Social disconnectedness and perceived social isolation in persons with spinal cord injury/dysfunction living in the community: A scoping review

Cimino, Stephanie R; Cadel, Lauren; Guilcher, Sara J T; Wasilewski, Marina B; Hitzig, Sander L.

doi:10.1080/10790268.2022.2129170

Cited by 8 publications

(11 citation statements)

References 73 publications

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“…Our findings reveal geriatric cancer rehabilitation participation significantly buffered declines in social well-being and familial interactions compared to standard care older cancer cohorts based on the FACT-G social domain. This protective effect against social isolation aligns with previous rehabilitation research demonstrating benefits for loneliness, community participation, and patient-reported social fitness [46]. The social well-being advantages probably arise through counseling and skills building to promote safe, sustainable social connections along with occupational therapy facilitating community mobility [47].…”

Section: Discussionsupporting

confidence: 81%

Evaluating the Effectiveness of Geriatric-Specific Cancer Rehabilitation Programs on Patient Health Outcomes

Ali,

Elballah,

Begum

et al. 2024

Asian Pac J Cancer Prev

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Objective: This study evaluated a specialized rehabilitation program’s impact on senior cancer patients’ quality of life. Methods: one hundred and thirty patients aged ≥65 years with various cancer types undergoing/recovering from treatment were enrolled in oncology clinics in Al-Ahsa, Saudi Arabia. The intervention arm (n=65) participated in a tailored geriatric cancer rehabilitation program. The control group (n=65) received standard oncology care. The Functional Assessment of Cancer Therapy-General (FACT-G) tool assessed the quality of life across physical, social, emotional, and functional domains. T-tests and multivariate regression analyses compared outcomes. Result: Total FACT-G scores showed a significantly higher quality of life for the geriatric cancer rehabilitation group versus standard care. Rehabilitation patients also demonstrated meaningful improvements across physical, social, and functional subscales. Rehabilitation involvement was the most predictive factor for optimized outcomes. Conclusion: Specialized geriatric cancer rehabilitation meaningfully improved several quality of life domains in older patients over standard care. Despite persistent barriers, rehabilitation programming optimized older cancer patients’ physical and psychosocial health. Oncology and geriatrics must collaborate to ensure evidence-based rehabilitation access meets older cohorts’ unique needs.

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Section: Discussionsupporting

confidence: 81%

Evaluating the Effectiveness of Geriatric-Specific Cancer Rehabilitation Programs on Patient Health Outcomes

Ali,

Elballah,

Begum

et al. 2024

Asian Pac J Cancer Prev

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“…The participants spoke about how social interaction, both in the form of social support, especially in caregiving, and social participation was imperative and valuable in their recovery after being discharged. Social support has been considered in research as an important outcome in determining recovery of trauma patients (73)(74)(75). It can be in the form of physical care, financial aid, or emotional relief (76)(77)(78).…”

Section: Discussionmentioning

confidence: 99%

Patient-reported outcomes relevant to post-discharge trauma patients in urban India

David,

Gerdin Wärnberg

2024

Preprint

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Trauma is a major global health burden with long-term consequences to patients. Patient-reported outcomes (PROs) are increasingly being recognized and utilized to improve trauma care. It is imperative to identify the PROs that are most relevant, applicable, and suitable to a context. However, there is limited research on PROs in trauma care in low- and middle-income countries, like India, that bear disproportionate burden of global trauma. This paper aims to examine PROs considered to be most relevant for trauma patients after discharge in the context of urban India. We conducted semi-structured qualitative interviews of 11 adult post discharge trauma patients, across demographic and injury groups, and two persons working with trauma patients from five tertiary-care public hospitals in the Indian cities of Mumbai and Kolkata. We performed thematic analysis to identify themes within the participants responses on PROs important to them based on their experiences. Four themes emerged in the analysis of the participant interviews. The need for full physical functioning, the need to address psychological consequences, the need to alleviate economic cost of trauma, and the need for social interactions. Outcomes related to these themes were most relevant to the participants. The findings of this paper can help researchers and clinicians select appropriate PROs, based on the four themes, for trauma research and to improve trauma care in urban India. Future research should focus on PROs relevant to specific demographic and injury groups in India and other LMICs.

