Social Media as a Source of Knowledge about Gene Therapy for Spinal Muscular Atrophy

Tkaczuk, Magdalena; Zakrzewski, Dawid M.; Król, M.; Zawadzka, Marta; Waszak, Przemysław; Mazurkiewicz‐Bełdzińska, Maria

doi:10.3390/healthcare10122445

Cited by 3 publications

(2 citation statements)

References 15 publications

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“…The same method of analysis was used by Tkaczuk et al [22] examining the quality of information on the Internet about Onasemnogen Abapervovak gene therapy in multiple sclerosis. After analyzing the DISCERN scale and author's questions, the authors came to the conclusion that that most of the texts had a poor (48.65%) reliability level and the mean DISCERN score was 39.66 points, which indicates that the online material on the gene therapy is of "medium "quality.…”

Section: 2quality Of Internet Source In Other Workmentioning

confidence: 99%

Evaluating the Credibility and Reliability of Online Information on Cannabidiol (CBD) for Epilepsy Treatment

Zakrzewski,

Podlejska,

Kubziakowska

et al. 2024

Preprint

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The interest in potential therapeutic use of cannabis, especially cannabidiol (CBD) has increased significantly in recent years. On the Internet, the users can find lots of articles devoted to its medical features such as reducing seizure activity in epilepsy. The aim of our work was to evaluate the information contained on websites, including social media in terms of the credibility and the reliability of current knowledge about usage of products containing cannabidiol in epilepsy treatment. We used online available links found using the Newspointtool. The initial database included 38367 texts, but after applying the inclusion and exclusion criteria the 314 texts were taken into consideration. Analysis was performed by using the DISCERN scale and the set of questions created by the authors. In the final assessment, we observed that most of the texts (58,9%) were characterized by a very poor level of reliability and the average DISCERN score was 26,97 points. Additionally, considering the form of the text, the highest average score (35,73) came from entries on blog portals, whereas the lowest average score (18,33) came from comments and online discussion forums. Moreover, most of the texts do not contain key information regarding the indications, safety, desired effects and side effects of CBD therapy. The study highlights the need for healthcare professionals to guide patients towards reliable sources of information and cautions against the use of unverified online materials, especially as the only FDA-approved CBD medication, Epidiolex, differs significantly from over-the-counter CBD products.

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Section: 2quality Of Internet Source In Other Workmentioning

confidence: 99%

Evaluating the Credibility and Reliability of Online Information on Cannabidiol (CBD) for Epilepsy Treatment

Zakrzewski,

Podlejska,

Kubziakowska

et al. 2024

Preprint

Self Cite

View full text Add to dashboard Cite

show abstract

“…The same method of analysis was used by Tkaczuk et al [27] to examine the quality of information on the Internet about Onasemnogen Abapervovak gene therapy in multiple sclerosis. After analyzing the DISCERN scale and the author's questions, the authors came to the conclusion that most of the texts had a poor (48.65%) reliability level and the mean DISCERN score was 39.66 points, which indicates that the online material on the gene therapy is of "medium" quality.…”

Section: Quality Of Internet Source In Other Workmentioning

confidence: 99%

Evaluating the Credibility and Reliability of Online Information on Cannabidiol (CBD) for Epilepsy Treatment in Poland

Zakrzewski,

Podlejska,

Kubziakowska

et al. 2024

Healthcare

Self Cite

View full text Add to dashboard Cite

The interest in the potential therapeutic use of cannabis, especially cannabidiol (CBD), has increased significantly in recent years. On the Internet, users can find lots of articles devoted to its medical features such as reducing seizure activity in epilepsy. The aim of our work was to evaluate the information contained on the websites, including social media, in terms of the credibility and the reliability of current knowledge about the usage of products containing cannabidiol in epilepsy treatment. We used online available links found using the Newspointtool. The initial database included 38,367 texts, but after applying the inclusion and exclusion criteria, 314 texts were taken into consideration. Analysis was performed using the DISCERN scale and the set of questions created by the authors. In the final assessment, we observed that most of the texts (58.9%) were characterized by a very poor level of reliability and the average DISCERN score was 26.97 points. Additionally, considering the form of the text, the highest average score (35.73) came from entries on blog portals, whereas the lowest average score (18.33) came from comments and online discussion forums. Moreover, most of the texts do not contain key information regarding the indications, safety, desired effects, and side effects of CBD therapy. The study highlights the need for healthcare professionals to guide patients towards reliable sources of information and cautions against the use of unverified online materials, especially as the only FDA-approved CBD medication, Epidiolex, differs significantly from over-the-counter CBD products.

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Medical denialism: the concept, origins and possibilities of law in its overcoming

Volkova

2023

Вестник Университета имени О.Е. Кутафина (МГЮА)

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The article is devoted to the study of such a phenomenon as medical denialism and legal mechanisms to overcome it. The mass nature of the movements of antivaxers, HIV and covid denialism indicates the relevance of this problem in our country, and therefore it is important to investigate the reasons underlying medical denial. No less relevant is the question of the effectiveness of legal influence on these processes: can legal imperatives properly influence people’s behavior in relation to their health? Or should the state involve other social regulators to counter the destructive manifestations of medical denialism? The search for answers to these questions involves the use of not only legal tools, but also the involvement of an arsenal of other sciences — medicine, psychology, philosophy.

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Social Media as a Source of Knowledge about Gene Therapy for Spinal Muscular Atrophy

Cited by 3 publications

References 15 publications

Evaluating the Credibility and Reliability of Online Information on Cannabidiol (CBD) for Epilepsy Treatment

Evaluating the Credibility and Reliability of Online Information on Cannabidiol (CBD) for Epilepsy Treatment

Evaluating the Credibility and Reliability of Online Information on Cannabidiol (CBD) for Epilepsy Treatment in Poland

Medical denialism: the concept, origins and possibilities of law in its overcoming

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