Social isolation in women with endometriosis and chronic pelvic pain

Mellado, Bruna Helena; Falcone, Ananda C.M.; Neto, Omero Benedicto Poli; Silva, Júlio C. Rosa e; Nogueira, Antônio Alberto; Reis, Francisco José Candido dos

doi:10.1016/j.ijgo.2015.08.024

Cited by 52 publications

(45 citation statements)

References 28 publications

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“… 7 , 8 This suggests a detrimental effect of CPP on personal relationships and social support. A previous study showed progressive social isolation in women with endometriosis who developed pelvic pain, 27 hampering their relationships with partners, family, and friends. In agreement with previous findings, CPP also hampered activities of daily living, as shown by the results for the physical health domain.…”

Section: Discussionmentioning

confidence: 95%

Quality of life and associated factors in Brazilian women with chronic pelvic pain

Luz¹,

Deus²,

Conde³

2018

JPR

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BackgroundChronic pelvic pain (CPP) is a common and debilitating clinical condition in women.ObjectivesThe aim of this study was to compare the quality of life (QoL) of women with and without CPP and to investigate factors associated with the QoL of women with CPP.Patients and methodsA cross-sectional study was conducted with 100 women with CPP and 100 women without CPP. QoL was evaluated using the abbreviated version of the World Health Organization QoL instrument (WHOQOL-BREF). Depression and anxiety were evaluated using the Hospital Anxiety and Depression Scale, and sexual function was evaluated using the Female Sexual Function Index. Generalized linear models were used to analyze the data, permitting comparison of QoL scores and identification of the factors affecting QoL.ResultsMean age (± SD) was 37.8±8.0 and 37.2±9.6 years for women with and without CPP, respectively (P=0.648). Following adjustment, women with CPP had significantly lower QoL scores in the physical health (P<0.001) and social relationships’ (P=0.025) domains. Anxiety, depression, sexual dysfunction, hypertension, diabetes mellitus, pain intensity, lower family income, and not having a partner were factors negatively associated with QoL, while being postmenopausal, being employed, and having a child were positively associated with QoL in women with CPP.ConclusionWomen with CPP had poorer QoL than those without CPP. Factors affecting the QoL of women with CPP were identified, some for the first time in this population of women. Interventions targeting these factors may prove effective in minimizing the negative repercussion of CPP on QoL.

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Section: Discussionmentioning

confidence: 95%

Quality of life and associated factors in Brazilian women with chronic pelvic pain

Luz¹,

Deus²,

Conde³

2018

JPR

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“…Such findings imply that when women have stable social support, they may be less vulnerable to the negative emotional and physical manifestations of PD. For example, social isolation is a noted phenomenon in other chronic medical conditions, including painful disorders such as endometriosis, and may lessen physical and activity conditioning(Mellado et al, 2016).The interconnectivity of psychological impacts, social withdrawal, and physical inactivity may be central to pain propagation and interference in PD.Another example of the importance of social factors is the role of maternal responses, including maternal anxiety, in women's understandings of their own menstrual pain. Recent quantitative research has explored the ways parental psychological processes and behaviours may have an impact on pain functioning in children(Timmers, Simons, Hernandez, McCracken, & Wallace, 2019).…”

mentioning

confidence: 99%

“Tomorrow, I’ll Be Fine”: Impacts and coping mechanisms in adolescents and young adults with primary dysmenorrhoea

Allyn

Evans

Seidman

et al. 2020

Journal of Advanced Nursing

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Aims: To understand the experiences of adolescents and young adults with primary dysmenorrhoea through the lens of structured frameworks extant in contemporary pain literature. Design: Descriptive qualitative study. Methods: Thirty-nine adolescents and young adults (ages 16-24 years) with primary dysmenorrhoea participated in semi-structured in-person interviews. Transcripts of the interviews were analysed using deductive thematic analysis from November 2018 to April 2019. Results: Two overarching themes, each with subthemes, were identified. The first theme, primary dysmenorrhoea impacts the whole person, contained the following subthemes: biological, social, and psychological. The second theme, coping mechanisms of women with primary dysmenorrhoea, contained the following subthemes: primary, secondary, and passive coping. Conclusion: Women experience several primary dysmenorrhoea-related impacts on their biological, social, and psychological functioning. Women employ a variety of coping mechanisms to manage their primary dysmenorrhoea pain. Impact: This study emphasizes the significant effects of primary dysmenorrhoea on nearly every aspect of women's lives and contributes to an understanding of the ways women cope with this pain. The findings of this study underscore the need for continued consideration of primary dysmenorrhoea as a debilitating pain process as well as the need for additional interventions to help women manage this condition.

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“…Like other chronic pain conditions, CPP is influenced by and associated with many psychological and social factors, such as depression, anxiety, post‐traumatic stress disorder, substance abuse, catastrophization, hypervigilance, and helplessness 4,5 . With all these factors evolving around the CPP experience, it is no surprise that patients may have feelings and attitudes leading to social isolation, including: avoiding intimacy; self‐isolating from partners; friends, and family; perceptions that others lack understanding about the disease, and a sense of resignation 6 . It has been well described that patients with specific CPP conditions face obstacles in receiving proper care, as seen in patients with endometriosis who experience a delay of 3.8 years on average between symptom onset and seeking medical care, and a delay in diagnosis ranging from 5–8 years 7,8 .…”

Section: Chronic Pain Patients Were Underserved Before the Pandemicmentioning

confidence: 99%

Navigating the COVID‐19 waters with chronic pelvic pain

Villegas-Echeverri¹,

Carrillo

2020

Intl J Gynecology & Obste

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Social isolation in women with endometriosis and chronic pelvic pain

Abstract: Women with endometriosis develop progressive social isolation after the onset of chronic pelvic pain. This finding is important for the multidisciplinary management of the disease.

Cited by 52 publications

References 28 publications

Quality of life and associated factors in Brazilian women with chronic pelvic pain

Quality of life and associated factors in Brazilian women with chronic pelvic pain

“Tomorrow, I’ll Be Fine”: Impacts and coping mechanisms in adolescents and young adults with primary dysmenorrhoea

Navigating the COVID‐19 waters with chronic pelvic pain

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