Sleep of Parents Living With a Child Receiving Hospital-Based Home Care

Angelhoff, Charlotte; Edéll-Gustafsson, Ulla; Mörelius, Evalotte

doi:10.1097/nnr.0000000000000108

Cited by 17 publications

(28 citation statements)

References 15 publications

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“…Angelhoff et al. () likewise described how parents’ sleep was less disturbed when the family could avoid hospital stays (Angelhoff et al., ).…”

Section: Discussionmentioning

confidence: 99%

“…Systematic reviews show that HCS might be feasible (Parab et al, 2013) and may bring unchanged or lower financial costs to the healthcare system and to the families with equivalent clinical outcome (Parker et al, 2012). Studies show that families with children suffering from various illnesses often prefer HCS to hospital care (Byrne & Hardy, 2005;Eskola, Bergstraesser, Zimmermann, & Cignacco, 2017;Hansson, Kjaergaard, Schmigelow, & Hallstrom, 2012;Hansson et al, 2013;Heaton, Noyes, Sloper, & Shah, 2005;Spiers, Parker, Gridley, & Atkin, 2011;Stevens et al, 2006b), and they find their everyday life less disturbed when care is given in their home (Angelhoff, Edell-Gustafsson, & Morelius, 2015;Eskola et al, 2017;Heaton et al, 2005;Stevens et al, 2006b). Most studies on home care for sick children have chosen a parental perspective.…”

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confidence: 99%

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A possibility for strengthening family life and health: Family members’ lived experience when a sick child receives home care in Sweden

Castor

Landgren

Hansson

et al. 2017

Health Soc Care Community

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Families often prefer home care to hospital care, and home-care services for ill children are increasing worldwide with limited knowledge of families' needs during curative and palliative home care. The aim of this study was to elucidate family members' lived experience when a sick child received home care from county-based primary healthcare services. A descriptive qualitative design was chosen and 12 families including sick children receiving home care and their mothers, fathers and siblings in the south of Sweden were interviewed between December 2015 and January 2017. The transcribed interviews were analysed using a hermeneutic phenomenological approach. The family members' lived experience was described in three essential themes:"Strengthening family life" relates to how home care induced freedom and luxury in a strained period of life and supported the families' everyday life. Usual social activities and relations were maintained as time and energy was saved when receiving home care. "Promoting health" relates to how the family members' burden of illness decreased as the child's signs of illness alleviated and the well-being of the whole family increased when the child received care in the home. This provided a peaceful respite for family members' psychosocial recovery. The third theme, "Creating alliances," relates to the importance of creating trustful alliances for communicating participation in care. If trustful alliances were not created, parents felt an overwhelming responsibility and family members became anxious. The findings suggest that care in the family's home is a useful complement to hospital care. Home care should be given with close attention to family members' needs and conditions, as positive effects of home care might be jeopardised when expectations and possibilities are not successfully shared. K E Y W O R D Schild, family members' lived experience, hermeneutic phenomenology, home-care services, paediatric careThis is an open access article under the terms of the Creative Commons Attribution-NonCommercial License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.

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“…Angelhoff et al. () likewise described how parents’ sleep was less disturbed when the family could avoid hospital stays (Angelhoff et al., ).…”

Section: Discussionmentioning

confidence: 99%

mentioning

confidence: 99%

A possibility for strengthening family life and health: Family members’ lived experience when a sick child receives home care in Sweden

Castor

Landgren

Hansson

et al. 2017

Health Soc Care Community

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“…Good sleep is necessary for the parents’ and the child's health and well‐being. The disruption of parental sleep during the night for a long period, with frequent awakenings and poor sleep quality, affect and limit the parents' resources to meet the child's needs and maintain parental wellbeing (Angelhoff, Edéll‐Gustafsson, & Mörelius, ; Lee, Chai, & Ismail, ; Meltzer, Davis, & Mindell, ; Meltzer & Mindell, ; Stickland et al, ). To find interventions that could improve parents’ sleep when staying overnight with their child in hospital it is important to get a deeper knowledge of the subject.…”

Section: Introductionmentioning

confidence: 99%

“Like Walking in a Fog”—Parents' perceptions of sleep and consequences of sleep loss when staying overnight with their child in hospital

Angelhoff

Sjølie

Mörelius

et al. 2019

Journal of Sleep Research

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Summary Disruption of parental sleep in hospital, with frequent awakenings and poor sleep quality, limits the parents' resources to meet the child's needs and maintain parental wellbeing. The aim of the study was to explore and describe how parents perceive their sleep when staying overnight with their sick child in hospital. A further aim was to explore and describe parents’ perception of what circumstances influence their sleep in the hospital. Twenty‐two parents who were accommodated with their sick child (0–17 years) in paediatric wards in Norway and Sweden participated. Interviews were conducted during the hospital stay to elicit their perspectives. Phenomenography was used to analyse data. Two descriptive categories were found: (a) “Perceptions of sleep”, with two sub‐categories: “Sleep in the paediatric ward” and “Consequences of sleep loss”; and (b) “Circumstances influencing sleep in the paediatric ward” with three sub‐categories: “The importance of the family”, “Information and routines at the paediatric ward”, and “Accommodation facilities”. Parents’ sleep and needs must be acknowledged in paediatric wards. An individual plan of care for the upcoming night could be a valuable tool for both the parents and nurses. The child's medical needs must be met with respect to the parents’ willingness to take part in the child's care during the night, and the need for rest and sleep for both parent and child.

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“…There is, thus, a smaller difference between the morning cortisol level and the postawakening cortisol level (Proulx, Klee, & Oken, ; Wong et al, ). Having a sick child in need of medical care affects the parents’ mood (Angelhoff, Edéll‐Gustafsson, & Mörelius, ) and mothers have reported feeling less in control during accommodation at the paediatric ward (Angelhoff et al, ). Therefore, our hypothesis was that parents of sick children are exposed to stressors that lead to lower morning cortisol levels and lower CARs in the hospital than those that occur at home after discharge and that they are lower than the levels in a reference population.…”

Section: Introductionmentioning

confidence: 99%

The cortisol response in parents staying with a sick child at hospital

2019

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Aim To study the cortisol response in parents staying with their child in paediatric wards, to compare the parents’ cortisol levels between the paediatric ward and at home 4 weeks after discharge and to compare the parents’ cortisol levels with data of an adult reference population, reported by Wust et al., as there are few studies investigating parental cortisol. Design This study has a descriptive and prospective comparative design. Method Thirty‐one parents participated. Saliva samples were collected in the paediatric ward and 4 weeks later at home. Results The parents had lower morning awakening cortisol levels in the paediatric ward than at home after discharge. There were no statistically significant differences in postawakening cortisol or cortisol awakening response (CAR). The child's age, diagnosis or previously diagnosed chronic condition did not affect the parents’ cortisol levels. The morning and postawakening cortisol levels were lower than those of the reference population. Conclusion The hospital stay with a sick child affects parents’ cortisol levels. Parental stress needs more attention to find interventions to prevent the risk of stress‐related complications that subsequently can affect the care of the child.

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Sleep of Parents Living With a Child Receiving Hospital-Based Home Care

Abstract: Background: Caring for an ill child at home gives the family the chance to be together in a

Cited by 17 publications

References 15 publications

A possibility for strengthening family life and health: Family members’ lived experience when a sick child receives home care in Sweden

A possibility for strengthening family life and health: Family members’ lived experience when a sick child receives home care in Sweden

“Like Walking in a Fog”—Parents' perceptions of sleep and consequences of sleep loss when staying overnight with their child in hospital

The cortisol response in parents staying with a sick child at hospital

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