Social relationships and psychological well-being in rheumatoid arthritis

Fitzpatrick, Ray; Newman, Stanton; Lamb, Rosemarie; Shipley, Michael

doi:10.1016/0277-9536(88)90275-4

Cited by 133 publications

(74 citation statements)

References 23 publications

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“…Disability seemed to have a negative impact on psychological features, particularly on depression and anxiety which were the strongest indicators of the psychological construct. The effect on the level of depression is in line with several studies among patients affected by rheumatoid arthritis (Fitzpatrick et al, 1988;Brown et al, 1989;Revenson and Feiton, 1989).…”

Section: Interpretation and Implicationssupporting

confidence: 88%

Well-being of haemophilia patients: a model for direct and indirect effects of medical parameters on the physical and psychosocial functioning

Triemstra

Ploeg

Smit³

et al. 1998

Social Science & Medicine

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Abstract-This study outlines the development and evaluation of a structural equation model for establishing the consequences of haemophilia. The hereditary disorder is characterized by a high tendency to haemorrhages, with recurrent bleeding mto the joints causing irreversible joint damage. The model is, in general, an attempt to answer the following questions: what is the effect of haemophilia on the wellbeing (i.e. satisfaction, health, somatic complaints and self-esteem) of patients and what is the additional or mediating role of other individual characteristics in this pathway? Disease severity, joint impairment and disability are defined äs antecedents of well-being and the mediating roles of appraisal (i.e. the personal evaluation of the disease), health beliefs (i.e. locus of control), psychological characteristics (i.e. anxiety, anger, depression and optimism) and social Support are investigated. Psychological variables turned out to be the strengest determinants of well-being and partly mediated the detrimental effect of disability on well-being. The role of appraisal remained somewhat unclear, äs no significant relationship was established between this personal evaluation of haemophilia and well-being. Nevertheless, appraisal very well reflected the level of disability. An internal locus of control and favourable psychological characteristics appeared to reduce the perceived seriousness of haemophilia. No evidence was found for social Support to act äs a mediator between disability and well-being. The perception of support did show moderately strong associations with psychological characteristics (i.e. anxiety and depression) and satisfaction ratings. The study merits further research on quantifying the relationships between clinical parameters and psychosocial outcomes in patients with a chronic disease.

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Section: Interpretation and Implicationssupporting

confidence: 88%

Well-being of haemophilia patients: a model for direct and indirect effects of medical parameters on the physical and psychosocial functioning

Triemstra

Ploeg

Smit³

et al. 1998

Social Science & Medicine

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“…There is extensive evidence that social support buffers the stress associated with illness, effectively mitigates many of the consequences of physiologic and psychologic stressors, and positively influences health outcomes (49)(50)(51)(52). Although social support has not been studied in individuals with SSc, satisfaction with social support has been correlated with psychological wellbeing in women with RA (23).…”

Section: Discussionmentioning

confidence: 99%

Predictors of psychosocial adjustment in systemic sclerosis

Moser

Clements

Brecht

et al. 1993

Arthritis & Rheumatism

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Objective. To determine predictors of psychosocial adjustment in patients with systemic sclerosis (SSc).Methods. We surveyed 94 patients with SSc. Age, sex, education level, marital status, work status, income, support group attendance, length of time since diagnosis, functional status, social support, illnessrelated uncertainty, and hardiness were examined as potential predictors of psychosocial adjustment. The reliability and validity of the instruments used to measure these variables have been established.ResuZts. Only education level, functional ability, illness-related uncertainty, hardiness, and social support were predictive of psychosocial adjustment. Education level and functional ability explained 14% of the variance in psychosocial adjustment, while illnessrelated uncertainty, hardiness, and social support increased the explained variance to 38 %.Conclusion. Although patients with relatively poorer psychosocial adjustment to illness have lower formal education levels and more functional disability, the majority of the explained variance in psychosocial

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“…Early patient studies showed that social support may act as a buffer against psychological distress m patients with stroke (Friedland and McCoU, 1987) and rheumatoid arthritis (Fitzpatrick et al, 1988), The relationship between emotional cUstress and social support has also been identified ui stucUes of caregivers. Research on care^ving for the elderly has shovsTi that carers who have greater emotional and social support usuaUy report lower levels of depression and higher levels of Ufe satisfaction (Schulz et al, 1995;Franks and Stephens, 1996).…”

Section: Social Supportmentioning

confidence: 99%

“…shown that social support and the abUity to express social needs is associated with adjustment in stroke (Evans and Northwood, 1983) and adjustment in other patient groups including self-reported cUsabiUty (Patrick et al, 1986), rheumatoid arthritis (Fitzpatrick et al, 1988) and spinal cord injuty (Schulz and Decker, 1985). Social support and expressing social needs may be the reason why some mcUviduals cope better m a crisis than others.…”

Section: Social Supportmentioning

confidence: 99%

Caregiver strain in spouses of stroke patients

Blake¹,

Lincoln²,

Clarke

2003

Clin Rehabil

107

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Objective: To test the ability of a previously generated logistic regression model to predict caregiver strain from carer mood, negative affectivity and perceived patient functional ability. Design: Postal prospective survey. Setting: Spouses of community-residing patients identified from hospital stroke registers. Method: Spouses were assessed at three and six months after stroke. A previously derived equation was used to make predictions at three months of their level of strain at six months, which were compared with observed outcomes. Measures: Spouses were asked to complete the Caregiver Strain Index (CSI), the General Health Questionnaire (GHQ-12), the Positive and Negative Affectivity Schedule (PANAS) and to assess patients' independence in activities of daily living on the Extended Activities of Daily Living Scale (EADL). Results: Of 409 stroke patients, 276 had an identifiable co-resident spouse and 116 (42%) completed the measures. At three months after stroke, 39 carers (34%) were under significant strain with 40 (35%) under strain at six months. The predictive model using the GHQ-12, PANAS and EADL at three months was 78% accurate in predicting levels of caregiver strain at six months. Conclusion: Carers at risk of later strain could be identified for further followup. Services to provide emotional support to carers might be effective in the reduction of carer strain.

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Social relationships and psychological well-being in rheumatoid arthritis

Cited by 133 publications

References 23 publications

Well-being of haemophilia patients: a model for direct and indirect effects of medical parameters on the physical and psychosocial functioning

Well-being of haemophilia patients: a model for direct and indirect effects of medical parameters on the physical and psychosocial functioning

Predictors of psychosocial adjustment in systemic sclerosis

Caregiver strain in spouses of stroke patients

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