Zait

et al. 2023

Autism

View full text Add to dashboard Cite

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“…The included research articles were classified into five mutually exclusive primary focus areas during the data extraction phase: (1) access to and participation in sports , (2) access to SEM care , (3) health-related outcomes in SEM , (4) study methodology and (5) provider representation in SEM (table 1, online supplemental table S4). Most included studies were related to access to and participation in sports (n=45, 44%),17–61 followed by access to SEM care (n=28, 27%),62–89 health-related outcomes in SEM (n=24, 23%),90–113 provider representation in SEM (n=5, 5%)114–118 and methodology (n=1, 1%) 119…”

Section: Resultsmentioning

confidence: 99%

“…Numerous gaps were noted when identifying potential causes of health disparities studied within each focus area specifically. Although SES (n=15 articles),22 24 29–31 34–37 40 44 47–49 race/ethnicity (n=12),19–21 25 32 35 40 47 49 52 55 57 sex (n=11)21 23 26 27 32 34–36 38 58 60 and physical ability (n=10)17 18 20 28 39 43 50 51 53 56 were well represented within the access to and participation in sports domain, certain topic areas, such as body composition (n=3),25 38 47 educational level (n=3)24 49 52 and sexual orientation (n=2),23 45were under-represented in the literature captured (figure 3A). Moreover, other potential causes of disparities such as location (urban, suburban and rural), insurance status, primary language and gender identity retrieved zero articles within this domain.…”

Section: Resultsmentioning

confidence: 99%

Focus areas and methodological characteristics of North American-based health disparity research in sports medicine: a scoping review

Kliethermes,

Asif,

Blauwet

et al. 2024

Br J Sports Med

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ObjectiveHealth disparities are widely prevalent; however, little has been done to examine and address their causes and effects in sports and exercise medicine (SEM). We aimed to summarise the focus areas and methodology used for existing North American health disparity research in SEM and to identify gaps in the evidence base.DesignScoping review.Data sourcesSystematic literature search of PubMed, Scopus, SPORTDiscus, CINAHL Plus with Full Text, Web of Science Core Collection and Cochrane Central Register of Controlled Trials.Eligibility criteriaFull-text, peer-reviewed manuscripts of primary research, conducted in North America; published in the year 2000 or after, in English; and focusing on organised sports were included.Results103 articles met inclusion criteria. Articles were classified into five focus areas: access to and participation in sports (n=45), access to SEM care (n=28), health-related outcomes in SEM (n=24), provider representation in SEM (n=5) and methodology (n=1). Race/ethnicity (n=39), socioeconomic status (n=28) and sex (n=27) were the most studied potential causes of health disparities, whereas sexual orientation (n=5), location (rural/urban/suburban, n=5), education level (n=5), body composition (n=5), gender identity (n=4) and language (n=2) were the least studied. Most articles (n=74) were cross-sectional, conducted on youth (n=55) and originated in the USA (n=90).ConclusionHealth disparity research relevant to SEM in North America is limited. The overall volume and breadth of research required to identify patterns in a heterogeneous sports landscape, which can then be used to inform positive change, need expansion. Intentional research focused on assessing the intersectionality, causes and consequences of health disparities in SEM is necessary.

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Associations between Social Experiences and Psychological Health for Autistic Youth with Low IQ

Taylor,

Sullivan,

Bishop

et al. 2024

J Autism Dev Disord

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Purpose Social experiences are consistently associated with psychological health among autistic individuals. However, most extant studies on this topic exclude individuals with autism who have lower IQ or are otherwise unable to self-report. The current study addresses this gap by examining associations of negative peer experiences and social participation with psychological health among autistic youth with low IQ. Methods An online survey was collected from 268 parents of autistic adolescents and adults ages 15–25. Negative peer experiences included measures of peer victimization and being ignored. Social participation was assessed by the amount of participation and parents’ perceptions of whether their youth felt the amount of participation was meeting their needs. Psychological health was assessed by parents’ report of their youth’s psychological quality of life, as well as whether they felt their son/daughter was currently depressed. Results Results suggested low rates of social participation in this sample, with relatively high rates of being ignored. Regression analysis found that lower rates of peer victimization and more activities in which parents perceived that the amount of time was meeting their youth’s needs was associated with higher psychological quality of life and lower likelihood that parents felt their son/daughter was depressed. Conclusion Though youth with autism and low IQ are often excluded from interventions aimed at improving social experiences, these findings suggest that promoting positive social experiences and ameliorating negative ones might be an avenue to improving psychological health in this group.

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Sitting on the Sidelines: Disparities in Social, Recreational, and Community Participation Among Adolescents with Autism Spectrum Disorder

Cited by 6 publications

References 49 publications

Variable patterns of daily activity participation across settings in autistic youth: A latent profile transition analysis

Variable patterns of daily activity participation across settings in autistic youth: A latent profile transition analysis

Focus areas and methodological characteristics of North American-based health disparity research in sports medicine: a scoping review

Associations between Social Experiences and Psychological Health for Autistic Youth with Low IQ

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