Social participation and health-related quality of life in people with multiple sclerosis

Mikula, Pavol; Nagyová, Iveta; Krokavcova, Martina; Vitková, Marianna; Rosenberger, Jaroslav; Szilasiová, Jarmila; Gdovinová, Zuzana; Groothoff, Johan W.; Dijk, Jitse P. van

doi:10.1016/j.dhjo.2014.07.002

Cited by 42 publications

(30 citation statements)

References 25 publications

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“…Further, participants noted that these difficulties led to decreased social engagement, which could contribute to additional health or quality of life issues. This is consistent with the existing research on participation and disability (Jaeger, Röjvik, and Berglund 2015;Mikula et al 2015). Thus, these findings support the argument that clothing belongs among the external or human environmental factors to consider when assessing the level of impairment or functioning in individuals according to ICF methods.…”

Section: Discussionsupporting

confidence: 80%

“…Social participation has been linked to a higher quality of life for people with disabilities throughout the life course (Jaeger, Röjvik, and Berglund 2015;Mikula et al 2015), and physical as well as social environments are known to influence participation (Hammel et al 2008). However, aging with disabilities has been associated with social disengagement (Kubina et al 2013) and an increase in participation barriers that older adults must navigate (Johnson, Brown, and Knaster 2010).…”

Section: Disability Assessment and Impacts On Social Participationmentioning

confidence: 99%

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Disability, Participation and Apparel throughout the Life Course

Dimka¹,

Kabel²,

McBee-Black³

2023

A&A

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There are a growing number of people living with disabilities (PLWD) throughout the life course and across the disability spectrum. While much attention has been paid to environmental barriers to social participation for PLWD, apparel-related barriers have been largely overlooked. We conducted an online survey of 110 PLWD to identify challenges to finding appropriate clothing and related concerns regarding social participation for members of different adult age categories. Survey results included (1) difficulties finding or purchasing appropriate clothing and some apparel-related barriers to participation were more frequently reported by respondents in older age groups and (2) the increase in complications were not simply directly associated with aging.

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Section: Discussionsupporting

confidence: 80%

Section: Disability Assessment and Impacts On Social Participationmentioning

confidence: 99%

Disability, Participation and Apparel throughout the Life Course

Dimka¹,

Kabel²,

McBee-Black³

2023

A&A

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“…3,4 The loss of employment usually occurs early in the disease course suggesting that the change in work status experienced by people with MS is a direct consequence of the disease process. 9 Furthermore, burden of illness studies have identified that loss of employment may cost an individual up to 40% of their lifetime earnings. 9 Furthermore, burden of illness studies have identified that loss of employment may cost an individual up to 40% of their lifetime earnings.…”

Section: Introductionmentioning

confidence: 99%

Multiple Sclerosis impact on employment and income in New Zealand

et al. 2016

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“…Moreover, when dealing with chronic conditions, it has been recognized that “social participation,” in addition to clinical and medical management, may bring many advantages in terms of improving the adherence and compliance to therapy, as well as improving coping with the condition, thereby resulting in better health outcomes. For example, a recent study in multiple sclerosis suggested that social participation was significantly associated with health-related quality of life [5]. Hence, we suggest that social participation should be an important intervention component of chronic conditions such as Ménière’s disease.…”

Section: Introductionmentioning

confidence: 86%

Disease Profiling for Computerized Peer Support of Ménière's Disease

Rasku

Pyykkö

Levo

et al. 2015

JMIR Rehabil Assist Technol

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BackgroundPeer support is an emerging form of person-driven active health care. Chronic conditions such as Ménière’s disease (a disorder of the inner ear) need continuing rehabilitation and support that is beyond the scope of routine clinical medical practice. Hence, peer-support programs can be helpful in supplementing some of the rehabilitation aspects.ObjectiveThe aim of this study was to design a computerized data collection system for the peer support of Menière’s disease that is capable in profiling the subject for diagnosis and in assisting with problem solving.MethodsThe expert program comprises several data entries focusing on symptoms, activity limitations, participation restrictions, quality of life, attitude and personality trait, and an evaluation of disease-specific impact. Data was collected from 740 members of the Finnish Ménière’s Federation and utilized in the construction and evaluation of the program.ResultsThe program verifies the diagnosis of a person by using an expert system, and the inference engine selects 50 cases with matched symptom severity by using a nearest neighbor algorithm. These cases are then used as a reference group to compare with the person’s attitude, sense of coherence, and anxiety. The program provides feedback for the person and uses this information to guide the person through the problem-solving process.ConclusionsThis computer-based peer-support program is the first example of an advanced computer-oriented approach using artificial intelligence, both in the profiling of the disease and in profiling the person’s complaints for hearing loss, tinnitus, and vertigo.

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Social participation and health-related quality of life in people with multiple sclerosis

Cited by 42 publications

References 25 publications

Disability, Participation and Apparel throughout the Life Course

Disability, Participation and Apparel throughout the Life Course

Multiple Sclerosis impact on employment and income in New Zealand

Disease Profiling for Computerized Peer Support of Ménière's Disease

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