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“…Perceived social isolation, often used interchangeably with loneliness, is a similar subjective measure that also includes feeling like a stranger to others, barely known, avoided, detached from others, and isolated even when not alone (Cimino et al, 2023; PROMIS-SI, 2021; Santini et al, 2020). Social isolation (sometimes referred to as social disconnectedness) is an objective state of having lack of (or limited) social contact and is assessed through measures such as, small social network size, infrequent contact with others, and living alone (Cimino et al, 2023; National Academies of Sciences, Engineering, and Medicine [NASEM], 2020; Santini et al, 2020). It is worth noting that an individual may be surrounded by people and have many social contacts but still experience loneliness, whereas objective social isolation, which reflects actual time alone or without social company may not elicit feelings of loneliness.…”

mentioning

confidence: 99%

“…It focuses on the collective impact of loneliness and social isolation and emphasizes the need for efforts to reduce negative health consequences impacted by loneliness and social isolation. Many individuals with SCI/D experience loneliness and social isolation, and growing evidence suggests that this puts them at increased risk for health consequences (Cimino et al, 2023); this emphasizes the need for efforts to reduce loneliness/isolation in this population. Patients offer unique and important perspectives about their own needs and what they think will be most helpful to improve their outcomes (Bombard et al, 2018).…”

mentioning

confidence: 99%

Facilitators to alleviate loneliness and social isolation as identified by individuals with spinal cord injuries and disorders: A qualitative study.

LaVela,

Motl,

Berryman

et al. 2024

Rehabilitation Psychology

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Purpose/Objective: Individuals with spinal cord injuries and disorders (SCI/D) are at increased risk for experiencing loneliness and social isolation. The aim is to describe facilitators identified by individuals living with SCI/ D to alleviate loneliness and perceived social isolation. Research Method/Design: Descriptive qualitative design using in-depth interviews with veterans with SCI/D (n = 23). Descriptive statistics was used to calculate demographic and injury characteristics. Audio-recorded and transcribed verbatim transcripts were coded and analyzed using Braun and Clarke's (2006) six thematic analysis phases. Results: Participants were male (70%), white (78%), and not currently married (35%), with an average age of 66 years (42-88). Participants had paraplegia (61%), with traumatic etiology (65%) and were injured 14 years (1-45) on average. Eight themes were identified by participants living with SCI/D that described facilitators to alleviate loneliness and perceived social isolation. (a) Engage in/pursue interests; (b) Interact with/spend time with others; (c) Embrace acceptance; (d) Take part in reciprocity; (e) Find a purpose/accomplish goals; (f) Get out of residence, get outside; (g) Connect with SCI/D community/SCI/D peers; and (h) Seek help from (mental) healthcare professionals. Conclusions/Implications: Individuals with SCI/D identified facilitators to alleviate loneliness that encompasses changes in ways of thinking, actions to expand participation in life, and efforts focused on involving others. Findings can be used to guide healthcare delivery and develop interventions to target feelings of loneliness and social isolation in persons with SCI/D, which may be particularly impactful if they involve reciprocal interactions with peers with SCI/D. Impact and ImplicationsDue to the many consequential health impacts, loneliness and social isolation have been deemed an epidemic. Individuals with spinal cord injuries and disorders (SCI/D) are at increased risk for feelings of loneliness and social isolation because of barriers they face after injury, such as mobility issues and smaller social networks. Efforts are needed to help individuals with SCI/D manage loneliness/isolation; the current study findings offer actionable facilitators that can be used in rehabilitation settings. Individuals with lived experiences provide a rich source for understanding multiple strategies that can be used to address psychosocial outcomes. Individuals with SCI/D offered personal insights on ways to alleviate feelings of loneliness and social isolation, which are directly applicable to guide patient-centered treatment planning. Lack of published interventions to reduce loneliness/isolation among persons with SCI/D makes these findings an invaluable source of information to develop novel interventions.

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Social disconnectedness and perceived social isolation in persons with spinal cord injury/dysfunction living in the community: A scoping review

Abstract: Structured summary 2Provide a structured summary that includes (as applicable): background, objectives, eligibility criteria, sources of evidence, charting methods, results, and conclusions that relate to the review questions and objectives.

Cited by 8 publications

References 73 publications

Evaluating the Effectiveness of Geriatric-Specific Cancer Rehabilitation Programs on Patient Health Outcomes

Evaluating the Effectiveness of Geriatric-Specific Cancer Rehabilitation Programs on Patient Health Outcomes

Patient-reported outcomes relevant to post-discharge trauma patients in urban India

Facilitators to alleviate loneliness and social isolation as identified by individuals with spinal cord injuries and disorders: A qualitative study.

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