So Far, So Good: Maintenance of Prevention Is Required to Stem HIV Incidence in Aboriginal and Torres Strait Islander Communities in Australia

Ward, James; Costello-Czok, Michael; Willis, Jon; Saunders, Mark; Shannon, Cindy

doi:10.1521/aeap.2014.26.3.267

Cited by 5 publications

(6 citation statements)

References 18 publications

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“…5 HIV has maintained low incidence and prevalence in the ATSI population. 6 ATSI develop end-stage renal disease at a significantly higher rate but are much less likely to receive a kidney transplant compared to non-indigenous Australians. 7,8 Unfortunately, Australian and international data suggest that the benefits of renal transplant over dialysis are less apparent for indigenous patients who have higher rates of graft loss, death, rejection and infection.…”

Section: Introductionmentioning

confidence: 99%

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Infectious complications in indigenous renal transplant recipients in Western Australia

Boan

Swaminathan

Irish

2017

Internal Medicine Journal

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Section: Introductionmentioning

confidence: 99%

“…In 2013, tuberculosis incidence in ATSI was 4.6 cases per 100 000 compared to 0.8 per 100 000 in non‐ATSI . HIV has maintained low incidence and prevalence in the ATSI population …”

Section: Introductionmentioning

confidence: 99%

Infectious complications in indigenous renal transplant recipients in Western Australia

Boan

Swaminathan

Irish

2017

Internal Medicine Journal

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“…Resonating with this notion of community initiative were numerous references to the mobilisation of Aboriginal communities during the HIV era (78)(79)(80). On learning that HTLV-1 was first discovered in Central Australia in 1988, Aboriginal participants were disappointed that attention to HTLV-1 was eclipsed by the dynamism of HIV initiatives:…”

Section: Comparison With Hivmentioning

confidence: 99%

A Qualitative Study Exploring Perceptions to the Human T Cell Leukaemia Virus Type 1 in Central Australia: Barriers to Preventing Transmission in a Remote Aboriginal Population

Fowler

Einsiedel

2022

Front. Med.

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BackgroundCentral Australia has the highest recorded prevalence of infection with the human T cell leukaemia virus type 1 (HTLV-1) worldwide. Each of the clinical diseases associated with HTLV-1 have been reported in this region, including deaths due to adult T cell leukaemia, which is causally linked to HTLV-1. Nevertheless, no public health response has been implemented to reduce HTLV-1 transmission among the affected Aboriginal population. In the first study to explore the perceptions of healthcare professionals along with those of Aboriginal people whose communities are actually impacted by HTLV-1, we sought to understand the barriers to preventing HTLV-1 transmission in this remote area.Methodology/Principal FindingsSemi and un-structured interviews were conducted with 30 Australian Aboriginal people, 26 non-Aboriginal healthcare professionals and 3 non-Aboriginal community workers. The purpose of the interviews was to explore perceptions towards HTLV-1 in a health context with a focus on sexual and reproductive rights. Deductive and inductive analyses were applied to the data and a decolonizing lens brought peripheral stories to the fore. A major finding was the contrast between views expressed by Aboriginal participants and healthcare professionals regarding the provision of knowledge to those affected. Aboriginal participants consistently articulated that they and their communities should be informed of, and can hold, knowledges pertaining to HTLV-1. This finding controverted the perceptions of healthcare professionals that the complexities of the virus would not be well-understood by their Aboriginal patients and that sharing HTLV-1 knowledges might overwhelm Aboriginal people. Further analyses revealed a spectrum of understanding and clinical practice, while also delineating signs of an imagined public health response.Conclusions/SignificanceHTLV-1 remains a neglected infection in Australia. Knowledge of HTLV-1 is held by a privileged medical elite and does not flow to marginalised Aboriginal people living in affected communities. We demonstrate that differences in the perspectives of stakeholders presents a significant barrier to the development of cohesive, culturally safe prevention programs that foster a shared knowledge of HTLV-1. The interview data suggests that a successful public health program is likely to require a dual approach that includes clinical care and community-driven health promotion. Aspects of this approach, which would raise awareness and potentially reduce transmission and lower HTLV-1 prevalence in Central Australia, may be applicable to other endemic settings with similar conditions of social disadvantage, geographic remoteness, resource limitations and cross-cultural challenges.

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“…Aboriginal and Torres Strait Islander peoples' issues were included from the beginning of the response, with partnerships forged between Indigenous peoples, government and affected communities in national and jurisdictional HIV policy development. Focus was placed on workforce development, surveillance and the establishment of Aboriginal and Torres Strait Islander-specific HIV-related organisations and projects (Ward et al 2014). The Aboriginal Community Controlled Service movement, developed in the 1970s, designed and delivered locally relevant HIV promotion messages, including the successful 'Condoman' and 'Lubelicious' campaigns (Ward et al 2014).…”

Section: Mobilisation Of Aboriginal and Torres Strait Islander Communmentioning

confidence: 99%

Responding to HIV/AIDS: Mobilisation through partnerships in a public health crisis

Fitzgerald¹,

Mutch²,

Herron³

2019

Successful Public Policy: Lessons From Australia and New Zealand

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So Far, So Good: Maintenance of Prevention Is Required to Stem HIV Incidence in Aboriginal and Torres Strait Islander Communities in Australia

Cited by 5 publications

References 18 publications

Infectious complications in indigenous renal transplant recipients in Western Australia

Infectious complications in indigenous renal transplant recipients in Western Australia

A Qualitative Study Exploring Perceptions to the Human T Cell Leukaemia Virus Type 1 in Central Australia: Barriers to Preventing Transmission in a Remote Aboriginal Population

Responding to HIV/AIDS: Mobilisation through partnerships in a public health crisis

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