Social barriers affecting participation in chosen instrumental activities of daily living among community-dwelling persons with schizophrenia in Rwanda

Abstract

Purpose The purpose of this study is to explore social barriers affecting participation in chosen instrumental activities of daily living (IADL) among community-dwelling persons with schizophrenia in Rwanda. Design/methodology/approach A qualitative study used an embedded single case study design and constructivist epistemology paradigm. Purposive sampling and semistructured interviews of 10 persons with schizophrenia and their 10 caregivers were conducted. Data analysis was done thematically using an inductive analysis approach, following within-case and cross-case analysis. Findings The hindrances to participation and community negative attitudes were explored as the two themes. This study focuses on the community negative attitudes including family exclusion and stigmatization, which hinder the participation of persons with schizophrenia in their chosen IADLs. Practical implications This study highlights the need for psychoeducation about mental illness for the caregivers of the persons with schizophrenia, community outreach activities for sensitizing about mental illness to address stigma toward persons with mental illness and strengthening the activities which promote the social interaction and sense of belonging of persons with mental illness. Originality/value Persons with schizophrenia are facing maltreatment and stigma from the community members while participating in their chosen IADLs. Awareness raising of the support needs of persons living with schizophrenia will contribute to relevant stakeholders advocating for inclusion into families and communities.