Sleeping is a nightmare: A qualitative study on the experience and management of poor sleep quality in women with fibromyalgia

Climent‐Sanz, Carolina; Gea-Sánchez, Montserrat; Fernández‐Lago, Helena; Mateos, José Tomás; Rubí-Carnacea, Francesc; Briones-Vozmediano, Érica

doi:10.1111/jan.14977

Cited by 5 publications

(3 citation statements)

References 71 publications

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“…According to the qualitative literature, the most frequent themes on patients’ accounts related to their living experience with FMS are poor functional performance, distress, lack of credibility, uncertainty, pain acceptance, poor sleep, and social stigma (Climent-Sanz et al, 2021 ; Johnson et al, 2006 ; LaChapelle et al, 2008 ; Quintner, 2020 ; Sim & Madden, 2008 ; Taylor et al, 2016 )…”

Section: Introductionmentioning

confidence: 99%

Patients’ appraisals about a multicomponent intervention for fibromyalgia syndrome in primary care: a focus group study

Arfuch

Gonçalves

Angelats

et al. 2021

International Journal of Qualitative Studies on Health and Well

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Purpose To assess fibromyalgia patients’ experiences and appraisals about a multidisciplinary intervention programme, in Catalonia’s primary care, regarding its format and contents, benefits, and health impact in the short and long term. Method Qualitative interpretative research design through hermeneutic phenomenology perspective. Two focus groups discussions were conducted in February and July 2020. The purposive heterogeneous sample included 19 fibromyalgia patients who attended a multicomponent programme. In addition, thematic analysis on the verbatims was performed. Results Findings were organized into five main domains with an explanatory theme each. Overall, the informants valued the programme as a positive experience due to its holistic approach, health benefits, suffering relief, group effect, and fibromyalgia legitimacy promotion. Detected improvable aspects focused on extending the timeframe, including family members as beneficiaries, deepening the thematic contents, and getting regular access to this healthcare service. Furthermore, the intervention was considered feasible to be incorporated into usual clinical care. Conclusion the programme fulfilled users’ expectations about results and procedure and showed promise as a treatment strategy to reinforce the usual practice. Our findings suggest a broad perspective on fibromyalgia patients’ suffering, which urges us to adjust the intervention programme to their real health needs.

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Section: Introductionmentioning

confidence: 99%

Patients’ appraisals about a multicomponent intervention for fibromyalgia syndrome in primary care: a focus group study

Arfuch

Gonçalves

Angelats

et al. 2021

International Journal of Qualitative Studies on Health and Well

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show abstract

“…Some studies offer a general exploration of the experiences of those living with FM (e.g. Arnold et al., 2008; Ashe et al., 2017; Boulton, 2019; Climent‐Sanz et al., 2021; Vall‐Roqué et al., 2024), while others delve into specific aspects, such as healthcare services utilisation, medications or particular interventions (e.g., Beltrán‐Carrillo et al., 2013; Durif‐Bruckert et al., 2015; Mailen Arfuch et al., 2021; Mcllroy et al., 2022). Some also include perspectives from health professionals (Briones‐Vozmediano et al., 2013).…”

Section: Introductionmentioning

confidence: 99%

“…Equally important is the limited research assessing the clinical relevance of qualitative reports. Insights gleaned directly from individuals can significantly inform healthcare professionals, aiding in the delivery of more tailored and effective treatments (Climent‐Sanz et al., 2021). However, the connection between this first‐hand information and standardised outcomes remains largely unexplored.…”

Section: Introductionmentioning

confidence: 99%

Written narratives to understand the experience of individuals living with fibromyalgia

Serrat,

Sora,

Ureña

et al. 2024

Musculoskeletal Care

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PurposeTo explore the experiences of individuals with fibromyalgia (FM) through written narratives (WN) and to preliminarily investigate the potential value of these narratives for healthcare professionals in assessing the overall perceived severity and disability experienced by individuals with FM.Materials and methodsThis cross‐sectional study was conducted with 46 participants with a FM diagnosis. They were asked to complete a WN task that aimed to capture their personal experiences. The degree of severity and disability expressed in their texts was assessed by researchers, and participants were also asked to complete the Revised Fibromyalgia Impact Questionnaire (FIQR), the Hospital Anxiety and Depression Scale (HAD), and the Tampa Scale for Kinesophobia.Results and conclusionsEight main themes were identified after qualitatively analysing the narratives provided by participants: story of their illness, FM characteristics, other illnesses, impact, coping strategies, social support, pain triggers and treatments. Pain emerges as a profound symptom affecting mental, physical, and social well‐being, with diverse triggers and coping mechanisms. Participants highlighted difficulties in the diagnostic process, used multiple treatment strategies, and expressed a lack of understanding from healthcare professionals and society. There were significant correlations between researchers' assessments of severity and disability of the writings and FIQR and HAD scores. This study emphasises the value of narratives in capturing the multifaceted nature of FM experiences and hints at their potential for clinical understanding and management.

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Sex and Gender Science: The World Writes on the Body

Brown

Karkaby

Perovic

et al. 2022

Current Topics in Behavioral Neurosciences

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Sleeping is a nightmare: A qualitative study on the experience and management of poor sleep quality in women with fibromyalgia

Abstract: This is an open access article under the terms of the Creat ive Commo ns Attri bution-NonCo mmercial License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.

Cited by 5 publications

References 71 publications

Patients’ appraisals about a multicomponent intervention for fibromyalgia syndrome in primary care: a focus group study

Patients’ appraisals about a multicomponent intervention for fibromyalgia syndrome in primary care: a focus group study

Written narratives to understand the experience of individuals living with fibromyalgia

Sex and Gender Science: The World Writes on the Body

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