SummaryObjectives: Despite significant awareness on the value of leveraging patient relationships across the healthcare continuum, there is no research on the potential of using Electronic Health Record (EHR) systems to store structured patient relationship data, or its impact on enabling better healthcare. We sought to identify which EHR systems supported effective patient relationship data collection, and for systems that do, what types of relationship data is collected, how this data is used, and the perceived value of doing so.
Materials and methods:We performed a literature search to identify EHR systems that supported patient relationship data collection. Based on our results, we defined attributes of an effective patient relationship model. The Open Medical Record System (OpenMRS), an open source medical record platform for underserved settings met our eligibility criteria for effective patient relationship collection. We performed a survey to understand how the OpenMRS patient relationship model was used, and how it brought value to implementers. Results: The OpenMRS patient relationship model has won widespread adoption across many implementations and is perceived to be valuable in enabling better health care delivery. Patient relationship information is widely used for community health programs and enabling chronic care. Additionally, many OpenMRS implementers were using this feature to collect custom relationship types for implementation specific needs. Conclusions: We believe that flexible patient relationship data collection is critical for better healthcare, and can inform community care and chronic care initiatives across the world. Additionally, patient relationship data could also be leveraged for many other initiatives such as patient centric care and in the field of precision medicine.
BackgroundAs social animals, humans build complex relationships with one another within the community that they live in [1]. Identifying such relationships between patients and their caregivers, family members/dependents, and healthcare providers can help inform community support structures, identify disease discordance/relationship-based clusters, and improve community health care delivery, thus improving the efficiency, effectiveness, and impact of healthcare [2][3][4].In the United States and other developed nations, patient relationship data are critical for supporting the move towards patient centric and patient controlled care models [5]. Relationship data may also contribute to assessing family health history, which helps promote comprehensive patient and family centered care with the potential to impact individual, family, and population-based outcomes [6].Patient relationship data are also of critical importance for many Low and Middle Income Countries (LMIC), which are defined as countries with a gross national income (GNI) less than 12,736 US dollars per capita in 2014 [7]. In LMIC, relationships play a crucial role in maximizing use of limited health resources by linking patients to various communit...