Social Media Use in Chronic Disease: A Systematic Review and Novel Taxonomy

Patel, Rajesh; Chang, Tammy; Greysen, S. Ryan; Chopra, Vineet

doi:10.1016/j.amjmed.2015.06.015

Cited by 202 publications

(167 citation statements)

References 53 publications

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“…Two reviews identified evidence that mass media campaigns can in fact have positive impact [8, 57]. Patel et al showed that using social media, especially Facebook and blogs, likely improves care for patients with chronic disease [60]. Stellefson et al reported that Web 2.0 can benefit older adults in managing their diseases [61].…”

Section: Discussionmentioning

confidence: 99%

Using media to impact health policy-making: an integrative systematic review

et al. 2017

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IntroductionMedia interventions can potentially play a major role in influencing health policies. This integrative systematic review aimed to assess the effects of planned media interventions—including social media—on the health policy-making process.MethodsEligible study designs included randomized and non-randomized designs, economic studies, process evaluation studies, stakeholder analyses, qualitative methods, and case studies. We electronically searched Medline, EMBASE, Communication and Mass Media Complete, Cochrane Central Register of Controlled Trials, and the WHO Global Health Library. We followed standard systematic review methodology for study selection, data abstraction, and risk of bias assessment.ResultsTwenty-one studies met our eligibility criteria: 10 evaluation studies using either quantitative (n = 7) or qualitative (n = 3) designs and 11 case studies. None of the evaluation studies were on social media. The findings of the evaluation studies suggest that media interventions may have a positive impact when used as accountability tools leading to prioritizing and initiating policy discussions, as tools to increase policymakers’ awareness, as tools to influence policy formulation, as awareness tools leading to policy adoption, and as awareness tools to improve compliance with laws and regulations. In one study, media-generated attention had a negative effect on policy advocacy as it mobilized opponents who defeated the passage of the bills that the media intervention advocated for. We judged the confidence in the available evidence as limited due to the risk of bias in the included studies and the indirectness of the evidence.ConclusionThere is currently a lack of reliable evidence to guide decisions on the use of media interventions to influence health policy-making. Additional and better-designed, conducted, and reported primary research is needed to better understand the effects of media interventions, particularly social media, on health policy-making processes, and the circumstances under which media interventions are successful.Trial registrationPROSPERO 2015:CRD42015020243 Electronic supplementary materialThe online version of this article (doi:10.1186/s13012-017-0581-0) contains supplementary material, which is available to authorized users.

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Section: Discussionmentioning

confidence: 99%

Using media to impact health policy-making: an integrative systematic review

et al. 2017

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“…The health care professional uses the information gleaned on assessment to determine the appropriate educational and behavioral interventions, including enhancing the participant's problem-solving skills (8,11,130). The assessment must incorporate information about the individual's medical history, age, cultural influences, health beliefs and attitudes, diabetes knowledge, diabetes self-management skills and behaviors, emotional response to diabetes, disease burden, ability, readiness to learn, literacy level (including health literacy and numeracy), physical limitations, family support, peer support (in person or via social networking sites), financial status, and other barriers (29, [131][132][133][134]. After the initial assessment, additional assessments can be incremental over time as indicated based on participant need (13).…”

Section: Standard 7 Individualizationmentioning

confidence: 99%

2017 National Standards for Diabetes Self-Management Education and Support

et al. 2017

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“…13,48 One innovative review examined 42 studies reporting clinical outcomes on leading contemporary social media use (i.e., Facebook, Twitter, Wikipedia, YouTube) in 10 chronic diseases, many giving rise to palliative care needs. 49 Its findings suggest that, overall, the impact of social media on chronic disease is variable, with 48% of studies indicating benefit, 45% neutral or undefined, and 7% suggesting harm. The authors recommend using social media to provide social, emotional, or experiential support in chronic disease.…”

Section: Palliative Care Campaigns S-31mentioning

confidence: 99%

The Impact of Public Health Awareness Campaigns on the Awareness and Quality of Palliative Care

Seymour

2018

Journal of Palliative Medicine

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Objective: The right to health includes a right of access to good quality palliative care, but inequalities persist. Raising awareness is a key plank of the public health approach to palliative care, but involves consideration of subjects most of us prefer not to address. This review addresses the question: ''do public health awareness campaigns effectively improve the awareness and quality of palliative care''? Background: The evidence shows that public awareness campaigns can improve awareness of palliative care and probably improve quality of care, but there is a lack of evidence about the latter. Methods: Rapid review and synthesis. Results: A comprehensive public awareness campaign about palliative care (including advance care planning and end-of-life decision making) should be based on clear and shared terminology, use well piloted materials, and the full range of mass media to suit different ages, cultures, and religious/spiritual perspectives. Arts and humanities have a role to play in allowing individuals and communities to express experiences of illness, death, and grief and encourage conversation and thoughtful reflection. There is evidence about key factors for success: targeting, networking, and use of specific, measurable, achievable, realistic time-bound objectives; continuous evaluation; and complementarity to national and international policy. Discussion: Campaigns should be located within the framework of public health promotion and the synergy between short national mass media campaigns and longer term local community action initiatives carefully considered. National and local projects to raise awareness should identify and address any barriers at the level of individuals, communities, and systems of care, for example, literacy skills and unequal access to resources.

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Social Media Use in Chronic Disease: A Systematic Review and Novel Taxonomy

Cited by 202 publications

References 53 publications

Using media to impact health policy-making: an integrative systematic review

Using media to impact health policy-making: an integrative systematic review

2017 National Standards for Diabetes Self-Management Education and Support

The Impact of Public Health Awareness Campaigns on the Awareness and Quality of Palliative Care

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