Social networks of older adults living with HIV in Finland

Nobre, Nuno; Kylmä, Jari; Kirsi, Tapio; Pereira, Marco

doi:10.1080/09540121.2015.1071774

Cited by 17 publications

(14 citation statements)

References 20 publications

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“…The negative impact of self-stigma on social relationships may have reflected potential difficulties that self-stigmatized PLWH experienced within their social networks (friends and family), which may have resulted from the negative experiences of PLWH associated with others' reactions to HIV status disclosure (Chambers et al, 2015;Tsai et al, 2013). Others' negative reactions have played a role in social life withdrawal (Nobre, Kylm€ a, Kirsi, & Pereira, 2016). Concealing one's diagnosis from significant others may result in less emotional support (Takada et al, 2014) and increased social isolation (Tsai et al, 2013), negatively impacting the individual's QoL.…”

Section: Discussionmentioning

confidence: 99%

HIV-Related Self-Stigma and Health-Related Quality of Life of People Living With HIV in Finland

Nobre¹,

Pereira²,

Roine³

et al. 2018

Journal of the Association of Nurses in AIDS Care

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We examined how HIV-related self-stigma was associated with different domains of quality of life (QoL), as measured by the World Health Organization Quality of Life in HIV-infected persons instrument (WHOQOL-HIV-Bref), and health-related quality of life (HRQoL) as measured by the generic 15D (15-dimensional measure of HRQoL), to identify the factors associated with self-stigma of people living with HIV (PLWH). The study sample included 440 patients living with HIV followed at the Infectious Disease Clinic of Helsinki University Hospital. Participants with more severe self-stigma reported significantly lower QoL and HRQoL. Male gender, cohabiting with a partner, and disclosure of HIV status were associated with less self-stigma; high education level and financial difficulties were associated with greater self-stigma. Having lived longer with HIV, being unemployed, and living alone were also predictors of self-stigma via financial difficulties. The findings suggest that self-stigma is a complex and multidimensional phenomenon that impacts the HRQoL of PLWH. Psychosocial interventions to enhance the well-being of PLWH are increasingly needed.

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Section: Discussionmentioning

confidence: 99%

HIV-Related Self-Stigma and Health-Related Quality of Life of People Living With HIV in Finland

Nobre¹,

Pereira²,

Roine³

et al. 2018

Journal of the Association of Nurses in AIDS Care

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“…HIV-associated chronic systemic inflammation may accelerate age-related immune senescence (Effros et al, 2008; Younas et al, 2016). Furthermore, the average older PLWH is disproportionately a sexual minority and often lacks financial and/or social supports, all of which have been associated with depression, anxiety, and feelings of isolation (Effros et al, 2008; Nobre, Kylmä, Kirsi, & Pereira, 2016; Sabin et al, 2013). These factors may explain why PLWH enter NHs at a younger age than their uninfected counterparts.…”

Section: Introductionmentioning

confidence: 99%

People Living With HIV in U.S. Nursing Homes in the Fourth Decade of the Epidemic

Olivieri‐Mui¹,

McGuire²,

Cahill³

et al. 2019

Journal of the Association of Nurses in AIDS Care

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As the number of persons living with HIV (PLWH) will continue to increase in the coming years, it is critical to understand factors influencing appropriate nursing home (NH) care planning. This study described the socio-demographic characteristics as well as the antiretroviral therapy (ART) treatment and physical and mental health among Medicare-eligible PLWH in NHs. PLWH were identified and summarized using a 2011–2013 nationwide dataset of Medicare claims linked to NH resident health assessments and a prescription dispensing database, comparing new admissions in 2011–2013 to those from 1998–2000. We identified 7,188 PLWH from 2011–2013 in NHs of whom 4,031 were newly admitted. Of the total, 79% were prescribed ART. Most were male (73%), Black/African American (51.1%), and a plurality resided in southern NHs (47%). Comparing the datasets, new admissions were older (60 vs. 44), had higher prevalence of viral hepatitis (16.2% vs. 7.5%), and anemia (31.1% vs. 25.1%), but less pneumonia (11.0% vs. 13.6%), and dementia (8.7% vs. 21.0%). NH nurses can better anticipate health care needs of PLWH using these health profiles, understanding that there have been changes in the health of PLWH at admission over time.

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“…Activation theory specifies that large networks cultivated by people with pressing health needs act as conduits for needed support and ultimately serve as coping mechanisms in dealing with duress [8][9][10][11]. Some previous studies have supported the activation perspective, reporting that PLHIV actively establish accommodating relationships with friends [19] and fill gaps in their networks with relatives and neighbors after conflict or estrangement with former ties [19][20][21][22]. Other studies, however, have highlighted the commonality of social isolation and rejection from immediate family members, relatives, and friends among PLHIV [17,52,53].…”

Section: Discussionmentioning

confidence: 99%

“…On the other hand, some studies indicate that PLHIV maintain multifaceted networks that provide needed support. Upon receiving a diagnosis of HIV, for example, many older Finnish adults begin to actively establish new relationships with friends, especially with HIV support group members [ 19 ]. Several studies describe relatives and neighbors filling significant gaps in support networks, particularly after conflict or estrangement with former ties [ 20 – 22 ].…”

Section: Introductionmentioning

confidence: 99%

Do Older Adults with HIV Have Distinctive Personal Networks? Stigma, Network Activation, and the Role of Disclosure in South Africa

2020

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This study considers whether the personal networks of older South African people living with HIV (PLHIV) differ from those without HIV. Using recent survey data (N = 5059), results suggest that PLHIV reported more core network members than their peers without HIV (IRR 1.08; 95% CI 1.03, 1.13), but were equally likely to receive emotional support from network members (1.21; 95% CI 0.93, 1.58). PLHIV who had yet to disclose their serostatus were more likely than others to have friends and other non-kin in their core network (B 0.08; 95% CI 0.02, 0.13) and to maintain networks of non-overlapping members (OR 2.11; 95% CI 1.33, 3.34). Even as HIV remains highly stigmatized in South Africa, PLHIV tend to maintain relatively large and supportive networks. Still, a sizeable proportion of PLHIV do not disclose their illness-these individuals disproportionately inhabit networks marked by non-kin and by high bridging potential.

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Social networks of older adults living with HIV in Finland

Abstract: The aim of this study was to explore the social networks of older adults living with HIV.

Cited by 17 publications

References 20 publications

HIV-Related Self-Stigma and Health-Related Quality of Life of People Living With HIV in Finland

HIV-Related Self-Stigma and Health-Related Quality of Life of People Living With HIV in Finland

People Living With HIV in U.S. Nursing Homes in the Fourth Decade of the Epidemic

Do Older Adults with HIV Have Distinctive Personal Networks? Stigma, Network Activation, and the Role of Disclosure in South Africa

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